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Rydapt for Systemic Mastocytosis User Reviews

  • Mas...
  • Taken for 1 to 2 years
  • June 9, 2019

"I have a love/hate relationship with Rydapt, which I take for aggressive systemic mastocytosis (ASM). A year ago, we thought I had months to live. Well, I am still here and doing much better. I had lost 160 lbs in 6 months, my mast cells were out of control in most parts of my digestive system and bone marrow, and I had the rashes, twitching, and every other ailment that goes with ASM. I started Rydapt, and things improved, I gained the weight I needed to gain back, and the ASM has been responding very well. HOWEVER... this drug has caused a panic in me, twice a day! I cannot stop vomiting, it has progressively gotten worse and is now damaging my stomach. However, I still rate this drug a 7 for all of the positive effects it has had!"

7 / 10
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2 Report
  • har...
  • Taken for 6 months to 1 year
  • May 19, 2017

"We have been in a single clinical trial, and it has improved the quality of life by 50% in the last 6 months, after having systemic mastocytosis (SMC) for 20 years."

8 / 10
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5 Report

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.