... I have it in my vaginal area, in the back of my legs, major burning and stinging sensations, down into my legs and feet, I have it in my arms and in my hands and even up into my face and ears. I itch all over, and I have had a few breakouts which always vary. I had a few in my vaginal area and my buttocks, some on my feet, one on my chest and some on my head and face. They always itch and sting, never burn. I have tingling all over my body and it feels like I have a parasite or something running throughout me, even in my chest sometimes. I have had several times I got chest pains and I have ended up at the ER a few times, only to be told it is nothing. I am not at all a hysterical person, and up until December of 2011 when this all started, I was a very healthy individual. I get all the sensations of tingling, pins and needles, burning, itching and crawling sensations and my Dr and specialist I have seen are baffled. I constantly ask if this is shingles and my Dr says no, that it would only be on one side of my body. But, is it possible to have systemic shingles, all throughout your body with little to no rash at all. Please help me. If anyone else has experienced this and found out they did not have shingles but did find out what they had, would you please share it with me. I have had to go on TDI from my job, because I can not sit for a long period of time and this is ruining my life. I want to add, since this has been going on for over a year, I have had tons of blood tests done and all my blood work looks very good. I am now allergic to foods I was neve allergic to, but it does not appear allergies cause any neuralgia, but if you have neuralgia, it can make your allergies worse. I have been tested for HSV1 and 2 four times over a 15 month period and these always come back negative with the values very low. If you have shingles can you have a specific test done to get a positive/negative test reaction? Is it possible to have one done with spinal fluid? I really need some help and assistance.
Shingles only erupts along a nerve path.it would not wrap around your ribs for example. It only erupts on one side as your dr said. I don't doubt you've got something major going on, I doubt is shingles.. I've never seen spinal fluid tested but I suppose it could be. Shingles is so specific in placement and behavior that you just need to look at it and you know what you are seeing.
After WW II, in Los Angeles, many of the servicemen that returned from the war zones seemed to have shingles. It was just about an epidemic. It may not have been the shingles, but it was the rash, blisters, and itching. It was much like you describe. If you study the Battle of Midway, it's in the records that Admiral Bull Halsey did have shingles all over his body, and he was hospitalized for about 4-5 weeks. I think that stress may have been a factor for this. So, I'm asking if you've been going through an exceptional stressful time? If so, perhaps an medication for anxiety might help. Also these people were run down physically-so are you taking any vitamins to help your body? My female coonhound is allergic to fabric softener and breaks out.
I know that she's a dog, but who tests for Bounce dryer sheets? SO I WOULD SUGGEST A change in washing your clothes, reduce chemicals around the house. Oatmeal baths help reduce the itching. I broke out- and the doctors thought that I had the shingles. It went away in warm weather. Came back next winter. My doctor just read that goose down jackets were treated in formaldehyde and it made a shingles-like reaction. I went home and washed all of my jackets and the new jacket-problem solved. I've had the female itch a few times. I thought that I was going nuts from it. I can't imagine how you are surviving. Baking soda can be used with hot water to wash clothes and bedding. So can Boraxo-which is a natural mineral-Maybe wash your clothes and then run it through the washer again without any laundry soap? Something is going on with your immune system and you sound like soldiers and Marines that fought in the Pacific and Korea. Good luck and I hope that you find a solution.
I also suffer from painful neuropathy throughout my body. Im not sure if what I'm going thru is like what you are, but for the last 2yrs I've had a skin infection that I picked up during one of my many hospitalizations. Its almost like acne covering my chest, back, arms, neck and face. Occasionally it spreads to my legs also. It can be very irritating and itchy at times. This infection consists of acne like bumps that are quite painful and when they burst they end up turning into yellowish green scabs that look like infected cigar Burns. I've seen 2 dermatologists, an infectious desease specialist, and my primary care Dr multiple times. It was originally diagnosed as mrsa and now am being told its a staph infection. Complicated by ingrown hairs. I've been on clinsamycin lotion with no luck treating it and was taking baths with a 1/2 cup of bleach which didn't do much not to mention multiple prescription antibiotics.
So far out of the Dr's I've seen, its been the infectious deseas Dr that has helped the most with it. I would recommend seeing one if you haven't already. Soon I will start a new treatment to see if it helps. It a light treatment and I don't know excatly what in envolves. It was explained to me basically sitting in a tanning bed with special UV lights, not the harmful tanning ones.
Have you been tested for Lyme Disease? What you describe is similar to when I had it. People who've had it for many years undiagnosed, or have 3 bands on the Western Blot test rather than 5 or such nonsense (how can you have the 2 bands that are specific to Lyme Disease and not have Lyme Disease!!) can have body-wide issues. If you do test positive, I suggest you search for a Lyme-literate doctor. There's a lot of controversy regarding treatment, and I know I never would have gotten well with the conventional Infectious Disease docs I saw. I hope you get relief soon! EJ
It sounds like what I have, but mine is caused by sciatic nerve pain and it is severe in both legs and in my hands and I thought I had carpal tunnel but it now seems like I have cauda equine syndrome due to all the nerves that are bundled in the lower back that affect many different bodily functions and sciatic nerve pain. I have the pain all over, it moves around, hurts like the dickens and never goes away. It makes life difficult. I get tingling, numbness, pins and needles, sharp pain, burning pain, electrical pain, as well as just throbbing and normal pain, so it may be from nerve pain and not from shingles. Check with your doctor. Maybe an MRI might show something in your spine that is causing it or not.
I would recommend that first and see what your doctor says cause if they can't find why it is happening, then it might be a muscular-skeletal problem, but he/she can tell you more and give you better medical advice than people here. I have two herniated discs in my lower back with a crushed vertebra on top, and scar tissue, arthritis and the narrowing of my spinal canal that presents me with new problems, so you might want to look at some of the spine problems and see if that is the case. Maybe not, but why not get it checked out cause pain is not a lot of fun!!! Additionally, for shingles there is a vaccination you can get for it. It is for seniors over 65, but I will be 55 this year and am going to ask my doctor if I can get it to help with chronic nerve pain. It just might, but I will be checking with him to see what he thinks. My Mom had shingles both times I was deployed to combat zones so I had her get the shingles shot and while she has had some sciatic nerve pain from her back, she hasn't had shingles, knock on wood. I read somewhere that even if you have shingles it may help the severity by getting the vaccination similar to the flu when you have it and get a flu shot. It might work the same way. As always, don't rely on me or others for medical advice, just our thoughts and always check with your doctor to see what he/she thinks. Do a little research so you can ask questions when you go see the doctor and hopefully, we have given you food for thought. Hope this helps. Take care, lambda5555m (Ironic - there is a shingles commercial on tv) I find it disturbing that a firefighter has such a burning pain than anything he had during his firefighter career and going into burning buildings. Yeah, we all feel that pain!!!
Hi, I have the same pain and finally found out that the worts are nerve blisters. Man is this sharp pin pricking nerve pain almost unbearable at times. I have it all over my body with blisters on some sores in my mouth and on my face from the stress.But Good new for you!
After my third time in emergency I finally received the right information to get the right medication to treat this nerve pain. I am now on Lyrica with taking three 75mg with Effexor xr starting at one 3.75 at bed time. For three weeks then if I feel that I could use more I will get it increased.
But The good news is that the sharp pen pricks are about 10 percent left in my body I'm down to a level 3 out of 10 when I was at a 8 of 10 just a few days ago. I hope that this is something you will try fast from your doctor befor you go crazy with all of this pain. I feels so good to get relief so fast. I've been suffering over a year ! Its just all your nerves reacting to your pain. Let me know if you get this. Jay firstname.lastname@example.org
I had to stop by and answer. I know the torture you are going through. For me it was caused by the chemo antibiotic levaquin, avelox and cipro. it is a neuro toxin drug and it caused severe type nerve damage that left me covered in all over stinging from head to toe with heart pounding. Also I developed morgellans which also causes severe stinging and the feeling of bugs on you. It has been 3 years for me so far.. I am unable to process any meds now as it damaged that ability so I am left in this torture.. the feeling of stinging and bugs on you sounds like morgellans..
write me at email@example.com if I can help. I so understand the hell you are in..
Did you ever get a diagnosis? I have the same exact thing. I'm testing negative for everything (all stds including hsv). All of my blood work is normal. I have the tingling all over my body. I've had a folliculitus rash off and on in the chest area. The tingling seems to have originated in the vaginal/pelvic area and spread all over the body. I've seen 4 gynos, 2 pcps, 1 dermatologist, and tomorrow I'm seeing a rheumatologist. The gyno said I had cervicitis but she could not identify the cause after running all tests. I'm still tingling and everyone is stumped...
I don't know if your there any more. I just read your post. I had the same exact thing almost 2 years ago. lasted for 4 months. last year I got pains in my groin and tingling followed by side pain that last couple months. been checked for cancer, tumors, intestinal issues but nothing found. as it started to fade it moved to my right side then boom! shingles. I don't know for a fact that they are connected. im going again to checked for other possible illnesses. but I do have shingles for sure and had your symtoms 2 years ago. was very scary. let me know how what your update is.
I was in a horrible accident, a fire, and afterwards I had nerve damage. But later I began to experience the same sensation, the parasite running through your body. I describe it as ants in my blood stream. Though you may have not had an acciden, I think they both correlate with one another, it's just there not treated as such. We know that after having shingles one can experience a neuropathic feeling for quite a while. Somehow I believe neuropathy may lead to shingles. My shingles are unexplained-accept exposure to high stress, but soon after my neuropathy remained persistent (12 to 18 months) I developed shingles. I had never had shingles- and they appeared where the neuropathy bothered me most.
Possibly treat the source of your neuropathy to get rid of shingles. Possibly diabetes, fibromyalgia, injury, etc etc.
Gabapentin (Neurontin) fixed the nerve damage and the shingles once treated properly never came back. Good luck
Sounds crazy... who knows
I know you wrote this post five years ago but I would love to know how you are feeling today. Any better?
I have had this exact same thing since having shingles on my face 8 months ago. The rash went away but since then I have felt more or less constantly sick with flu like symptoms and this prickly, burning itchiness all over my body. Sometimes I get a tiny rash here and there but thats all. Anyways, I just had a spinal tap which showed high levels of IgM antibodies for Herpes Zoster in my spinal fluid. I am in a way pleased to have had confirmed what I suspected all along but I am also terrified that this will be with me for ever now. I just found out about the spinal tap result so we haven't discussed possible treatment yet.
Please let us know if you have gotten any better and how. I truly hope you are well today!
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 5 May 2012 • 9 answers
Posted 16 Nov 2013 • 2 answers
Posted 22 Aug 2015 • 4 answers
Posted 2 Jan 2016 • 0 answers
Posted 24 Jun 2018 • 0 answers