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WHAT YOU NEED TO KNOW:
What is hypertrophic cardiomyopathy?
Hypertrophic cardiomyopathy (HCM) is a disease of your heart muscle cells. As the cells enlarge, they cause the walls of your ventricles to become thick and stiff. The ventricles are the 2 lower chambers of your heart. They pump blood to your lungs and the rest of your body. When the ventricles are thick or stiff, your heart cannot fill with enough blood. This decreases the blood and oxygen supply to the rest of your body. HCM is usually inherited. HCM may also develop over time. High blood pressure, thyroid disease, and diabetes may cause HCM to develop.
What are the signs and symptoms of HCM?
You may have no signs or symptoms or you may have any of the following:
- Chest pain
- Shortness of breath especially during exercise
- Feeling dizzy or fainting
How is HCM diagnosed?
Your healthcare provider will listen to your heart and lungs. He or she may check your abdomen, ankles, and feet for swelling. Tell him or her if you have other health conditions or family members with heart disease. Tell your healthcare provider if you smoke, drink alcohol, or take drugs. You may need the following tests:
- An EKG or ECG records the electrical activity of your heart. It may show abnormal heartbeats or signals from changes to the heart muscle.
- A chest x-ray will show enlarged ventricles or a large left atrium.
- An echocardiogram is a type of ultrasound. Sound waves are used to show the structure and function of your heart.
- A Holter monitor will record your heart's activity for a length of time prescribed by your doctor. The results may show changes in your heart's rhythm.
- A cardiac MRI may show the size of your heart and the thickness of your ventricles. It can also show if you have iron buildup in your heart. You may be given contrast liquid to help the pictures show up better. Tell the healthcare provider if you have ever had an allergic reaction to contrast liquid. Do not enter the MRI room with anything metal. Metal can cause serious injury. Tell the healthcare provider if you have any metal in or on your body.
- Cardiac catheterization is a procedure used to look for or treat a heart condition. A catheter is inserted in your arm, neck, or groin and moved into your heart. Contrast liquid is injected into an artery and x-rays of your blood flow are taken. Tell a healthcare provider if you have ever had an allergic reaction to contrast liquid.
- A stress test will show your heart's response to exercise.
What medicines are used to treat HCM?
Treatment of HCM depends on how much the disease has affected your health. The goal of treatment is to stop the problems caused by HCM and keep the disease from getting worse. You may need one or more of the following:
- Blood thinners help prevent blood clots. These include aspirin and warfarin. Take your medicine exactly as directed. Tell your healthcare provider if you forgot to take it or if you took too much. Blood thinners may cause you to bleed or bruise more easily. Use a soft toothbrush and an electric shaver. Wear medical alert jewelry or carry a card that says you take a blood thinner. Tell all healthcare providers, including your dentist, that you take this medicine.
- Heart medicine helps strengthen or regulate your heartbeat.
- Blood pressure medicine: This is given to lower your blood pressure. A controlled blood pressure helps protect your organs, such as your heart, lungs, brain, and kidneys. Take your blood pressure medicine exactly as directed.
What treatments are used for HCM?
- An implantable cardioverter defibrillator (ICD) is a small device that monitors your heart rate and rhythm. It is placed inside your chest or abdomen. An ICD can give a shock to your heart to make it start beating again. It can also make your heart beat faster or slower.
- Open heart surgery may be needed to remove part of the thickened muscle that separates the left from right ventricle. You may also need to have a heart valve repaired or replaced so your heart can pump enough blood to your body. Heart valves allow blood flow between the chambers of your heart.
- Septal ablation is a procedure where healthcare providers use a cardiac catheter to inject a solution of alcohol into the thickened part of the heart wall (septum). This can help shrink that part of the muscle and increase the amount of blood the heart can pump.
How can I manage my symptoms?
- Manage your other health conditions. Diabetes and high blood pressure that are not controlled will increase your risk for heart problems.
- Limit your liquids. Talk to your healthcare provider about how much liquid to drink in a day. Your risk for fluid buildup and swelling increases if you drink too much. Your risk for dehydration increases if you do not drink enough liquid. Your heart has to work harder with too much or too little liquid.
- Eat heart healthy foods. Eat whole grains, fruits, and vegetables every day. Limit salt and high-fat foods. Ask your healthcare provider for more information on a heart healthy diet.
- Avoid alcohol. Alcohol can increase your symptoms by causing dehydration and weight gain.
- Talk to your healthcare provider about exercise. Your healthcare provider will help you make a plan for exercise. He or she will tell you which exercises you need to avoid, such as weightlifting and running.
- Do not smoke. Smoking weakens your heart and makes shortness of breath and other symptoms worse. If you smoke, it is never too late to quit. Ask your healthcare provider for information if you currently smoke and need help to quit. E-cigarettes or smokeless tobacco still contain nicotine. Talk to your healthcare provider before you use these products.
Call your local emergency number (911 in the US) if:
- You have chest pain that may be worse when you take a deep breath or cough. You may cough up blood.
- You have a sudden cold sweat, especially with chest discomfort or trouble breathing.
- You feel very lightheaded or dizzy, especially with chest discomfort or trouble breathing.
- You have pain or discomfort in your back, neck, jaw, abdomen, or one or both of your arms.
- You have a severe headache or vision loss.
- You have weakness in an arm or leg.
- You are confused or have difficulty speaking.
- You suddenly have trouble breathing.
When should I call my doctor?
- You gain weight for no known reason.
- You feel weak or more tired than usual.
- You have increased swelling in your legs, ankles, feet, or abdomen.
- Your symptoms return or get worse.
- You feel like your heart is beating faster than normal, fluttering, or jumping in your chest.
- You urinate less than usual or not at all.
- You have questions or concerns about your condition or care.
Care AgreementYou have the right to help plan your care. Learn about your health condition and how it may be treated. Discuss treatment options with your healthcare providers to decide what care you want to receive. You always have the right to refuse treatment. The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.
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