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Luspatercept for Myelodysplastic Syndrome User Reviews

Brand names: Reblozyl

Rating: 8.0

Luspatercept has an average rating of 8.0 out of 10 from a total of 8 reviews for the treatment of myelodysplastic syndrome. 63% of reviewers reported a positive experience, while 0% reported a negative experience.

10
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25%
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13%
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  • Jua...
  • Taken for 1 to 6 months
  • October 5, 2024

Luspatercept "Hemoglobin went up, but I developed a skin rash, very itchy, bumpy skin on jawline, chest, arms, abdomen. Nipples were irritated. Use anti-itch creams. Works a little bit, but comes back. Feel tired, fatigue, and foggy brain. Short of breath."

8 / 10
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6 Report
  • juu...
  • Taken for 6 months to 1 year
  • June 22, 2023

Luspatercept "Incredible results. Initially, the low dose was every 3 weeks, extended to 6 weeks with stable hemoglobin levels. Light side effects, although more nuanced after 7 months of the treatment, it seems. I am seeking information about the duration of the side effects and the possible increase over time."

10 / 10
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14 Report
  • Jim...
  • Taken for 1 to 6 months
  • March 17, 2025

Luspatercept "It seems to be working, as my hemoglobin numbers and RBC are improving. Lots of side effects, though. I have the following: increased weight (rapid) and blood pressure (fluctuates), fatigue at times, dizziness at times, muscle, bone, and joint pain much of the time, and some edema in lower extremities."

7 / 10
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0 Report
  • Mar...
  • Taken for 1 to 6 months
  • December 15, 2023

Luspatercept "The side effects are kicking my butt, but hemoglobin is going up with each 3-week shot! Received the 4th dose of shots but have no stamina at all!"

10 / 10
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12 Report
  • Mel...
  • March 12, 2024

Luspatercept "This drug, when added to my treatment, gave me my life back. Only have to go to Moffitt for treatment every 12 weeks! No more blood transfusions or being hospitalized."

10 / 10
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6 Report

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  • Anonymous
  • Taken for 1 to 6 months
  • December 23, 2023

"Noted cough and joint pain during treatment, no other symptoms."

8 / 10
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1 Report
  • LSR...
  • Taken for 1 to 6 months
  • November 8, 2023

"Neck and back of head pain continually. Headache. Hemoglobin went up, but can’t stand the back of head and neck pain."

6 / 10
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1 Report
  • Ela...
  • Taken for 6 months to 1 year
  • January 20, 2025

"Results not consistent. In the beginning, blood count went up for a few months. However, later it began to drop. Similar to the other meds in the past."

5 / 10
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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.

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