Back in 2010 I was diagnosed with Graves Disease. I started taking methimazole and my TSH levels went to normal. Then I decided to see a homopathic Dr. and she put me on Thyroid II natural medicine. My TSH levels conitinued to go down as I was taking less and less of the methimazole. Then in Nov. of 2013 my TSH levels were extremely low (0.001). So she suggested that I go on the lowest dose of methimaole (5 mg). Then in Jan 2014 my TSH levels were through the roof at 25! So now I am not currently taking anything as I wait for my TSH levels to go back down. They were going down nicely. Sept 2014 my TSH level was 0.8. But then Nov 2014 my TSH level jumped up to 8.8. I am still not taking any medication for my thyroid. Has anyone else had this problem before? What did you do about it? I am ready to just remove the stupid thing! I am really starting to feel fusterated with this thyroid of mine! I want to get pregnant, I am 32 so its not like I have time on my side at this moment. Any comments would be extremely helpful. Thanks!
Does anyone have any issues with thier TSH levels going low & then high & low & then high again?
Question posted by heidle12 on 12 Dec 2014
Last updated on 6 June 2015 by AsatruHealer
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3 Answers
I don't have any Thyroid problems, but I do have genetic Coeliac disease. However I have been gluten free for 32 years. I was diagnosed at the age of 3. The test back then was horrific. It seems that maybe Gluten free is worth a try, and get screened. One thing is that sometimes the test results are misleading. The results are compiled and compared, but sometimes dates are ignored in a wave of optimism (e.g. a test taken on the first day of treatment before the treatment took effect. This actually happened to me. I was administered after the first blood test. That first test was so encouraging. But, three months after I started putting that nasty interferon the Dr told me, sheepishly, that it had never worked. The first test was when I was using Ginseng, Gingko, Turmeric, and lots of exercise, was working. Long story short, I went back on my natural regime and it helped kill the virus, but the false hope at the start, plus instructions to stop my own regime, meant the interferon treatment never worked at all.
Yes, I have had that problem and after having hashimotos for 10 years my endocrinologist diagnosed me with hashitoxicosis, and Graves' disease. I went to see him to ask him to please please remove my thyroid because I was absolutely miserable. He suggested as one last ditch effort to try medication. My thyroid seems to be responding well to 5mg of Methimazole and I am due for a recheck this month so we will see if that continues. Also went to see a Homeopathic Dr. to have a celiac test done, specifically a cyrex array 3 test and it was positive. I have read tons of information linking hashimotos and celiac disease. I am hoping that by healing my intestines I will start feeling better and have more energy and stop the autoimmune train from continuing. I recommend anyone with hashimotos get a celiac screen done.
I don't have a clue what is going on. If you have a high TSH you need thyroid replacement. There is one thing you need to do. Go to a board certified endocrinologist so he can figure it out.
Related topics
hyperthyroidism, methimazole, medicine, thyroid, disease, diagnosis, natural medicine
Further information
- Methimazole uses and safety info
- Methimazole prescribing info & package insert (for Health Professionals)
- Side effects of Methimazole (detailed)
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