Reblozyl for Myelodysplastic Syndrome User Reviews
- juu...
- Taken for 6 months to 1 year
- June 22, 2023
"Incredible results. Initially, the low dose was every 3 weeks, extended to 6 weeks with stable hemoglobin levels. Light side effects, although more nuanced after 7 months of the treatment, it seems. I am seeking information about the duration of the side effects and the possible increase over time."
- Jim...
- Taken for 1 to 6 months
- March 17, 2025
"It seems to be working, as my hemoglobin numbers and RBC are improving. Lots of side effects, though. I have the following: increased weight (rapid) and blood pressure (fluctuates), fatigue at times, dizziness at times, muscle, bone, and joint pain much of the time, and some edema in lower extremities."
- Mar...
- Taken for 1 to 6 months
- December 15, 2023
"The side effects are kicking my butt, but hemoglobin is going up with each 3-week shot! Received the 4th dose of shots but have no stamina at all!"
- Mel...
- March 12, 2024
"This drug, when added to my treatment, gave me my life back. Only have to go to Moffitt for treatment every 12 weeks! No more blood transfusions or being hospitalized."
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Dacogen
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Inqovi
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Rytelo
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Onureg
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Cedazuridine/decitabine
Cedazuridine/decitabine is used for myelodysplastic syndrome
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Decitabine is used for acute myeloid leukemia, myelodysplastic syndrome
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"Hemoglobin went up, but I developed a skin rash, very itchy, bumpy skin on jawline, chest, arms, abdomen. Nipples were irritated. Use anti-itch creams. Works a little bit, but comes back. Feel tired, fatigue, and foggy brain. Short of breath."