Camzyos for Hypertrophic Cardiomyopathy User Reviews

• Lis...
• Taken for 1 to 2 years
• October 10, 2023

"Camzyos has changed my life. I've gone from having swollen legs all my life to now being able to see my ankles. I've gone from not being able to walk upstairs to being able to walk the stairs without losing my breath. It is a total game changer, and I thank God every day that I have come across this medication."

• JVR...
• Taken for 6 months to 1 year
• March 11, 2025

"Eight months on Camzyos at 5 mg. During the first 6 weeks, felt no improvement in symptoms. My ejection fraction was unchanged, but my pressure gradient went down. Between week 6 and 12, had a series of good, very good days, then more bad days, then good after week 12. Echos continued to show stable pressure gradient, so I remained on 5 mg until my last Echo, 11 days ago. My resting gradient was 44, and I was increased to 10 mg. I have been on 10 mg for almost two weeks. Feeling very tired-more so than when I was on 5 mg. So far, this drug has been a roller coaster ride for me. I know many people have done well on it. I am going to stick with it. My next Echo is in about 2 weeks. For some, this drug just takes longer and at higher doses. By the way, no side effects at 5 mg except some headaches. These first few days at the higher dose have presented greater tiredness. I am also taking a 10 mg beta blocker (Bystolic), 160 mg Valsartan, and 2.5 mg of Amlodipine. 100 mg of Zoloft."

• sun...
• Taken for 1 to 6 months
• March 5, 2025

"I am facing a problem with hypertrophic cardiomyopathy. I had a septal myectomy surgery 5 years back, but my problem didn't improve after surgery. My removed muscle regrew, and it creates a problem like chest pain. Sometimes I feel like fainting and have blurred vision, and I don't want to get surgery again. I have planned to talk with my cardiologist about mavacamten drugs for my condition. I hope this drug will improve my symptoms, quality of life, and functioning of the heart."

• Car...
• Taken for 1 to 2 years
• March 4, 2025

"I am the 'poster child' for Camzyos. I have been taking it for 17 months with no complications and the ability to be as active as possible with no limitations. Truly a wonder drug! I might not write such a glowing review if I had to pay the 'listed' price, which is quite pricey at $8,300 a month, give or take a few hundred dollars! Fortunately, with Medicare, a foundation grant, and my Rx insurance, I have yet to pay anything! Hopefully, that continues."

• JME...
• Taken for less than 1 month
• January 2, 2025

"Started taking 20 days ago, 5 mg. At start, gradient resting 48 mmHg, provoked 97 mmHg. After 20 days, resting 13 mmHg, provoked 31 mmHg (Valsalva). Makes me lightheaded and winded. Side effects appear to be slight frontal evening headaches, some palpitations. Still, sudden quick moves make me feel lightheaded. Before taking, could not climb two steps on a step stool without fatigue. Now, ladders are no problem and easy rides on my bicycle up to 6 miles. Will see how next visit goes."

• Hap...
• Taken for 1 to 2 years
• November 11, 2024

"I have been on it for 13 months. It has worked very well, decreasing the large gradient all the way down. I am 73 years old and lived undiagnosed with HCM for years with fatigue, lightheadedness, and vague symptoms, but was functioning pretty well. My quality of life is down since on the amazing medication. I guess I'm one of those who don't tolerate it as well. Terrible, debilitating headaches that last 2-3 days, several times a month. My wonderful cardiologist asked me if I could hang in there, and since I'm retired, I'll try."

• lou...
• Taken for 6 months to 1 year
• April 24, 2024

"I cannot believe the change in my life. I used to walk from pillar to post in order to catch my breath. Now I’m able to walk normally…no need for pause. I’m so grateful for the drug. No negatives. I can breathe normally."

• Che...
• Taken for 1 to 6 months
• May 14, 2025

"I have been on Camzyos for about 2 months now. After my first low dose, I felt better. As of today, awaiting my third echo, I am not feeling as I did. I know I need to learn patience, however, being a grandma of 10 grandkids, I feel so bad I don't interact with them as I used to. It has been a depressing time for me, and I pray I will get better. Granted I wasn't a marathon runner, but just to walk and not worry about getting out of breath is something I took for granted. Hopefully, I will improve and do just simple things."