Anyone have any other ideas of what to take? I'm currently taking opiate patches which aren't helping at all, and any other pain meds will cause me to have rebound migraines. A muscle relaxant of some kind? I can't believe that this new almost intolerable pain has found me.
It is as bad or worse than my migraines, except when my migraines get so bad that I have to go to the ER. Sharp pains that move around to different teeth. The pain is all the time, but at times is nearly intolerable. Very difficult to sleep. Can't think straight. Now I have to wait for one of my 2 neurologists to fit me in for an appointment which are very difficult to get. The doctor who diagnosed it wouldn't prescribe anything for me because my medical situation is "too complicated" with all my medications and problems. When I pressed him for what medication, he said Neurontin which made me nearly comatose at the lowest possible dose years ago. Maybe I'll be ready to become comatose, but I really couldn't do anything. Even turning my head to look at my husband was outside the realm of possibility. It was truly wierd. How would I eat and I'm very low in weight.
Added 23 Mar 2013:
Guess what, my neurologist prescribed, Trileptal (oxcarbazepine) which is in a group of drugs called anticonvulsants, or antiepileptic drugs. It works by decreasing nerve impulses that cause seizures. How interesting that the doctor came up with something to treat my nerve pain when I can't take Neurontin or Lyrica as some of you suggested. I can take at least the initial dose of Trileptal that was prescribed taking into account my kidney failure. But he prescribed it to be doubled by next week, so I'll get through to my nephrologist instead of the resident that I had to talk to after hours. I'm still afraid to take it, and am trying to keep off of it as long as possible. Finding out that there are no withdrawals from the new off-label medication that coincided with my teeth pain, I've stopped it cold turkey. Will try it again later after the pain subsides since it gave me significant relief from my migraines. But what will this new medication do to me? I'm still having terrible bone pain and skin pain from a Prolia injection that should have worn off months ago.
Have you ever tried lyrica? I don't think a muscle relaxer would do much for nerve pain. Can you take things like ibuprofen? That might help.
22 Mar 2013
The only thing I can think of is what they use for mouth sores from radiation, and radiation burns in the mouth. Put a teaspoon of baking soda in 8 oz of water. I put mine in a water bottle. Just rinse your mouth out about 6 times a day-swish and spit. It calms my teeth down. I'm keeping my teeth, but sometimes they had funny nerve feelings-and the soda rinse helped. It can't hurt, it takes about a week to work-it soothes the gums. It's sort of relaxing to the mouth.
22 Mar 2013
So so sorry to hear of such intolerable pain u are experiencing!! I had many patients with varied health problems on Neurontin that tolerate it well. Although I am most familiar with derm problems such as neuropathy for shingles. How about lyrica?
17 Aug 2013
TMD pain management doc told me prednisone is the best solution for this type of pain. I had it after dental work, lived with it on and off for a month - worst pain I've ever experienced; my chronic migraines funtime in comparison. I tried everything in my med toolbox, then loaded up on Tramadol which helped best of what I had already, and an ice pack glued to my face. The pred was miracle drug. Doc said it was trigeminal nerve pain, but just a branch in my case, not full-blown.
17 Aug 2013
Since I'm no longer allowed to add to my initial question, the med that has helped me with most of the pain is Baclofen which I take 10 mg 3 times a day = 30 mg. total
28 Jun 2014
Have you thought about botox. They now use it to help in the prevention of migraines. I'm not a dr but I don't think you can have neuropathy in your teeth. However you can have referred pain. Plus sometimes when I get a migraine I find myself gritting my teeth especially if I am able to sleep. That could be the cause of your tooth pain. Kind of like when a toothache causes ear pain or a sinus headache causing teeth to hurt. Would be interesting to see what a dentist has to say. Possibly you have TMJ which can cause horrible headaches and teeth to ache cause you tend to grit your teeth when you sleep. Hope this helps. Chronic pain sucks big time and most people just don't understand. A muscle relaxer may well help.
23 Jul 2020
I want to thank the person that suggested baking soda... I started using it because I had a tooth that became so lose it almost fell out. After using the baking soda and water to rinse with it was so much better, then I tried just brushing my teeth with the baking soda and within 2 days it seems like it is back to normal. Thank you again!!!