... and I was immediately put on 50mcg of levothyroxine about 4 weeks ago. IMO symptoms before starting medication was extreme tiredness, depression, memory loss, confusion and feeling like life was all together empty. After starting my med I felt better for the first 2 weeks but within the 3 week I started getting all the symptoms back. My doctor won't test me again until I hit the 6 week mark but at this point I feel like I can't wait for 2 more weeks. I guess my question is if this is normal. I can't seem to get out of bed most of the time and when I finally do it as if I am a night owl. I have a hard time sleeping at night because I a, sleeping so much during the day. I appreciate any advice on how anyone felt when they first started this medication. Will I ever feel like myself again? I also experience emotional outburst like right now I am crying as I type this. My muscle constantly ache as if I have been working out for days at end and my body temp reads normal but my skin feels hot. I also have noticed my constipation hasn't changed as well. Should I be taking any other supplements to aid with any of this? Or requesting any other tests?
A TSH level of 9.75 isn't extremely high although it is higher than the upper end of normal which is 4.6. The doctor should have had your T3 and T4 levels checked to determine how your thyroid is working. You may need to increase the levothyroxin, but not until the doctor says. I suspect once you are on the correct dosage you will be fine. Gonna take a few more weeks, so hang in there.
Hello. Your symptoms are normal for a TSH reading like yours. They wait for 6 weeks to test because it takes that long for the med to adjust your TSH.
However, since your symptoms are increasing, I was wondering if your have contacted the doctor to let him know how it is going. When there are continued symptoms like yours they sometimes do additional testing or earlier adjustments. Have you called?
Will you always be like this? No it will change. The doctor will be looking for the reason your thyroid is not producing properly. And that will help in the future. Stay in touch and hang in there a bit longer. Let me know wht the doctor says.
This might sound stupid, but are you taking any over-the-counter, OTC, cough syrup, flu or cold med, decongestant, etc? Those can mess up your thyroid, and make you feel the way you're feeling. But I really suspect that you had some physical relief because your system is improving, but you also had an emotional high in being happy that you aren't crazy-that you'll be less forgetful-you'll be less emotional-more balanced, healthier. It's called the placebo effect. It's very common-that's why it has a name. I've been on thyroid since about 1987-about every 10-15 years my thyroid makes an adjustment. Several years ago my TSH was about 0.1-which as stupid as it sounds- I had 2 much thyroid in my system. My thyroid dosage was reduced, but it took me a few months to feel better.
Your body has been out of whack for awhile- your complete system was slowed down. You don't have the physical stamina right now to do much. Your muscles will have to become strong again. Believe me, as you get stronger, you system will work better, physical activity will help your bowels to move better. Having a good TSH will make your hair and skin better, and you'll be happier. I waited 6 weeks and my TSH was 1.5. I prefer it to be at 2. I wanted another TSH, but he talked me into waiting another 6 weeks. I was OK by then. If anything is wrong-the doctor will make an adjustment in your thyroid meds-then retest you in another 6 weeks. Thyroid slowly affects your body and mind-I couldn't do simple arithmetic, but after my TSH became normal I taught high school math. Now isn't that an irony? Please keep us updated on how you do- Just don't worry about the ' T ' things, as it's the TSH that controls your health. For many years the patient was shown only the TSH, as that was the 'issue' then some wanted to know about the other- It's better to focus on the TSH, which shows exactly how your body is doing. Don't let the other worry you.
wow latalis, I have just been diagnosed and you are describing my own experience, i too am at the four week stage of taking my treatment and feel terrible, but i think there is a back lash of the fact i have been running on no metabolism for a long while and now realise what it is, I too cant wait till i can get my bloods done but am told to wait for 4 more weeks, arghh, best of luck hun, hope you feel better soon,
Yes, it can take a long time to get your Tsh levels normal again. Don't despair. Every 6-8 weeks your doctor should be testing your blood and change your Synthroid amounts until your levels are good. It took me a long time to feel well. I had a lot of hypothyroid symptoms but when I finally got to a certain level that was good for me I really noticed the difference in how I felt. It just takes time. I was really tired as well until my levels were better.
Hi all! I must confess I actually forgot I had this support group (darn fog brain) but im thrilled I received a response which triggered an email and lead me back to the board. After the last few weeks I have had it really could use some more advice from anyone who has experience with this frustrating disease. My TSH went down to 1.07 but I continue to feel as if something is just not right. One day I'll feel slow and sluggish and the next I feel like im wearing a jet pack and worst of all my vision gets blurry. Let me not forget the constipation which is severe one day and diarrhea the next. I also have discovered mucus in my stool along with bright red blood. My doctor insisted my moods are now because I'm depresses and should consider going on antidepressants.
I feel like im a giant band aid from the thyroid meds, the anti seizure meds he gave to me lose weight, the sleeping pills when needed, pain pills for the agonizing muscle and joint pain im still getting and the muscle relaxers for the tmj I've suddenly began having what else does my doctor what to dope me up with. So I decided to ask him to test me for a gluten intolerance thinking that the mucus could be related but I was denied and the dairy intolerance that has suddenly hit everytime I eat cheese apparently can not be a dairy intolerance because cheese is a powder milk and not diary according to my internal medicine doctor. I finally said enough is enough and decided to go to an endocrinologist well let me tell you what a mistake this was. The endocrinologist insist I am a clinical hypothyroidism patient and that although my tsh had once been 9.76 I did not have. Thyroid problem and my problem was depression and anxiety anxiety disorder. Do you know how frustrating it is to sit and explain that I thought he was misunderstanding me and the endocrinologist just kept shaking his head. He told me to stop my medication all together and to go see a psychiatrist. What do you all think any advice is appreciated. Because as of right now I feel as if I have been brutally beat and kicked when I was already down. My concerns are with what is going on with my stools as well as the tightness in my neck and if I sleep on my side now I have developed sleep apnea and find myself waking up to the sound of me moaning as if I'm in pain. Now I understand what others are taking about when they say it is hard to find someone who knows what they are doing and have the compassion to understand. I feel like I am aging more and more everyday and at 28 If I I feel this bad what can I expect in my future?
Hello Latalis. I read your most recent email. Your TSH down to 1 something is fine. Excellent spot to be. So the thyroid medicine is doing its job. If you stop the medication you will shoot back up and depression will be part of the symptoms. Your body and mind will interpret the higher level as depression. You may well become depressed because of the effects of dealing with an illness, getting mixed messages and so forth.
Being depressed is pretty normal in our society. I just heard on the news this past week that one in four people in our country will deal with at least one clinical depression in their life. So it is real. It is treatable and don't take it as a failing. When the body is messed up, especially hormones like thyroid, it is quite predictable to be depressed. Thinking is difficult, energy shot.
Seeing the therapist makes you able to be treated and get out of this mess. Not only to get you through the lows but if they are any good and connected to a clinic, not private, they do contact your physicians and check things out if you wish.
From what you are saying, you are getting a run around. There are good doctors and less effective doctors. You need a good internal medicine or a new endocrinologist . See the therapist so they view you as compliant and get an advocate to sort this out. I don't recall if you have gone through this with your family doctor, if you have one, but that would also be a sounding board. If that doc is the problem, switch that one out.
Main idea here is be your own advocate, stay on your meds until you have a good doc to review. And read, read, read so you can spot what is wrong and counter it. Write any time with new questions. Write me privately if you wish, or anyone here that makes sense to you. Hang in there. You can do this. Karen
I feel the same way. I felt great for about two weeks, then bam, my head feels like it weighs 100 pounds and the depression is not to bad but not good. I'm on about 50 mcg of levoxyl and 15 of cytomel. The cytomel really helps with the headaches and depression but I don't think it's enough. I'm just curious, when you increase your dosage, do you feel low again? That is what I'm wondering.
Hello all! I am sorry for my delay in responding. Good news is that i have cleared up most of my bowel issues! I never imagined i would be so excited to share that :-) after my last post i finally said enough is enough and decided to take matters into my own hands. I also used the power of prayer and asked for guidance and direction. My frustration turned to anger and that anger quickly turned to drive. I decided i would detox my body of all gluten and see if that would help. I also began to have colon cleanses to help my body with any back up i could have had as well as completely get the gluten out of my system. I have a feeling that i have hashimoto's and im sure you all are aware of gluten intolerances going hand and hand with hashimoto's. So now 3 weeks and 2 cleanses later i am grateful to say i feel like a whole new person. I also can report that during the holidays i had a horrible reaction to gluten which snuck into something i ate at a family party.
The fact that i had detoxed my body for 2 weeks prior and consumed a tiny amount which left me in horrible pain, with a swollen and sore throat, and a instant sinus infection only provided to me how much gluten and i are not on friendly terms. I will not lie it has been a huge change which at times is difficult but i can not believe how much of a difference it has made. I no longer feel bloated after i eat (which i always thought was normal) and the mucus/blood has completely disappeared. I am eager to get into a therapist which hopefully can help with the high/low feelings i have but i do think its because i am having a hard time with not having family support as well as all my friends believing i am over reacting and it couldbt possibly be as bad as i say. It stresses me out and to be honest i have never had good stress coping skills. I tend to take a lot of things personal because im the kind of person who puts herself in others shoes to understand how they are feeling which sadly is not how the people around me are. I do believw therapy would benefit me a great deal and if any of you are in san diego and know of a good clinic i would love the referal. I will admit the bi polar comments worry me. Thank you all for being so caring and leaving such helpful comments it has been the most support i have had in this battle. I appreciate it much more than words can express. To the people who left comments about having similar issues and still dealin with them the only advice i can give is dont stop educating yourself. Research, read, reread, listen to pod cast, stay up to date with everything that is going on because the sad fact is not every doctor has the answer and the one thing i have come to realize is that you want a doctor who vaules the fact you have educated yourself on your health issues not the doctor who is annoyied by your questions and research. I have an appointment with a new endo next friday and i have my fingers crosses that this one will test for everything all the other doctors failed to test (like my t3 anti bodies abd so on) HOWEVER i am also prepared that she may not and in that case i will not give up my fight. I have made a vow to myself and god that if i find a doctor who can help me i will pay it forward and be helpful to others struggling to deal with this frustrating condition. Would love to hear what you all think about the dirextion im taking and any advice is always appreciated.
- Levothyroxine Information for Consumers
- Levothyroxine Information for Healthcare Professionals (includes dosage details)
- Side Effects of Levothyroxine (detailed)
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