I take Neurontin for nerve pain from Transverse Myelitis. It helps, but doesn't take all the pain away. Doctor put me on Baclofen. Everything I read said it's not good to take this long-term, and I've been warned by others on the drug that it's AWFUL when you try to get off of it. Any thoughts? It's helping a little, too, but I still live with quite a bit of pain in my lower body/legs/feet.
I have been on Baclofen for about 7 years & I have not had any kind of problems.
I have also been on the same dosage the entire time.
But your decision to stay on this drug our not you would need to address your concerns with your doctor.
But with most medications if you decide you want of a medication you need to speak to your Dr..before you stop taking the medication. Kathy
I was on Baclofen for 9 months after the onset of TM. I stopped taking it without any adverse reaction because my eyesight was going blurry. My neurologist wanted to insert a pump, but I really did not like the thought of medication being inside me and refused. I have since learnt from a recently published book on Neurorehabilitation that Baclofen impedes muscle recovery and development in the longterm and I am relieved I stopped taking it. I went from being in a wheelchair to walking with a frame and 2 sticks and
do an exercise regime, water pilates really helps to make my muscels less spastic and acupressure is good too. However, I would like to be able to take somehthing for the nerve pain which is ongoing like you from just above the waist downwards. My feet are the worst affected and buzz constantly making it hard to sleep and walk, although I do drive. I would not stop the medication without consulting your DR fist, although, quite honestly, I think I know more than my neurologist and GP. My problem is I am so allergic to many medications and the ones I have tried don't give much relief and the side effects are worse. I also tried B supplements which made no impression. Its an ongoing search, I live in hope.
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