Hizentra for Primary Immunodeficiency Syndrome User Reviews (Page 2)
Reviews for Hizentra
- Jos...
- Taken for 6 months to 1 year
- July 20, 2025
"Overall, I have had the desired results. Since beginning treatment, I have had no further issues of unresolved infection. Any abrasions or illnesses have resolved themselves without the use of antibiotics. The side effects, however, have seemed to slowly increase in numbers and severity. My wife believes I am exaggerating them, but I am not! The number of headaches has increased, but not the severity. The tinnitus has dramatically increased in frequency and intensity. Bouts of recurring nausea increased. Extreme fatigue sometimes for days. Terrible itching and irritation at times. Bloating. Shortness of breath and dizziness at times. Palpitations and racing sensations. Blurry eyes very often. Occasional confusion. And multiple urination issues with back pain."
- BPR...
- Taken for 6 months to 1 year
- January 5, 2013
"The immune system is where it should be for the first time in 5 years! Actually had to reduce Hizentra by 20% after a 6-month blood check!"
- blu...
- Taken for 5 to 10 years
- February 25, 2025
"Magic medicine. Very few infections. Taken since 2018. Occasionally rash. Infuse 11g weekly towards bedtime & go to sleep afterwards."
- Ano...
- March 12, 2011
"Once you find a good site, it is relatively painless. Almost no severe reactions yet. I can't handle IVIG very well, so this is it for me."
- Ris...
- Taken for 1 to 2 years
- January 27, 2025
"I have IMNM, and this medication is crucial to my care plan. Easy to administer SCIG, and I have not had any serious side effects. My dosage is 35 g once every week."
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"I have been on Hizentra for over 10 years now with no side effects. I have an immune disease problem causing me to react to most prescribed medications. Doctors had great trouble finding medications for me until I was given Hizentra. I frequently had colds, flu, and coughing, thus finding it very difficult to breathe. However, Hizentra was a godsend for me, as I now manage to deal with an occasional cold very easily. Where I used to take months to rid myself of lung infections, coughs, flu, etc., I now go through winter without too much hassle. It took over 60 years for me to be able to breathe normally during winter. I only wish that I had been able to take Hizentra when I was a child. I do not find it difficult to give myself a weekly Hizentra infusion. However, unfortunately, the top half of my left lung has been considerably damaged due to the continuous infections, but now by taking Hizentra, I manage to breathe a lot easier and I haven't had continuous problems."