Lialda User Reviews & Ratings (Page 2)

• gtr
• October 27, 2011

For Ulcerative Colitis, Active "My doctor switched me from Asacol (which was working very well) to Lialda and the results were horrible. When I started having bad flare ups my gastroenterologist had no clue what do do. She put me on Remicade over 16 months with no results and I was miserable. When I suggested that perhaps it was the Lialda that was causing the problems she stated that that was "not likely". Well, after about two years of misery and being back on steroids, I switched doctors - a guy who came highly recommended. After a heart to heart consultation with him, he stated he had some patients who did not do well with Lialda and decided to take me off that medication immediately. Within three weeks I was off steroids, back to using Asacol and life is now okay."

• Tummy...
• Taken for 1 to 6 months
• June 25, 2014

For Ulcerative Colitis, Active "I was told to switch to Lialda after being on Asacol HD for 3 years 2 pills 3x a day 800mg each, due to my insurance not covering it anymore. My doctor told me the only difference was the coating, so I felt confident making the switch. By the end of week one of Lialda 1200mg 2 pills 2x a day, I was starting to get pain and go more frequently until it turned into diarrhea. I had no flare ups for a year and had been feeling great on the Asacol, so I immediately switched back to it after a month on Lialda. It was too late the wheels had already started turning on the road to a flare up. I am now on day 8 of being back on Asacol, waiting for my prednisone to get me better. I am so disappointed this happened."

• 7year...
• October 22, 2013

For Crohn's Disease "Diagnosed in 2006 with severe Crohns disease. Tried a dozen medications and never had any success or even close to finding remission. Consistent pain, diarrhea, naesua etc.....started Lialda 1.2GM once daily 4 days ago. My pain, naesua and everything stopped within a few hours of first dose except diarrhea, its actually gotten worse and completely watery. Is this normal and if so how long does it typically last. I am SO happy to being 100% pain free for the first time in 7 years without having to use a pain killer just want the diarrhea to stop so I can be more active outside of the hone with my children."

• Bosto...
• Taken for 6 months to 1 year
• August 9, 2015

For Ulcerative Colitis, Active "I take Lialda 3.6g each morning which cleared up my diarrhea and bloody stool but I have had neurological side effects of headaches, fatigue, and slow-thinking, and abdominal pain, gas, and bloating as well. I'm too scared to switch to other meds despite an asacol prescription given the risk of flare ups when meds change, but I don't want the mental haziness for the rest of my life."

• Anonymous
• Taken for 1 to 6 months
• October 27, 2016

For Ulcerative Colitis, Active "This medicine has little to no effect on my Ulcerative Colitis. I was diagnosed with in in early Aug of this year, I was prescribed Lialda because my case wasn't "too severe." I have seen no improvement from this medicine, and I would say my symptoms/flare ups have become worse and more frequent. Apparently this medicine works for some people, not me. I haven't noticed any of the side effects from Lialda, but it definitely isn't doing what it is supposed to."

• Anonymous
• June 1, 2014

For Ulcerative Colitis, Active "Lialda is not for everyone. Talk to your doctor about other options because they're out there! I was prescribed to take Lialda 3xs daily. A couple hours after my third dose I developed the following reaction: fever, nausea, vomiting, chills, rash/hives on my throat and neck. My doctor wanted me to continue talking Lialda but lessen the dose. I did as told, and was bedridden from the side effects. I then found GI Dr and was prescribed Asacol and medicated enemas. No reactions yet! I wonder why Lialda made me sick but I am fine with Asacol?"

• Anony...
• April 7, 2017

For Ulcerative Colitis, Active "I was diagnosed with moderate to severe universal colitis on 3/27. I was prescribed lialda and take 4 pills a day as well as 1 uceris. I am not exaggerating when I say the relief was almost instant! Within 3 days I went from urgently using the bathroom 5 - 6 times a day with unbearable abdominal cramps to using the bathroom once a day with no cramps! Only side effects I have noticed so far is slight headaches, occasional trouble sleeping and more frequent urination which I will take over my colitis symptoms any day :) Lialda seriously has changed my life in the short 2 weeks I've been taking it ——————————————————— 19 years old Moderate to severe universal colitis Flare started: May 2016 Diagnosed: March 2017 Remission: April 2017"

• UP2020
• Taken for 2 to 5 years
• August 14, 2014

For Ulcerative Colitis, Maintenance "I have diagnose with Ulcerative Colitis (Proctitis) for last 4 years. Lialda has worked for me best with no side effect. I am taking 2 tab twice daily. For people with Ulcerative colitis in distal part of colon Lialda will work best. I had tried 2 years ago to switch to Apriso only because of the cost of Lialda and had a worst flare up and took 6 month to get normal with oral steroid and steroid enemas. I am using Lialda Pharmacy Saving card which reduce my copay to $10/month."

• Happy...
• Taken for 2 to 5 years
• March 15, 2018

For Ulcerative Colitis "Initially when I started taking Lialda, it worked. However, I ignored the side effects because the medication was working well. I pushed aside all the warnings in my body until my symptoms became severe. I had loss of hair, muscle weakness, fatigue, anxiety, and the final straw was the rash that overcame my body. The doctor did not believe it was due to the Lialda, because I was on it for 4 years, however, I know my body better then the doctor and chose to stop taking it. After 2 weeks I felt like a new person. I am now on Balsalazide Disodium, and for now it seems to be working fine. Listen to your body despite what the doctor says. Ignoring the warnings signs my body was experiencing was ignorance on my part and will never happen again."

• GAGator
• December 1, 2012

For Ulcerative Colitis, Active "I have been taking Lialda for9 months now for my microscopic colitis and it is working! I take 3 pills a day with zero side effects. I only have flare ups if I eat something on my no-no list. My doctor told me I could come off the medication if I want to as it is the type that will cause remission but I am to afraid to go back to the pain of my colitis so I decided to remain taking it. The only problem with this medication is that it is very expensive."

• Ilee
• Taken for less than 1 month
• March 31, 2018

For Ulcerative Colitis, Active "I have been on this drug for twenty days. I took myself off it because I've experienced severe joint and muscle pain. I also have rashes all over including my head. I have lost 11 pounds, which would be nice except it is not fat, it is muscle mass. This drug need more study! I sincerely hope no one else has to suffer as I have. I have been off it for 9 days now, and things have not improved. I hope this is not sometime I have to live with, but it appears it might be."

• tpkea...
• June 9, 2015

For Ulcerative Colitis, Active "My GP had me on another drug for 4 years and was feeling great. An annual colonoscopy showed nothing so the "Great Gastro" took me off everything and about a month later everything blew up. Went back to a Nurse Practitioner who apologized and put me on Lialda and Canasa.1 week later, great again. Ins Co after 6 months decided not to pay for Lialda so I was put on another couple worked for a couple months then blow up again.NP called Ins Co and got them to approve Lialda, Canasa again and 2 months in all ok except after eating still bloating and gas. We explored my eating habits ans she (NP) took me off gluten and gas and bloating stopped.Joints stopped aching. Try it! Can even touch my toes!!! Best NP around at OSU Gasto Clinic in Co"

• Peaches
• Taken for 5 to 10 years
• June 3, 2020

For Ulcerative Colitis "I’ve been taking Lialda for 6 years. I started on a very high dose but have reduced it over the years. I do believe it gives me gas, stomach aches, and I often have soft stools and mild cramping. I spoke to my doctor about it and he agrees it is probably the Lialda, but I didn’t want to switch in fear a new drug would not be as effective. I can deal with the side effects I have but I definitely don’t want another flare up. With that said, it works for me but with annoying side effects. Also, the price is ridiculous!!!! For a while I could use coupons but they aren’t available since a generic was introduced. Thank goodness I have insurance, but it’s still high."

• Babs
• June 8, 2014

For Ulcerative Colitis, Active "I am on day 3 of Lialda. The first day I took all 4 pills with breakfast. Did the same on day 2. Day 2 I had severe diarrhea and chills and headache. I felt like I had the flu. That night I did the Canasa suppository. Woke up several times in the night but did not go to the bathroom. Day 3 woke up with severe headache and mild diarrhea. I decided that I would take 2 Lialda's with breakfast. I started feeling a little better. It is now night 3 and I just took 2 Lialda's with dinner. Headache is not as severe. I am hoping that by day 7 I feel normal again. I was diagnosed with Ulcerative Colitis in 2003. I have not had a flare since 2006 until recently."

• imf
• December 3, 2014

For Ulcerative Colitis, Maintenance "Have had colitis for 20 years and been on mesalamine for all of it. Asacol was inconvenient because 6 pills throughout the day was hard to do. Lialda is very expensive even with insurance and their card, but it works and it's only two pills a day. The dietary changes and medication are worth it if I can eliminate surgery."

• Carol...
• Taken for 6 months to 1 year
• August 3, 2018

For Ulcerative Colitis "It worked for me initially but then stopped working. I didn't really notice any side effects. Have been on 4 pills daily but will need to be switch to something else. I was getting my medication shipped free to my house through the manufacturer. If you qualify for their program you get approved within 2 days."

• Bloated
• Taken for 2 to 5 years
• June 25, 2015

For Ulcerative Colitis, Active "I loved this medication when I was first diagnosed because I was feeling better immediately and everything cleared up 2 weeks in. I have been on this medication for almost 2 years now and I have gained 30lbs and when I am on highest dose of medication I get painful acne! I never had acne as a teen. I also feel bloated all the time and think Lialda makes me retain water. I forgot to take my pills once and the UC flare came roaring back within a day or two. My hair is also thinner :/ Did not fall out just thinned. Dont enjoy the symptoms, but I do appreciate that it does work!"

• Lorelei
• Taken for 6 months to 1 year
• January 6, 2017

For Ulcerative Colitis "After years of being told I had IBS-D and it was all in my head, I was finally diagnosed as having UC. I was so sick at that point I was considering going on disability. After two weeks of Lialda, I started to improve and soon could live somewhat of a normal life, although with a very restricted diet. A routine blood test 11 months later showed that my kidneys had been damaged by this anti-inflammatory. I got off Lialda immediately but four months later my creatinine level is still too high. I never had any kidney trouble before taking Lialda."

• MS wo...
• Taken for 2 to 5 years
• March 9, 2013

For Ulcerative Colitis, Active "My daughter takes Lialda for sever Ulcerative Colitis, if the cost is a problem talk with your doctor for a discount card through the company when added to your insurance it only cost about $10 with my insurance only its $40 if no insurance I believe its about $40 a month not sure, doesn't hurt to check out. The card is good for a year and you have to call to renew it at no cost. She started taking 4 pills a day and last summer her doctor dropped her down to 1. Since then over a period of 5 months its back with a vengeance severe bleeding and pain."

• Anonymous
• November 30, 2008

For Ulcerative Colitis, Active "After one year of fairly significant ulcerative colitis symptoms, I began taking Lialda. It began working almost immediately. Within a week I started feeling like my old self again. The only changes I've noticed (unsure if they are side effects or new problems??) are tingling in my legs (like restless leg syndrome), sinus issues, sore throat and trouble falling asleep. "

• Anonymous
• Taken for 2 to 5 years
• November 27, 2012

For Ulcerative Proctitis "Before trying Lialda, I was taking Canasa which was extremely helpful, however, it is a suppository. That was not pleasant, especially if I was going to have to continue taking that medication for the rest of my life! My doctor mentioned Lialda so I started taking it. It has been just as effective as Canasa for me and I have not had a flare up in almost 3 years!"

• Packer...
• March 29, 2008

For Ulcerative Colitis, Active "I've taken Lialda for about a month for my UC using doctor samples. It has reduced my flare ups, although it does take a while and does not work over night, it seems to be working for me. I want to continue taking Lialda and have a perscription from my doctor but can't seem to find a pharmacy that carries it. My overall rating of Lialda is high because it was working, atleast for me. I would suggest finding out if you can get LIalda in your area before consideration."

• Oflair
• March 25, 2016

For Ulcerative Colitis, Active "I have been on lialda for almost a month and take 1200 mg twice a day. Has helped but my hair is falling out and I hope it stops soon. I also can't sleep. I am awake until 3AM and then will doze for about 45 minutes. I like the medication but not sleeping is a real pain."

• MoreK...
• Taken for 10 years or more
• November 27, 2020

For Inflammatory Bowel Disease "Went through a few frightening episodes of what I thought was lots of blood in urine. Had a ridiculously long and frightful work-up (cultures, cystoscopy with dye under general anesthesia) to rule out infection and cancer. Nothing was ever found. Happened again 2 years later. This time, my husband recommended that we search the medical literature before going down the rabbit hole again. There’s a single report of mesalamine (active ingredient of Lialda) reacting with bleach to form a reddish-brown dye. Upshot: a fresh toilet cleaning bleach tablet had been added to the water closet the day before."

• txladi
• September 4, 2010

For Ulcerative Colitis, Active "I have very mild left-sided ulcerative colitis, diagnosed in 1998. I have been taking Lialda for a little over 2 years. I was really bad about taking my previous medicines due to the high number of pills and frequency that I had to take them. I've found the Lialda works TOO well for me. I cannot take the 2 pills 1 x daily. With my doctor blessing, I take 1 pill ever 3 days, and my ulcerative colitis stays under control with no side effects that others have spoken of (and this is from a migraine and seasonal allergy patient.) This medicine is the BEST."