Mavacamten User Reviews & Ratings

• Lisa
• Taken for 1 to 2 years
• October 10, 2023

Camzyos (mavacamten) for Hypertrophic Cardiomyopathy "Camzyos has changed my life. I've gone from having swollen legs all my life to now being able to see my ankles. I've gone from not being able to walk upstairs to being able to walk the stairs without losing my breath. It is a total game changer, and I thank God every day that I have come across this medication."

• louise
• Taken for 6 months to 1 year
• April 24, 2024

Camzyos (mavacamten) for Hypertrophic Cardiomyopathy "I cannot believe the change in my life. I used to walk from pillar to post in order to catch my breath. Now I’m able to walk normally…no need for pause. I’m so grateful for the drug. No negatives. I can breathe normally."

• JoMaxOx
• Taken for 1 to 6 months
• July 26, 2023

For Hypertrophic Cardiomyopathy "Mavacamten worked great on my HOCM symptoms. I took 5 mg for 3 months. It stopped the nightly heart pain and SOB. I was able to walk stairs and hills again and was looking forward to getting back into more activities. I was just about to start 10 mg to hopefully get more of a reduction in my symptoms. Unfortunately, I developed some type of migraine from the occipital nerves that was unending, so I stopped taking mavacamten. Two weeks after stopping the medication, the headaches stopped. But now my HOCM symptoms have returned. It was a trade-off, but I can't live with the head pain, nausea, and vomiting every few days. I hope it works for others. It seemed like a miracle drug at first."

• Deborah...
• Taken for less than 1 month
• December 28, 2023

Camzyos (mavacamten) "I have been taking Camzyos for one month and my gradient has gone from 20 to 19 on the 5 mg. I am going to start the 2.5 mg on Saturday. I have had no problems with the medication so far. I have written down my BP and any symptoms that I have had over the last 30 days. I did have one high BP when I went to get an ECHO on 12/27/23, but I believe it was due to my White Coat Syndrome. The hospital completed an EKG and Echo on 12/27. I am fine on 12/28/23 with BP returning to normal at 134/79 with a pulse rate of 62 and 97% Oxygen."

• manue...
• Taken for less than 1 month
• April 9, 2024

For Hypertrophic Cardiomyopathy "Next day after I took my first capsule of 5 mg Camzyos, I started to feel the difference of being able to have less chest pressure. Now on the 10th day on Camzyos, I can finally sleep on a bed on my left side for a few minutes before I get pain in my chest. I will continue this treatment that, as of now, is working very well with very light side effects (very light dizziness). Thank God for having this medicine covered by my insurance."