Palbociclib User Reviews & Ratings (Page 2)
Brand names: Ibrance
Palbociclib has an average rating of 6.8 out of 10 from a total of 96 reviews on Drugs.com. 63% of reviewers reported a positive experience, while 29% reported a negative experience.
Reviews for Palbociclib
- Faith...
- December 23, 2016
Ibrance (palbociclib) for Breast Cancer, Metastatic "I was in remission for 10 yrs, was just told this last October it was back. Its in my liver and bones. My onocologist put me on Ibrance , hormonal therapy and a bone shot. I am in my second month of taking it so I cannot tell you if any of the cancer has gotten smaller or even gone away. My blood work, all came back well , after the first mo. Being so aggressive! I will see him in the third month to see if the tumor has been affected by the treatment. He is so optimistic about this drug :-) I can help some new ibrance patients out by telling you to eat smaller amounts of food. I think I have drank more water on ibrance ,than I have in the last year combined. I myself would not recommend taking it at night ! Lot's of water !!"
- 15...
- Taken for 1 to 2 years
- June 7, 2017
Ibrance (palbociclib) for Breast Cancer, Metastatic "I had stage 2 breast cancer in 2002. In 2009 found Mets to spine at T12 vertebrae and has moved to lumbar spine and right hip. Was on zometta, letrozole and am now taking Ibrance and xgeva and fasoldex injections monthly for past year. My last scan showed areas of Mets are smaller, my doctor doesn't think I need any further scans unless I develop other symptoms related to organ mets. I have never had a low white count, however, I have most other side effects. Mouth sores in the beginning, poor appetite, taste and smell issues. Also toe problems it started with last 3 toes both feet tingling and now have neuropathy pretty bad to both feet and now hands. I don't feel great, but I am able to enjoy life and grateful to still be here. I will take any drug to stay alive!"
Frequently asked questions
- Will insurance pay for the cost of Ibrance?
- Is Verzenio better than Ibrance?
- Can you take Verzenio after Ibrance fails?
- How common is hair loss with Ibrance?
- MetsG...
- Taken for 1 to 6 months
- April 21, 2017
Ibrance (palbociclib) for Breast Cancer, Metastatic "I've been taking Ibrance for 6 months for mets to bones, lung and abdomen. I also take Femara daily and have a monthly Zometa infusion. First month my tumor markers went up, eeek, but since have steadily shown a downward trend. Recent PET scan compared to one prior to beginning Ibrance shows remarkable improvement and no new evidence of disease. Side effects are there but I'll take them in order to get a chance to live longer."
- losta...
- July 29, 2017
Ibrance (palbociclib) for Breast Cancer, Metastatic "My mother was given this medication by her oncologist. She had been fine until this medication caused her to lose her appetite. She declined so rapidly that she soon passed. The cancer had not had time spread that rapidly. She was 81, she had metastatic breast cancer in the bones. Her Doctor refused to take off the medication until she insisted and she was on tamoxifen for a week. I don't believe she should have ever been put on this medication but her doctor is money hungry. The cancer did not kill my mother negligence did."
Are you taking this medicine?
- Jazzqn
- Taken for 1 to 2 years
- May 28, 2017
Ibrance (palbociclib) for Breast Cancer, Metastatic "Initial breast cancer stage 2 in 2001 with chemo and radiation. Diagnosed stage 4 with mets to one rib in October 2015. One year on zometa with letrozole and ibrance for nearly two years. No serious side effects and my tumor marker went from 220 to 83. No trouble with blood cell counts. Some tiredness and nausea. Small meals and lots of water help. Ibrance is now covered by Medicaid. With this leadership in charge, who knows what will happen to me. I can't afford it on income of $2,000 a month. Eek."
- tmess...
- Taken for 1 to 6 months
- January 11, 2017
Ibrance (palbociclib) for Breast Cancer, Metastatic "I have been on Ibrance for a month and a half only. I'm also on Lertazole. I take both with my main meal at night. I have not had a scan yet. She's planning one in early March. My oncologist said wine with dinner is ok. I've heard many say alcohol is terrible to drink with cancer. I'm confused what I should be doing with alcohol. A little or none at all? I'm trying to learn about health products and the benefit of mushrooms. It's still overwhelming but I'm hopeful. I'm very tired on Ibrance. I know my resistance is lower and am getting cold sores. I need lots of rest and quiet and Peace. Love and light to you , Trinda"
More FAQ
- Socal...
- Taken for 2 to 5 years
- February 3, 2018
Ibrance (palbociclib) for Breast Cancer, Metastatic "I have been on Ibrance for a few years now, with Fasoldex and Zometa with good results. But I have started taking money from my Roth IRA, and now can't afford the $780 monthly co-pay. I'm also on Medicare (with supplemental insurance) so I can't use the coupons. So it is saving my life, but I can't afford it now. So wrong...."
- 15...
- Taken for 1 to 2 years
- February 28, 2017
Ibrance (palbociclib) for Breast Cancer, Metastatic "I was diagnosed Oct 2002 with Estrogen/progesterone positive breast cancer of left breast with 2 nodes positive. I received chemo(Cytoxan, Adria, Taxotere) no radiation. Was clear for 13 years until Oct 2015 diagnosed with mets to bone. Had right hip replacement for fracture and radiation. Other lesions noted in spine, left hip, and mammary node. Started Ibrance and Letrozole with very little side effects. Some hair thinning, occasional mouth sore, fatigue at times. Side effects very minimal. Also received Xgevia injection monthly. Results excellent: markers good, lesions inactive for 17 months. Recently had Pet scan and found active lesion on left hip. Next plan is to do some radiation, Fasoldex injections monthly and continue Xgevia"
- Cleok
- Taken for less than 1 month
- April 18, 2017
Ibrance (palbociclib) for Breast Cancer, Metastatic "My mother has stage 4 breast cancer with metastatic bone lesions... oncologist put her on ibrance but she developed neutropenia (low white cell count) and caught viral pneumonia! She has had nausea and diarrhea for past 3 weeks and we are sitting in ER right now... tried all anti-nausea meds and none have worked. It was a cascading effect of Ibrance and so she decided she is off all pills! Oncologist washed his hands of her when she said no more Ibrance..."
- Jaja
- Taken for 1 to 6 months
- January 15, 2017
Ibrance (palbociclib) for Breast Cancer, Metastatic "I was so hopeful that the wonder drug Ibrance would help me, but it didn't do squat. Actually am worse off now than before. It seems to have triggered something to make my mets spread. Side effects: mild to moderate. Bad fatigue and mouth sores Insurance out of pocket would have been $60 a month, but co pay assistance made it only $10."
- Gram
- Taken for 6 months to 1 year
- January 28, 2021
Ibrance (palbociclib) for Breast Cancer, Metastatic "I was started on Ibrance in March 2020. I had a lot of weakness and abnormal labs when I first started taking it. I was also getting radiation which contributed. After a couple of months I was better and able to return to work. Since that time I have had a few minor side effects. A sore mouth and some rash from time to time but nothing I couldn’t handle. From March to Oct my cancer antigens dropped from 258-66. In Nov I had COVID and it has all been down hill. Not sure if that plays any part or not. Since Dec I have required to be in the hosp for pain, have gone through a 2nd course of radiation and my cancer antigen has gone back up and now back to 201. Right now my bone pain is so bad I can barely walk to the bathroom. When I try to even sit up the pain is bad. My oncologist has taken me off the Ibrance and is in the process of changing my drug regimen."
- TTano
- Taken for 6 months to 1 year
- August 30, 2020
Ibrance (palbociclib) for Breast Cancer, Metastatic "August 2016, lumpectomy, oestrogen positive 14 mm, clear margins, close to chest bone, no lymph node involvement, radiation only, no Tamoxifen. After 13 years bone pain in chest, scan revealed bone spots and lung tumor metastases - oestrogen positive. November 2019 diagnosis, started Ibrance with Femolet and bisphosphonate injection once a month. Within 2 weeks pain stopped. First scan showed no growth, evidence of some bone healing. A few relatively minor symptoms, loss of appetite, low energy. After a few hours my vertebrae affected ache. Now nine months later still going well. I am very happy to have this time and good measure of QOL."
- pfrish
- Taken for 6 months to 1 year
- May 13, 2021
Ibrance (palbociclib) for Breast Cancer, Metastatic "I was diagnosed with Stage 1A Breast Cancer in July 2019. I started on Tamoxifen in October 2019. In April 2020 my tumor marker shot up so Bone and CT scan were done, results not good so a biopsy was done on lower spine and May 5, 2020 found out that the cancer had metastasized to my bones. June 2020 started Faslodex Injections, July 2020 started Ibrance capsules and Xgeva injections. PET scan in September and December 2020 showed no progression or activity and CT in April 2021 shows no progression or activity. I am thankful that this treatment regimen is working. I get fatigued easily and my bones hurt (but that is from the Xgeva) but no other problems being on the medications."
- KTano
- Taken for 1 to 6 months
- October 1, 2019
Ibrance (palbociclib) for Breast Cancer, Metastatic "My Mom has stage 3 BC in April 2015. She has surgery followed by rounds of chemo and radiation therapy. She was put on harmone tablets and in Nov 2018 we learnt that it came to lungs after she had persistence cough. She had biopsy and then had 12 rounds of paclitaxel and then in PET Scan their was great recovery. After then doctor put her on Ibrance with Fulvestrant with too many side effects and after three months it became worse with new lesions in liver and bones. Now she is on oral chemo and just praying. This Ibrance does not Works seems !"
- Valerie
- August 8, 2020
Ibrance (palbociclib) for Breast Cancer, Metastatic "I was diagnosed with Breast Cancer, Metastatic MBC (liver and bones) Feb 2020. I am having my 5th cycle of Ibrance and Letrozol now and I feel great. First two months were hard to manage, I felt very tired, no appetite and lots of bad headaches. During my 3rd cycle I stated to feel suddenly better and now I do not have any side effects at all. The combo works for me, but quite slowly. My markers are getting down, my liver tests are better, but far from normal.But I feel great, like normal me. I will switch to another drug soon."
- Maisie
- Taken for 1 to 6 months
- December 14, 2020
Ibrance (palbociclib) for Breast Cancer, Metastatic "Taking Ibrance has been very positive. I am on my 4th round with no side effects. First diagnosed with Stage 3 in 2004 then d Stage 4 in 2016. For 4 years I have been unable to swallow due to oesophageal thickening after cancer cells migrated into the outer muscular layer from the surrounding lymph nodes. All my nutrition other than water density fluids has been taken through a PEG tube directly into my stomach. After 6 weeks on Ibrance I was able to transition to eating all my meals. It is a real joy to be able to eat again. A recent CT scan showed marked reduction of tumors in my liver, lymph nodes, oesophagus and vertebrae with new bone growth evident. Cancer markers (CA15-3) have reduced from 200 to 70. I am also on Letrizole. So far I am very happy with the results. I am also thankful that our government (New Zealand) put this medication of the "free list" earlier this year and it now does not cost anything (previously it would have cost $4500 per cycle)."
- Flute...
- Taken for 2 to 5 years
- November 12, 2019
Ibrance (palbociclib) for Breast Cancer "I have taken Ibrance for over 4 years and twice in hospital as I couldn't breathe. Now I see lungs are one of their side effects. Off it now for 3 weeks as it quit working. Blood is still low so can't begin another but like to breathe . Will all the drugs cause lung problems"
- truth
- Taken for 6 months to 1 year
- January 10, 2021
Ibrance (palbociclib) for Breast Cancer, Metastatic "Ibrance sadly was not be effective for long. For the first 3 months it kept my breast cancer stable. RGCC to get rid of the cancer cells in Vitro test tube response showed 25% elimination rate. Not really that impressive. Within 3 months the elimination rate had dropped to ZERO and the cancer was progressing again. We went off it about 6 months too late instead of monitoring every month for resistance. Even Ibrances new reports say average efficacy time before resistance is 7.8 months but I have found much shorter. For all the problems this drug causes and bad side effects IMO its not a good option, better off with SOT and IPT treatments."
- Florida...
- Taken for 2 to 5 years
- November 30, 2020
Ibrance (palbociclib) for Breast Cancer, Metastatic "I have been on Ibrance since June 2017. I loved the capsules. They were easy to take on the go and not many side effects. July 2020 I was switched to the pills after being in the capsules over three years. I really reall don't like these pills. The packaging is awful and the side effects terrible. I have a lot of stomach issues on the pill form that I did not have on the capsules. My liver enzymes have gone up. It use to be a great medicine and they changed it to the point I’m considering asking my dr to change to another inhibitor drug. I use to always be quick to recommend Ibrance to a new patient when I had capsules. Now I won’t recommend it at all."
- Donna
- Taken for 1 to 2 years
- June 15, 2022
Ibrance (palbociclib) for Breast Cancer, Metastatic "Initially diagnosed in 2000 breast cancer stage 1.. did chemo, radiation, and 5 years of tamoxifen. I was great for 10 years then reoccurrence in 2011. Ended up with bilateral mastectomy even though only left side again. In 2017, doctors started watching suspicious spots in left lung-they called it ground glass and watched it for 4 years taking CT Scans every 6 months as the sizes were too small to biopsy without a lung refraction. In January 2021, it was discovered that the spots were now solid and larger in size a lung refraction was scheduled but the day of the surgery the procedure was changed to a bronchoscopy which showed metastatic cancer. The refraction was scheduled, done May 2021 and advanced stage 4 metastatic breast cancer. PT shows spread to sternum, neck, and both lungs. In operable, only thing they can do is treatment. I started Ibrance 125mg 1 year ago but it was too strong too many side effects lowered the dose to 75 and I still have side effects but tolerating them doing well."
- Dottir
- Taken for less than 1 month
- February 9, 2020
Ibrance (palbociclib) for Breast Cancer, Metastatic "My mother got two injections and one capsule on the neglected line of informed consent. She felt nauseous, light headed, lost hair and above all her leg function was hampered. After a "clean" MRI scan without metastasis, ok red blood cell levels and white blood cell levels she got scanned after one month with severe pressure in her spine and dysfunctional legs and had bone cancer, severely declined red and white blood cells and ruptures in her liver. Not saying it was this "medicine" because I don't know. She lived 6 months...I can be angry but that doesn't bring her back."
- Truly...
- Taken for 1 to 2 years
- January 31, 2022
Ibrance (palbociclib) for Breast Cancer, Metastatic "I was diagnosed with MBC in May of 2020. After being on Ibrance for 4 months my tumor in my breast was gone as well as in my two affected lymph nodes. I still have bone mets in my lower back and a few spots on my liver but, I am doing well! No pain and my tumor markers have been constantly going down. I feel great! I am also on xgeva and flasodex shots monthly to treat the bone mets. I am so very thankful that my treatment has been working. Thank you for this wonderful medication. Blessings to all of you."
- April
- Taken for 1 to 2 years
- June 4, 2023
Ibrance (palbociclib) for Breast Cancer, Metastatic "So far so good! Over a year of pretty good quality of life. Some hair thinning, occasional nausea, lack of appetite. Blood tests have come out better than expected so far! This is after 22 years of survival from Stage 4 breast cancer."
- Old...
- Taken for 1 to 2 years
- April 20, 2020
Ibrance (palbociclib) for Breast Cancer "I loved it. It was the first drug I tried after I was diagnosed. I had not had a mammogram for 3 years so my original diagnosis was Stage 4. This drug worked like a charm. Brought my numbers down really low and I felt good. Except for fatigue. But they all effect me that way. My husband was dying of COPD and I took care of him until the end. Great drug."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Ibrance (palbociclib) for Breast Cancer, Metastatic "I have hormones receptor positive and HER2 gene negative stage 4 breast cancer and started ibrance February 2020. So far, I really like how it is working for me. When I first started my WBC dropped very low but then my oncologist switched me to the lower dose and my WBC does a lot better. At my last appointment in June 2020 my cancer markers have dropped a lot since February and my breast cancer has even shrunk quit a bit. I am very happy with this medication. I also take fulvestrant once a month."