Lumryz for Narcolepsy User Reviews

• tao...
• Taken for less than 1 month
• September 24, 2023

"I've been taking Lumryz for 3 weeks now and feel like I am starting to adjust to it. I was taking Xyrem before, so I started at 7.5 grams. I think it's nice not waking up in the middle of the night to take a second dose. The only side effect I've experienced so far is occasional bed-wetting. It has been difficult to limit drinking water like I used to because if I do, then I'm more likely to wet the bed that night. Hopefully it won't last long."

• Spe...
• Taken for 1 to 6 months
• July 15, 2024

"Coming from Xywav, I was ready to not have to wake up in the middle of the night for my second dose (which I missed fairly regularly). I love Lumryz and its one dose! Waking up just feels so natural now, and I feel great all the time since I'm not missing doses. I haven't had any problems with the large salt amount, I take Magnesium every night before bed. My blood pressure was usually 110/70 - 120/80, at first it bumped up to 145/75, but I take 2 garlic pills every morning, and it's back down to 120 or 130/70. I can't recommend this enough! I myself am covered by Avadel's patient assistance program since my insurance didn't cover it, hopefully it'll be easier for others to get it covered."

• Igo...
• Taken for 1 to 6 months
• May 2, 2024

"I've been on Lumryz for 2 months, and I am adjusting well. I have not experienced any real side effects. This is my first narcolepsy drug. I would say, on average, I'm sleeping about 7 hours per night without interruption. It took me about 3 weeks, but I am happy with the results so far. My days are much better."

• Jim...
• Taken for 1 to 6 months
• February 23, 2025

"I've been on Lumryz for the past 5 months or so. Plenty of time to build my opinion on the drug. I'll describe the pros and cons from my perspective, but do understand that each person will have a different experience. Pros: - Slightly reduces the likelihood that I have a sleep attack strong enough to knock me out. Cons: - On low doses, I get pretty bad brain fog in the morning if I try to do something mentally taxing, like conversing. On high doses (7.5g), the brain fog for the first few hours after waking up is so severe I can't bring myself to even go outside. For those concerned whether I'm sleeping enough, I am sleeping 6+ hours each night. - When I discontinued the medication for a few days, I found that I couldn't sleep without it anymore. Perhaps my body developed a bit of a dependence on it? Not sure, but it was scary. - Makes you feel really drunk and motion sick. - Tastes like grainy ocean water with a tinge of soap."