Everolimus and Nausea: What Users Say

• Lif...
• Taken for 1 to 6 months
• March 15, 2016

Everolimus for Breast Cancer "Although the medication did effectively treat my cancer, the side effects were so severe that I decided to discontinue use of the drug and try an alternate treatment. Skin rash started on my hands initially and spread to my entire body, causing severe itching and scratching, which led to something looking like opened bug bites all over. Severe gum irritation, described by my dental hygienist as your gums are flapping in the wind, also red swollen gums, which caused me to be unable to eat anything not soft. Lost 10 lbs the first two months. Also, projectile vomiting, diarrhea, and nausea. At three months, I found it had made me diabetic and raised my triglycerides to over 500. That's when I opted to stop treatment."

• Vic...
• Taken for 6 months to 1 year
• December 20, 2019

Everolimus for Renal Cell Carcinoma "Everolimus was part of my first-line treatment. I had to dose-reduce twice. I was very fatigued, and the nausea and diarrhea put me in the ER four times. I did have a partial response, but I had a very poor quality of life. I was dependent on an electric wheelchair and was unable to do daily tasks. My hair thinned, I lost a lot of weight. My appetite was non-existent, and I got mouth sores. But it did work for a while, so I would do it again."

• BOB...
• Taken for 1 to 6 months
• February 1, 2023

For Neuroendocrine Tumors "I was prescribed to take this medication and had terrible side effects. The initial side effects of nausea and diarrhea were manageable, however, the rest of the side effects were not. I had a bloody nose that continued after using a humidifier and mupirocin, then I developed a large rash on my abdomen and waist that was like a mild sunburn with peeling. I also had a weight loss of 8-10 pounds and a loss of muscle mass, which was not ideal as I am already underweight. Despite the side effects, the medication was helping ease the skin flushing associated with carcinoid. I will not be continuing this medication as the side effects were too extreme for me."