User Reviews for Keytruda to treat Non-Small Cell Lung Cancer
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Reviews for Keytruda
"I believe Keytruda killed my husband. Period. He was diagnosed with non small cell lung cancer/brain cancer June 2017 and passed away in September 2017. He did not die of the brain cancer, he was still choosing to work, functioning, but days before he died he had several unusual things happen. He went to the Dr. and died that evening from what I believe was heart failure. It was sudden, unexpected. He had 2 series of Keytruda, 3 weeks apart. I believe the "cure is worse than the cause". Caution to anyone who believes this is miracle drug. It is not."
"My father was diagnosed with NSCLC July 2018. We were told he was not eligible for chemotherapy and that Keytruda was his best option. My father had his first treatment 1 week later and 2 weeks after treatment he presented to the ER with weakness, severe shortness of breath, restlessness. He was admitted for pericardial effusion. He had his 2nd treatment and 1 week later he went back to the ER with severe shortness of breath, loss of appetite, at this point he had lost weight and admitted for pneumonitis and hypoxemia. My father's health declined so rapidly after taking this medication within a months time. After his 2nd hospitalization his quality of life was minimum to none; was a total assist as he could not do anything for himself. He was placed on hospice 1-2 weeks after his last hospitalization and passed away 1-2 weeks after being placed on hospice. My family and I were given false hope regarding this medication and it killed my father and stole what time we had left with him."
"Keytruda is a killer, my mother was diagnosed with NSLC in March and passed away June 22nd. This so called miracle drug attacked her healthy organs, there’s not a lot of information on the internet stating the facts, more than 4% of people suffer due to this drug. Please consider all your options my moms life was cut short because of false hopes."
"On Keytruda my Tumor shrunk or remained stable for 10 months. Now, after 13 months is growing slowly. I think Keytruda has kept me alive! However recent untreated side effects not addressed by my Doctors are causing grief. My joints are so inflamed I can barely stand. It’s important to be proactive with your Doctors! They’re new to these drugs also!"
"My Keytruda experience is entirely positive. I only wish and hope it helps others like it helped me. Male, 70. My 5cm inoperable lung tumor discovered about a year ago shrank to smaller than 1 mm in size after 3 Keytruda infusions. No side effects. Never stopped riding my bike to the gym. Only stopped 2 days before the surgery. Lobectomy followed. Few weeks later I was told by the surgeon and my oncologist that I don’t have cancer anymore."
"My husband has stage 4 NSCLC diagnosed in 2016. On March 31, 2018 he was diagnosed with a 5 cm tumor on his right frontal lobe of his brain, which was surgically removed. Dr. started my husband on Keytruda May of 2018. All was going good until Nov 29, 2018 brain scan showed 5 tumors on the dura lining around his brain which is inoperable. He had radiation which did get rid of the tumors for now. Dr. kept him on Keytruda. 6 weeks ago, after his Keytruda treatment, my husband got very weak, short of breath and stayed in bed 95% of the time as he was so exhausted from doing nothing. 3 weeks later he had another treatment of Keytruda and the same thing again, weakness, in bed all the time and short of breath. Today he was feeling much better but had to have his Keytruda again today. I will monitor him to see if this treatment kicks him down again. Does anyone have any advise? His Oncologist states that Keytruda is the only thing keeping him alive right now."
"My father started taking Keytruda and had a massive heart attack after 2 treatments. He had stage 4 non small cell lung cancer but had extensive testing within the prior year on his heart and it was in perfect shape prior to Keytruda. He passed away several months later."
"My husband small cell lung cancer spread to brain. Dr. recommend Keytruda, has had 5 treatments 1 every 3 weeks. Dr says scans and blood work looks good, however he has lots a lot of weight, no energy, can't eat also short of breath. He is thinking of stopping treatment because of side effects. Was praying this would work, however I don't think it is."
"I have been on it for nine months and have had not problem and three clear CT scans. I have stage four small cell lung cancer. Working for me."
"My friend has had 36 treatments and has not had any side effect. Her treatments are every 21 days she is now cancer free and plans on staying on the treatment for the rest of her life. Her COPD is still bad but she is glad to be cancer free."
"After chemo and radiation treatments I was given six months. My Dr. got me into a keytruda study. After eleven months of keytruda treatments I am considered in remission. I write this because I debated taking keytruda because of the bad reviews. So sorry for the people that didn't have good results, but keytruda was a blessing for me."
"Husband with stage IV lung cancer died within one week of treatment #3 of Keytruda. He was 90% positive for the PDL1 marker. After 2 nd treatment he started a rapid decline. He died of a massive lung infection. I am devastated."
"It gave me extreme diarrhea and terrible stomach pain. If I could go back and not take this medication, I would. I discontinued it after 30 days."
"My sister’s doctor talked her out of having chemo for her stage four lung cancer and into having Keytruda treatments. It did absolutely nothing for her and the cancer spread like wildfire within a couple weeks, to her liver, adrenal gland and spine. She was admitted into the hospital for severe pain and died five days later. I am heartbroken and angry that her life was shortened by doing essentially nothing but gave her false hope in a totally ineffective drug. They might as well have given her a sugar pill. Keytruda needs to be taken off the market!!"
"My mom tested as PDL1-70, and Keytruda was used to treat. Immediately after her 2nd infusion, her muscles were affected, sore and swollen. Her heart started to beat erratically, then shortness of breath. After 5 day of doctors treating her with steroids, then having no idea what to do or how to treat her, she passed away - while suffering. No cancer was present via CT scans performed the day before she passed."
"diagnosed with extensive Stage IV NSCLC with numerous mets to the liver and adrenal glands. After four infusions with Keytruda all liver mets are gone and adrenal mets greatly reduced in size. Used as first line treatment. Very grateful. No major side effects. Feeling run down with low appetite attributed to the remaining cancer and after affects of radiation to hip bone met."
"Had five treatments, 2spots gone and one has shrunk by 25%."
"Although it seems some have had a bad experience with this drug, as in some other posts mine was positive. My father found out he had lung cancer. His brother and father both had also, and passed away at 74 (both same age). My father has been a heavy smoker since age 15, as they were also. After finding out he had tumors on his lungs, we both felt it was a death sentence. He informed me that he was going to do some treatments with a new drug. I had never heard of, and I work for a pharmaceutical. Keytruda was the name of it. Of course you have to qualify health, stage of cancer and other aspects to be treated. He was a high candidate for this drug as per his doctor. He began treatments immediately upon that confirmation. Within three months one of his two tumors was gone. The other had shrunk 50 %. Here we are in August, the other tumor is gone as per his scans, as well as his blood being normal. Now they did not say he was cured, but his treatments have ceased."
"So last April my mom was diagnosed with stage 4 lung cancer. Turns out she was a candidate for keytruda. Her first treatment she became very ill. Ended up in ICU for low sodium. It was bad. She was very ill and was going to stop the treatments. We and the doctor talked her into continuing and honestly she's done amazing with it. The cancer has shrunk. You would never know my mom has cancer. 1.5 yrs later and still doing everything she did years ago. I'm sorry it hasn't worked for everyone but it truly is a miracle drug for some. Thank you from the bottom of my heart for the extra time with my mother."
"Oncologist confirmed it caused a Heart attack and severe Pneumonitis. Watch your family member closely for shortness of breathe or feeling like they are smothering. Side effects worse than chemo. Has now probably shortened life and diminished quality of life left. We were so excited and hopeful after being approved, now we are devastated. Never thought it would happen because the side effects are so "rare" but it did... after 2 treatments."
"My husband has had seven treatments. The worse side effect has been extreme fatigue although he has continued to work full time. It affected his thyroid, and he is now taking Synthroid. He has been an insulin dependent diabetic for many years, and the Keytruda has apparently affected that also. Working with his endocrinologist to get that under control. He will have a scan done in a couple of weeks. Hopefully it will be good news. We both agree this drug is way better than undergoing chemo."
"To all of you who are taking care of your loved ones! I am a nurse who took care of my father with stage 4 lung cancer! He took this drug and this drug made his life much shorter that even not getting treatment. Shame on these pharmaceutical companies who make money at any cost. This drug can cause serious heart issues and your patient will die due to cardiac arrest than actual cancer. The drug DOES NOT work at all. Shame on these companies who fool patients with these ads on TV. This drug MUST be taken off the market."
"My father in law took his first dose of Keytruda and after few days he felt strong pain all over his body. His heart was beating out of control. After we took him to emergency and after all scans and test the doctor confirm that was the side effect from the Keytruda. After one day in the hospital his heart was already so damaged that after less than a day he passed away. This drug took his live. This drug needs to be taken out of use and revaluated."
"My Mom was supposed to have three infusions. After the first, she became ill with several side effects. She was so brave and went for her second one, two days later she was in the ER with a collapse lung. Her health declined so rapidly and she passed away one month later. I honestly feel it was the Keytruda, she would have lived longer without it. Please stay away from this drug."
"Well my mom took one dose she had been tired, not much of an appetite. Have hope this will lengthen her life. We will see her when she has her scan done, hopefully it reduces."
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