Hi everyone, I've been put on topamax to hopefully assist with weight loss as am obese and am really struggling with food. I've just titrated up to 75mg (25 in morning and 50 at night) and have so far found no changes in appetite and no weight loss. I realise weight loss is only a possible side effect, but I was so hopeful about this drug helping me! My question is, have people found that appetite suppression starts at a certain dose? Or do u think its too early? OR am I just one of those for whom topamax isn't working? Thankyou :)
When did you start taking this? I have been on Topamax now for 2 months - I did not notice any change in appetite but just started dropping weight - a lot ! I have lost 12 pounds now - I still eat the same - no change in appetite - in fact I am eating more - people are starting to ask me what I am doing - clothes are getting loose - its amazing and a bit scary - I was prescribed it for migraines - BTW I am not very much over weight - only about 20 pounds ...
I am also taking topamax for migraine, an it's only been a month. 50mg in the morning an 50mg at night. The side effects that I've been going though is not really worth the weight lost. Everything that use to taste good now tastes awful like soda, ice cream, even beer, certain foods I have lost interest in eating. Thing just don't taste the same. The other side effects is my concentration, I can't think straight , my thoughts is just not clear I sit there forgetting things or I get lost throughout the day it's like I'm a zombie. My daily chores don't get done it's like it's harder to complete. I was 200lbs before i started taking topamax, I am now 185.lbs so I've lost 15 pounds so far. the good thing about this medicine is that my migraines is gone no more pain.
the way I see that this meds work is by changing the way you taste things, like sweets,or your favorite foods, things that you crave, including soda, once you stop having all the sweet stuff usually you will lose weight. it doesn't stop you from craving it, you just don't enjoy the way it taste any more so you're not going to want to eat it. That's all. And that how you loss the weight with the help of the med. I haven't drank a beer in over 3 weeks not because I wanted to stop drinking it's because it tastes really awful due the meds, so that should tell you something, not having my migraines are more important to me then having a beer . I hope this helps. One more thing my appetite has decrease, not eating as much
I take topmax for epilepsy. When I started taking this I weighed 180 pounds because of the other seizure medication they had me on. Once i started taking it I had large curve in appetite . I lost 50. Lbs. I gained it back while having my daughter . Im on it now and since having her I've lost almost all the weight . I take 125mg . twice daily.
I think you need to keep at it, maybe increase the dose a bit more. Weight loss is meant to happen at between 100-200 mg, so make sure you're in that range. After that, I would stick with it for at least one month.
When I was on it I lost a huge amount of weight and I actually don't remember having less appetite. What did happen was that if I did any kind of walking before my body was done digesting (so 2-3 hours) my belly would hurt BAD. Eventually this made me afraid of eating and I would only take tiny little snacks if I knew I was going to be walking. But as far as appetite went, if I wasn't walking I would actually eat WORSE. Burgers, pasta, chocolate, you name it... and I still lost weight faster than I ever have. I eventually had to stop taking it because my BMI dropped so much I was underweight (This took 2 months by the way)
Stay strong sister!
First of all you are on a very low dose - my doctor had me on 100 mg in the beginning and for headaches (my weight was 130) and I am not at all obese. I was having side effects of sleepiness and fatigue and word finding difficulties and he changed me to 50 mg a day but the weight just dropped off immediately - I lost 10 pounds without any loss of appetite or reduction of food - I lost fat also and now I am trying to regain muscle tone... I
I want to go back on it since I am trying to quit grains and sugar all together. I took topamax 200mg at night for nerve pain in 2005 from a back injury. At that time I was lucky enough to lose 45lbs between April and August of that year.That amounted to 3 dress sizes and 4 bra band sizes. Topamax did not control appetite for me but it took away my sugar and carb cravings. I didn't know then but I have thyroid antibodies. I didn't have side effects because I took mine as one dose before bed. I went back on it a few years ago with a different doc. My ob doc researched it and put me on it off label for weight loss but the dose was only 50mg at night and 50mg in the morning. It didn't work the second time. I think that the nightly larger dose made a difference. I couldn't tolerate taking it in the morning because of the sleepiness, brain fog effects. At night it helped me sleep because I have insomnia, but was still alert to be an ICU nurse during the day.
I have been taking topamax 50mg for about a week now and have gain 20lbs which put me at obese I seen my dr. Today and she prescribed me a higher dose which is 200mg once a day but my question is does this really work I've tried everything and can't seem to get rid of my belly area :(
I was just put on Topamax for seziures. I started off as a low dose of 15mg for 1 wk then 25mg for another and so on till I get to 100 mg a day. I an exstreamly tired, having a hard time pronouncing certain certain words, remembering things and a weight gain. What I want to know is this common? What are the effects of alcohol on this medication? Any information will be helpful. Thank you
I am on topamax and am neither gaining weight or losing it. 150mg twice daily. I think this may be due to the other meds I am taking. I take topamax for epilepsy. I took it 10 years ago and I can't remember the dose they had me on - I know it was high- but I experienced significant weight loss. I went from a size 8 in women's to a size 16 in little girls. I couldn't find clothes to fit me. I weighed 95 pounds - I looked sick - and couldn't gain the weight back. I tried everything. I ate all the time, worked out, even weight gain shakes, and would just stand in the mirror and cry. I just kept losing weight. Looking too thin is definitely worse than having a little meat on your bones. it controlled the seizures, but not to the point of just withering away. It wasn't worth it to me.
Even on 100mg for neck pain and numbness in my arms and hands, it zapped my appetite!! I had lost a lot of weight before I started taking it, but needed to lose another 40 lbs to get to goal. I lost an average of 10lbs a months for 3 months. That's awesome considering I'm 53, female and in full blown menopause! I'd also already lost 115lbs and had just hit a wall and hadn't lost for a year. Now I'm 14 pounds from my ideal weight and where my rheumatologist wants me. I'm not sure what to do now. I hate the language disturbances. It's the only real side effect and they said it would go away in about 2 weeks. My doc says it may take a month. It's been 6 months and I'm no better with that side effect!! I worry it may become permanent.
Hi I have been taking topamax for around 13 years for seizure control which works really well. I take 300mg a day. I have not lost any weight( wish I had). I do get some side effects of changes in taste, pins and niddles in my face and poor concentration but overall this has not caused me a problem long term. I recently gave birth to my first child whilst taking tapiramate all the way through my pregnancy and Have had no problems. I think it varies from person to person which side effects you get, everyone wants the weight loss but unfortunately you may end up with something far less desirable.
- Topamax Information for Consumers
- Topamax Information for Healthcare Professionals (includes dosage details)
- Side Effects of Topamax (detailed)
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 30 Jun 2009 • 21 answers
Posted 2 Sep 2009 • 1 answer
Posted 3 Oct 2012 • 2 answers
Posted 24 May 2013 • 1 answer
Posted 29 Jul 2015 • 5 answers