Luspatercept for Myelodysplastic Syndrome User Reviews

• Jua...
• Taken for 1 to 6 months
• October 5, 2024

Luspatercept "Hemoglobin went up, but I developed a skin rash, very itchy, bumpy skin on jawline, chest, arms, abdomen. Nipples were irritated. Use anti-itch creams. Works a little bit, but comes back. Feel tired, fatigue, and foggy brain. Short of breath."

• juu...
• Taken for 6 months to 1 year
• June 22, 2023

Luspatercept "Incredible results. Initially, the low dose was every 3 weeks, extended to 6 weeks with stable hemoglobin levels. Light side effects, although more nuanced after 7 months of the treatment, it seems. I am seeking information about the duration of the side effects and the possible increase over time."

• Jim...
• Taken for 1 to 6 months
• March 17, 2025

Luspatercept "It seems to be working, as my hemoglobin numbers and RBC are improving. Lots of side effects, though. I have the following: increased weight (rapid) and blood pressure (fluctuates), fatigue at times, dizziness at times, muscle, bone, and joint pain much of the time, and some edema in lower extremities."

• MDS...
• Taken for 1 to 6 months
• May 15, 2025

"Receive an injection of the generic name of this product, 'Luspatercept,' every 3 weeks. Do not recall right now the quantity of cc's in the last injection. I know my 'Hematologist-Oncologist' has raised the amount of the cc's in approximately the last 3 injections. I began the Luspatercept treatments of every 3 weeks injection approximately in mid-January to the 1st of February of 2025. For quite some time up until the last injection, I do not believe I noticed any changes in my MDS level. That said, since my last injection of this approximately 2 weeks ago, I feel overall a little better."

• Mar...
• Taken for 1 to 6 months
• December 15, 2023

Luspatercept "The side effects are kicking my butt, but hemoglobin is going up with each 3-week shot! Received the 4th dose of shots but have no stamina at all!"

• Mel...
• March 12, 2024

Luspatercept "This drug, when added to my treatment, gave me my life back. Only have to go to Moffitt for treatment every 12 weeks! No more blood transfusions or being hospitalized."

• Anonymous
• Taken for 1 to 6 months
• December 23, 2023

"Noted cough and joint pain during treatment, no other symptoms."

• LSR...
• Taken for 1 to 6 months
• November 8, 2023

"Neck and back of head pain continually. Headache. Hemoglobin went up, but can’t stand the back of head and neck pain."

• Ela...
• Taken for 6 months to 1 year
• January 20, 2025

"Results not consistent. In the beginning, blood count went up for a few months. However, later it began to drop. Similar to the other meds in the past."