Nintedanib for Systemic Sclerosis-Associated Interstitial Lung Disease User Reviews
Brand names: Ofev
- TB1...
- Taken for 6 months to 1 year
- July 19, 2023
"My husband started taking this medication a little over 6 months ago. His breathing has improved, and now he can take walks again in the mornings without feeling out of breath. Experienced no side effects, fortunately."
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- Drug class: multikinase inhibitors
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"I have systemic sclerosis and silicosis. I take 2160 mg of Myfortic each day and have been on Ofev for about 18 months, 150 mg 2x per day. Oxygen at night and during exertion. Surprised I have a stomach left between both of these drugs. The Myfortic has stopped the scleroderma, and despite the side effects, has helped tremendously. The jury is still out on Ofev. My morning coughing has diminished since taking Ofev, but lung function generally remains unchanged. Definitely have gastrointestinal side effects from both drugs, but it's better than dying in a few years. I can still work and will retire in about 2 years."