Since starting Arimidex 5 months ago, I have developed arthritis in my left knee which is rapidly becoming a problem. Anyone else experience this?
Arimidex - anyone else developed arthritis while taking this?
Question posted by Chapala on 2 Aug 2011
Last updated on 14 December 2019 by Cassandra19
I am to start Arimidex today following breast cancer. I am 58 with no history of bone or arthritic pain, muscle or joint pain, pain anywhere. I do not have high blood pressure, cholesterol or blood sugar and take no other meds except Vitamin D now. I will blame Arimidex squarely if I have side effects.
I was confidently told by the pharmacist today the drug is “well tolerated” and I replied “says who?” - the oncologists and researchers are boasting over this wonder drug while minimising the serious side effects it causes women and the voices of the patients affected. This is evidenced further by the high drop out rate ~30%. How bad is this drug if women will risk cancer recurrence over life with anastrozole?
And now the talk is the plan to give it to all women deemed “at risk” of BC not just BRCA gene ( over 50 and over weight etc) while the claims of low or no side effects continue. A class action is needed unless there is honesty and accurate information disclosed about the nature and incidence of the side effects.
I hope I am wrong and never happier to be proven wrong as I commence Arimidex tomorrow - I’ll check in with a report of how I’m going. Lived experience matters.
Yes, I am now suspected to have rheumatoid arthritis after 2years after breast cancer and quitting Anastrozole after taking it for almost a year and a half, while all the time having terrible side effects... I have diagnosed myself from the many symptoms because the medical field just denies and lies and makes you think you are a crazy person and insists that if you take the drug for a few more years, side effects will even out... WRONG... glad to find you people cause I did feel alone and I too wonder why there is no recorded Class Action anywhere... I had to jump thru hoops to get a referral to see a Rheumatolagist to get some kind of program to help my pain... taking CBD Oil and Naproxen just doesn't do it... they sent me to sports therapy for 2 months and kept asking how did I hurt myself... I am 72 and mildly active but not in sports... haha...
they refuse to acknowledge side effects from Cancer Drugs and learn how to deal with people who are suffering... a med student suggested that I may have a pinched nerve in my back and xray's proved them wrong... I have pain in both shoulders at the same time and it travelled down to both hands and even in my hips... but being my age, I have never suffered with any regular arthritis but the docs sure do mention the prospect of aging and wear and tear... but I told them I woke up one day 2 months ago feeling like I was in a car accident... so much for the wear and tear lie, cause Rheumatoid Arthritis is not caused by age or wear and tear... Big Pharma must love this money-maker because they make it really hard for us... I hope my appointment in 2 weeks helps... I had 2 Cancers and surgeries within the same month and never suffered like this... if only extreme side effects were believed and acknowledged cause really, you can't make this stuff up... thanks for listening...
I have been taking arimidex for 2 and1/2 years and now have arthritis in my left knee. It's very painful but not bad enough to have knee replacement surgery. I have already had knee replacement surgery on my right knee.
Hi I am experiencing a lot of pain from arimidex. First it was my hands, then went away, feet then went away but now my hips. I can barely walk and yesterday been in #8 pain. I feel like I got out surgery. I think I need percaset like when I had radiation before. I'm not sure if I will go on this again. I tried evista and I kept getting UTI infections I almost just want to quit it all. I don't want to suffer as I am 53 yrs old.
I have been on Arimidex for 4 and 1/2 years and I just had arthroscopy surgery on my right knee today. The doctor said I have arthritis so bad I will probably need a knee replacement. Throughout my use, I had a lot of aches and pains but discounted it due to the physical job I have. I will stop taking this bad drug immediately. I had my breast cancer at age 57 and am now 2 months shy of 62.
I totally support your theory... I took Arimidex for only 18 months and then was diagnosed with arthritis in my lower back. It is horrible.
Hello Chapala. To tell you the truth at 62 years old it's hard to know whether or not the Arimidex is causing the arthritis but I will say this... I have noticed that my knees especially ache at night . I have used several products, homeopathic and traditional, and have found that the products containing lidocaine provided the best relief for me . Good luck on your journey and hope this provides you with some relief .
I had breast cancer in 2014 and it was advanced to the point I had 2 surgeries, full CAT chemo and radiation. I didn't want to take the a Arimidex but the Dr. really pushed it and I was worried. The thought of having cancer again was too scary. After taking Arimidex for 3 1/2 years i stopped. I decided I would rather take a chance than live like a crippled 80 or 90 year old. I thought when I stopped the joint pain would go away. No it's actually arthritis, I can hardly walk. It's in my toes. I also believe I have some on my hips. I was 60 when I got BC and had no other issues with my health. I am thankful to be alive and I'm ok with the surgery, chemo and radiation side effects. I am not ok with trading mobility for fear of cancer returning.
I am sorry to see so many others have arthritis from this drug as well.
Hi Chapala, Severe joint pain is the main reason I stopped taking Arimidex after 1 1/2 years. The pain interrupted sleep as well as inhibited daily activity. I literally felt like an old, old woman and at 53, I chose quality of life over the risk of recurrence. Within two weeks of stopping taking this drug, I felt normal again! I feel it is an individual decision. Many women stick it out regardless of the many side affects but I could not justify the suffering. Good luck to you!
Yes! I finished the hardcore breast cancer chemo regimen and started Herceptin in May/June 2011 about the same time i started taking Arimidex. I complained of muscle and joint pain from the beginning (possibly caused by the other chemo meds). At one point, i fell just from muscle weakness/knee problems and the doctor insisted i use a cane. I finished one year of Herceptin in May 2012 and the knee pain was so bad i went into a regional orthopedic hospital (i live in China) where i received Chinese Traditional Medicine and Alternative Treatments for a month (and i walked very little). A bone scan done in the States in Aug confirmed inflammation greatly reduced in knees but not other hot spots. Six weeks of driving in the States helped even more. Now i'm back in China walking a mile or three several days a week and i'm getting much worse again.
I've been using Arimidex for almost 2 years now. I do experience swollen finger joints, stiff and sore hips, back and ankles in the mornings, or when I've been sitting still for long periods, but as soon as I get moving, and loosten up those joints it does get better and subside. Gentle excercise is good for it. Sometimes when my fingers/joints are very sore, I take Arcoxia (an anti-inflammatory) they prescribed. For me taking Arimidex and dealing with the side effects outweighs the risk of not taking it, as it reduces the recurrence risk so much. Hope this helps :-)
Is it actually arthritis or just severe
joint pain? Isn’t arthritis the erosion
Arimidex and Aromasin are notorious for
causing some degree of joint pain. I even
quit my Arimidex for a over month once
because of it, but then I figured that BC
is even worse.
I was give various pain relief Rx's, but
found that taking 800mg ibuprofen worked
the best for me.
I also got an inexpensive knee brace at
Walyworld and that helped a lot.
For this last 3 years on Arimidex, I do
not seem to have any ill effects. Guess
my body has finally adopted to this
I'm 68 so have some aches and pains once
and a while, but nothing awful and nothing
Try to not take too many Rx’s because of
all of the various side effects.
I personally recommend good vitamins
and a positive outlook.
- Arimidex uses and safety info
- Arimidex information for Healthcare Professionals (includes dosage details)
- Side effects of Arimidex (detailed)
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