Ruxolitinib for Graft Versus Host Disease User Reviews

• zoe...
• Taken for 6 months to 1 year
• May 26, 2023

Ruxolitinib "So far, it seems to be working. If I forget to take it, I get a definite onset of itchy skin with a very marked response and regular and multiple bowel movements in the mornings. I am not sure if it is Jakafi related, but I had a stroke. I have found that my blood levels definitely stabilized and GvHD skin flares reduced quickly too. I do have regular and severe cramps in the calf in the mornings."

• Anonymous
• Taken for 5 to 10 years
• November 11, 2024

"Before Jakafi, I was on supplemental oxygen therapy due to lung cGVHD. Ruxolitinib allowed me to go off oxygen therapy, taking 10 mg twice daily. Dosage eventually halved. No known side effects. Easy use."

• TBs...
• Taken for 6 months to 1 year
• March 23, 2023

Ruxolitinib "I’ve been on Jakafi for 7 months to get rid of my GVHD rash, which helped. My dose was 5 mg twice a day. Gained 30 lbs of weight and fluid. Getting weaned off now. Hoping I can lose the lbs."

• FWA...
• Taken for 1 to 2 years
• December 11, 2021

"Works great. Hardly any side effects. Had mostly mouth cGVHD after transplant 4 years ago. This helped me to greatly reduce prednisolone."

• Srw...
• March 20, 2023

Ruxolitinib "My platelets were affected, but so far, my liver GVHD has improved."

• Kur...
• Taken for 1 to 2 years
• September 7, 2023

Ruxolitinib "Taking Jakafi for 1 year 3 months, working well with no side effects. Take 5 mg daily. I take it for GvHD of the skin, and it has done a great job controlling it. I have had no flare-ups."