Luspatercept User Reviews & Ratings

• Jua...
• Taken for 1 to 6 months
• October 5, 2024

Luspatercept for Myelodysplastic Syndrome "Hemoglobin went up, but I developed a skin rash, very itchy, bumpy skin on jawline, chest, arms, abdomen. Nipples were irritated. Use anti-itch creams. Works a little bit, but comes back. Feel tired, fatigue, and foggy brain. Short of breath."

• juu...
• Taken for 6 months to 1 year
• June 22, 2023

Luspatercept for Myelodysplastic Syndrome "Incredible results. Initially, the low dose was every 3 weeks, extended to 6 weeks with stable hemoglobin levels. Light side effects, although more nuanced after 7 months of the treatment, it seems. I am seeking information about the duration of the side effects and the possible increase over time."

• lin...
• Taken for 1 to 2 years
• February 24, 2023

Luspatercept for Anemia "I have sideroblastic anemia, and my doctor tried many medicines to get my hemoglobin to an acceptable level. After my first shot of Reblozyl, my hemoglobin gave me good numbers. I have blood work done every 3 weeks, and if my hemoglobin is below 11.5, I get a shot. If it's above 11.5, I do not. The last time I had a shot was 3 months ago, but this week I had to get one. My doctor is very pleased with Reblozyl, and so am I."

• Jim...
• Taken for 1 to 6 months
• March 17, 2025

Luspatercept for Myelodysplastic Syndrome "It seems to be working, as my hemoglobin numbers and RBC are improving. Lots of side effects, though. I have the following: increased weight (rapid) and blood pressure (fluctuates), fatigue at times, dizziness at times, muscle, bone, and joint pain much of the time, and some edema in lower extremities."

• MDS...
• Taken for 1 to 6 months
• May 15, 2025

For Myelodysplastic Syndrome "Receive an injection of the generic name of this product, 'Luspatercept,' every 3 weeks. Do not recall right now the quantity of cc's in the last injection. I know my 'Hematologist-Oncologist' has raised the amount of the cc's in approximately the last 3 injections. I began the Luspatercept treatments of every 3 weeks injection approximately in mid-January to the 1st of February of 2025. For quite some time up until the last injection, I do not believe I noticed any changes in my MDS level. That said, since my last injection of this approximately 2 weeks ago, I feel overall a little better."

• Mar...
• Taken for 1 to 6 months
• December 15, 2023

Luspatercept for Myelodysplastic Syndrome "The side effects are kicking my butt, but hemoglobin is going up with each 3-week shot! Received the 4th dose of shots but have no stamina at all!"

• Mel...
• March 12, 2024

Luspatercept for Myelodysplastic Syndrome "This drug, when added to my treatment, gave me my life back. Only have to go to Moffitt for treatment every 12 weeks! No more blood transfusions or being hospitalized."

• Anonymous
• Taken for 1 to 6 months
• December 23, 2023

For Myelodysplastic Syndrome "Noted cough and joint pain during treatment, no other symptoms."

• LSR...
• Taken for 1 to 6 months
• November 8, 2023

For Myelodysplastic Syndrome "Neck and back of head pain continually. Headache. Hemoglobin went up, but can’t stand the back of head and neck pain."

• Ela...
• Taken for 6 months to 1 year
• January 20, 2025

For Myelodysplastic Syndrome "Results not consistent. In the beginning, blood count went up for a few months. However, later it began to drop. Similar to the other meds in the past."