I am currently on Soma 350mg 3x daily for my Fibromyalgia with mild relief if I am having a mild day that is. Has anyone out there with Fibromyalgia ever taken anything but narcotics for your Fibromyalgia and have it work more than 20%? I cannot deal with the pain much more my muscles in my legs and arms hurt sooooo much and it hurts to function. Does anyone know if Soma can be taken at higher or more frequent doses? Is there a better muscle pill? Help please I am suffering here and need some support. Most of you know I don't ask for support until it is really bad and it is so please if anyone has any suggestions for me whether it is certain meds or even certain exercises to help I welcome any suggestions. Thank you all, love marjorie zych
Soma for Fibromyalgia?
Question posted by marjorie zych on 10 Nov 2010
Last updated on 14 August 2022
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35 Answers Page 2
I am not sure but hope so.
soma is about the best but then again everyone is different i tell you one that was very helpful for me they dont prescribe it alot but its called zanaflex i had never heard of it,but after taking lyrica with little benifit doc tried this and it was quite effective although remeber everyone is different,also valium is a very effective muscle relaxer docs dont prescribe it much for that but if you look it up it even says for anxiety and also muscle relaxent, i currently take soma same as you.i am unable to take narcotics because opiate addiction although i do take suboxone and it helps my pain also Klonopin it relaxws my muscles.you never no if you havve not tried lyrica alot of people say it works.i wish you the best.james
I had two major bouts with Fibro, ten years apart... yes it can go in remission. The last bout with Fibro was about a year ago, I started taking Ambien CR at night for sleep, within 3 months my Fibro pain stopped... completely.
I stopped Ambien about 3 months ago and now take Motrin for normal aches and pains.
I highly suggest Ambien CR, you will sleep better and be off narcotic pain medications too,
I currently suffer from muscle spasms and take 350 mg Soma as well. I used to take 3x day but I would get tired/ drowsy, after about a week though this tiredness subsided. Once I wasn't tired I noticed my back was still extremely tense at times but when I took two at once I felt more relief; however I couldn't do that during the day or I'd fall asleep. What I do now is take a caffeine pill from the grocery store in the morning, after the soma and an anti-inflammation drug, about when I start to feel tired. That way I have energy through the day and then when it's time to sleep the caffeine is gone and I am ready.
I hope my experience helps.
I have been taking several narcotics for pain and anxiety due to my severe fibro. But I have also been working with a fibro specialist who had recommended nitro glycerin because it increases the blood flow which people like us who suffer from this have poor circulation which causes more pain. He had also suggested taking several supplements to build up the immune system. Its hard for me to get up every day and think about all the pain I will endure, but I know I will get better. I have also included yoga or some form of excersize to strengthen the muscles. Believe me the pain pills and muscle relaxers will only make it worse for you to get through this in the long run. Remember they only take three pain away for as long as they last. I take a methadone every morning or I can't get out of bed. I'm trying to get off the narcotics as we speak. I pray that you get through your pain. Good luck to you.
I have been through most of the meds mentioned here and no combination will stop all the pain. I went to a pain clinic about 5 years ago and started receiving spinal injections for the neck and shoulder pain... I take lortab in the morning and evening and xanax for sleep. I also purchased a select comfort mattress and had to play with the control to find the right number but it helps A LOT. As I said nothing will stop all the pain but sometimes less is better and I agree that to keep moving is good. I am 68 and do light housework about twice a week and make sure I walk to the mail box (about half a block) every day. Hot baths to just soak in help too and I think anyone who has a hot tub should try to use it every day... I know I would. I know everyone is different but if you live anywhere close to one of the pain clinics please go and talk to them... you will find that most of the doctors are really smypathetic and will work with you. I have lived in two different locations since I have used them and they are much alike.
I bought a vibrating masjine with 2 seperare footplates or a passife exercise masjine that you could stand on. After 6 weeks I experienced a huge pain reliefing differece. It changed my life. There are more tesamonies like mine, so get a masjine and start shakeing.
I'm new on here marjory but I suffer from chronic back pain. You can up the dose of soma but keep in mind it is a muscle relaxer. I heard of a woman that was taking quite a bit around here in my neck of the woods and she took too much at one time and her heart just stopped. Because your heart is a muscle. I take a Flexeril every now and then. You don't have to take as many as somas. I also at times prop my legs up in position that is comfortable. Matresses make differance too. Also ask a specialist about the way you pick things up. Some showed me ways of doing things or picking up things differently that will cause less strain on your back. It took awhile to get used too, but it worked. My trades are custom brick, block, and stone masonry. Also finding fugitives. So I was like you with my back " lol. Hope this helps.
Welcome. Thanks for the support and advice. I am now on Cymbalta for the fibromyalgia and it seems to help out a lot except for the weight gain. I have tried Flexeril and tend to like it better. Good luck getting the fugitives someone needs to. Thanks again, marjorie zych
A friend of mine is on Lyrica. It seems to work well for his condition.
Unfortunately Lyrica made me very suicidal which unfortunately is one of the side effect warnings. I am now on Cymbalta which seems to have helped a lot. Thanks for the suggestion though. marjorie zych
There is a medication called Savella, you start off with small doses and work your way up kinda like the way you do when you take a steroid pack.And there is another medicine called Lyrica, they are both marketed to people with fibromyalgia. Anyway I hope this information can help, good luck
Unfortunately I tried Lyrica and it made me suicidal and I have not tried the Savella because it is so close to Lyrica I am afraid of the same reaction but I am now on Cymbalta 120mg (2 60mg capsules) daily and I am doing great finally. Thanks for the info though I appreciate all the feedback. marjorie zych
Marjorie, i think during my last 5 yrs, there isnt a pill i havent tried. im taking soma , percocet, methadone, 75mcg fentanyl every 48 hrs . Does it help? Sometimes... its so frustrating! I've tried lyrical & cymbalta together... tried 3900 mg neurontin, 150 mg amitrytiline ... zanaflex, Flexeril, baclofen, Robaxin, opana , morpine, very high doses of steroids, and more I know I've forgotten. If I stand to cook a.meal for 30 mins, I break into tears with neck, shoulder pain. my husband is about done... i dont blame him. ive tried triggdr point injections , but due to my hypersensitivity, i get golf ball size lumps in the muscle around injection site. i dread driving too..going go the dr every month is hell..but i cant ask mmy so called friends, yhey have stolen my meds, begged etc. so now i lie about what i take so they arent on my doorstep . I wish I could find my miracle combination. I have no insurance.,so rt now im suffering fentanyl withdrawls . let me tell u, its horrible. I guess u got off topic. I'm sorry there are so many others suffering.
Hi dee3850,
You sure have run the gambit of meds with your fibro!! Hope you find something that works.
I do not get why your hubby is not more understanding!!! If he could live your pain for an hour, he would understand. Not that I'd wish it on anyone, but people that do not understand the horrible pain of fibro SHOULD have to walk a mile in our shoes!
Best wishes to you,
sweetlemon
Wow Dee3850! You just wrote my story for me! Everything started for me back in the summer of 2006. It started as low back pain and after several different surgeries (one spinal fusion at L5/S1, neurostimulator implant, tumor excision, and several epidurals) and years later the pain has developed all over the body, except for the arms really, but everything from neck and shoulders down the back to buttocks, hips, legs, and feet are always in pain. Like you, I've also had trigger point injections that did not help (in fact, he accidentally punctured the pleura of my right lung and I ended up in the hospital with a chest tube for 3 days), but I have found the best pain relief from 100mcg Fentanyl patches every 48 hours, 4 x 350mg of Soma per day, and 4 x 500mg Vicodin per day. It doesn't take away ALL the pain, but I am able to function well enough with that combination of meds to live as normal a life as possible.
I hope you have found a good working combination of meds by now. I've resigned myself to the fact that I'll probably have to be on all these pain meds for the rest of my life because I just cannot live a "normal" life without them. What I think most unsupportive people don't understand about severe chronic pain is that these pain meds actually HELP us live a more NORMAL life. Without the meds I'd be stuck in my bed for the rest of my life just wasting away and I'm only 27, almost 28! They don't understand that just standing up to cook dinner is painful. We have no energy. We're depressed because we're not living a full life. You need someone who is more understanding and lucky for me I have an amazing best friend/fiance who is the most helpful and caring person I've ever known. There is a very long story I have about a couple and she is dying from cancer, but never told her husband who was having an affair and at the end of the story he realizes he stilled loved his wife (which he did not know she had cancer, he just thought she was getting old I suppose), but the story is long and a great read and I would suggest both you and your husband read it together. He might just realize you're still everything to him. Hope you're doing well!
Try acupressure or acupuncture. Its working for me.
I was told I had FM in 2004. They gave me flexeril and robaxin (simular to soma) It did help me sleep but kept me graugy during the day. Over the years I stopped taking any drug. If I had really bad pain in my back I took Alieve and it really helped. If my neck were really bad, I took tension headache excederine. Works great. I have come to the conclusion that there is way too much fybromialgia being diagnosed in people. I had a hystorectomy in 1999. everything changed after that. I keep active and moving and it is the best medicine for what they say is FM. If you have pain that extreme, you should make sure there is not an underlying problem causing it before accepting it's FM. A lot of my pain I have is what I believe to be old injuries in life that are starting to bother me in older age. I am only 50 but I suffer alot. I noticed if I didn't take hormones, I got alot worse. So I have to fight the system to get hormones so I can stay active.
Not sure if this is helpful but I here about so many people with FM and they don't move around. The more I stay still or try to stay in bed the worse my pain gets. You need to get up and move. Just walking or anything. Movement is the best medicine for me. I do have knee injuries and shoulder injuries that restrict me from doing things but I work around it.
Good luck and please be careful taking all those drugs. They are habit forming and can cause you pain when you try to stop.
Thank you kjboopy, I am now on Cymbalta and it has worked wonders with the pain, not so much for the depression I have but it does work for the pain and does allow me to keep moving. Moving is the best thing for Fibro, it is hard to keep moving on some days but with Fibromyalgia you have too or you just stiffen up and that is worse. I found the muscle relaxers have done nothing much I went to Robaxin from the Soma but not much help until my doctor tried the Cymbalta. Fibro is a common diagnoses lately with the doctors but I am being evaluated for MS as well as a stroke possibility. Thanks for your concern it means alot. marjorie zych
I am tring to find any releif offered also.I tried shots,flexirl but only 2xdaily,Zanaflex,soma and robaxin the last of which I developed allergic reactions to due to a relationship the said with all my other allergies to aspirin,nsids,nuroten,naproxen and darevaset.I am in so much pain I don't sleep I can't function I'm on blood pressure meds ,luvox ,respidal, high doses Xanax ,Percocet and prazosin all of which are supossed to help or at least help put me to sleep yet i hurt so bad and get so stiff i can't move but i not only feel like cring but do at times my back and hurt so if i try to lay down.Any avise would help sorry I can't
I am now on Cymbalta and that seems to be helping some maybe you can try that if you haven't already good luck, hope you get some relief soon, marjorie zych
I also take Flexeril and it comes in a generic form(cyclobenzaprine) so I can get it in my local wal-mart or k-mart as well as most stores that offer $9.99 for 90 day prescriptions. I also take Tramadol 3 x a day and Klonopin(clonazepam).
I've very recently been told that folic Acid helps alot with many FM symptoms. It's a B vitamin and I was never had any bloodtest for it before last week. My level was low so my doc ordered it prescription strength-1mg. OTC folic acid is measured in MCG(micrograms) so I guess I need a larger dose. I just started taking it so I can only speak from the info I found online. All the meds that are prescribed for FM might work well for some and not others. It's really a matter of trial and error. But, give them a little time. I am highly functioning and I think it's because of my meds.I hope all works out for you. And make sure you get regular blood tests. WATCH YOUR LIVER ENZYMES!!!
Thanks bonniecna, I have tried Flexeril and Tramadol. Flexeril helps some but wears off quick just like the Soma. I may ask about the Vitamin B (Folic Acid) I have never had testing for Vitamin B deficiency but I guess it is worth a shot. My doctor also told me that when your Vitamin D in your blood is low then you can feel worse with muscle issues as well just thought I would pass that on as well to you folks. Thanks all my dear friends, marjorie zych
Marjorie,
Rather than take more or different drugs, try something easier and safer to your body. Take a hot bath with epsom salts. This will relax your muscles and sooth them and if you get the ones with lavender in it, you will also relax your mind. Fibro gets aggravated with stress so you also need to destress. Read a relaxing book. Listen to soothing music.
Meds are not always the answer.
Just to let you know, I do take SOMA, norco for flare ups, tramadol, klonopin for restless legs, and I have a small hottub in the garage I soak in on bad days.
At night I take melatonin, tryptophan, and 5HTP. They help my sleep. Sometimes I will take trazodone to help me sleep through the night.
Thanks geekygranny,
I appreciate the reassurance for the no-drug routine also. I have a hard time getting in and out of the tub but sometimes long hot showers do help when I am not too severely aching. Thanks again for the reminder there is other ways besides meds, marjorie zych
I too am prescribed Soma as you are. I have RSD; not Fibro so my pain is mostly nerve pain related. I do have spasms in my legs at night mainly and have been on this same dose of Soma for a few years now.
Soma is dangerous. In only the past couple of years have I seen doctors not wanting to prescribe this for any long term use. My doctor is concerned about it but since I'm not having any respiratory issues with the other meds I take for now she is okay with it but said she may want to change it so I think it wouldn't be a great idea to be on more a day than you are now.
There is a new medication that helped my Aunt who has Fibro a lot. Lyrica made her sick and gain weight but Savella; which is the same type of medication only helped her pain and she is on a muscle relaxer also but not Soma.
The only way most insurance companies will pay for this as there is no generic is to write a special code down on the script. You may want to ask your doctor about a combo of meds vs just taking a muscle relaxer.
Savella is not a narcotic at all.
In pain we are all different in how we respond to medications and the pain we have. I highly recommend that you speak with your doctor about this and don't be offended if they won't raise your dose of Soma since it's now considered very dangerous long term.
Unfortunately with RSD and how long I've had it and how it's spread, I have to take a long acting opiate, a breakthrough pain med, Soma, and Xanax for anxiety along with an anti depressant. To any doctor the combo of meds I'm on is considered very dangerous so I am extremely careful never taking certain meds with Soma.
I hope this helps and guides you to have a discussion with your doctor over the possibility of choices out there to treat Fibro.
Thanks alot this has helped me a great deal and I will print it out to talk to the doctor about. Thanks again for the help my dear, marjorie zych
Skelaxin is another muscle relaxant out there but is known to not make you as sleepy as most muscle relaxants. One more to ask the doctors about. At this rate you may be in his/her office for about 3 hours. He/she is going to be asking you where you are getting all this wonderful information. You can yes smile and say that you get by with a little help from my friends!!! <3 Valerie
be careful of savella .i was on it and it controlled fibro pain but ran my blood pressure sky high and mine runs very low !
Thanks, I am on 6 blood pressure and heart meds to keep my rates down so I don't want them back up again. I will check on how safe it is for me based on that risk. Thanks again, marjorie zych
vdudley, yes I probably be in there about 3 hours at this rate thanks to my wonderful friends here but I can't take this terrible pain and muscle cramping and weakness. I really thank you all for your support and help with the suggestions. My doctor will be busy when I see her, thanks again marjorie zych
Related topics
soma, muscle spasm, pain, fibromyalgia, muscle pain, neuralgia, nocturnal leg cramps
Further information
- Soma uses and safety info
- Soma prescribing info & package insert (for Health Professionals)
- Side effects of Soma (detailed)
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