Everolimus and Hair Loss: What Users Say

• Vic...
• Taken for 6 months to 1 year
• December 20, 2019

Everolimus for Renal Cell Carcinoma "Everolimus was part of my first-line treatment. I had to dose-reduce twice. I was very fatigued, and the nausea and diarrhea put me in the ER four times. I did have a partial response, but I had a very poor quality of life. I was dependent on an electric wheelchair and was unable to do daily tasks. My hair thinned, I lost a lot of weight. My appetite was non-existent, and I got mouth sores. But it did work for a while, so I would do it again."

• Lau...
• Taken for 1 to 6 months
• May 9, 2022

For Organ Transplant, Rejection Prophylaxis "I was prescribed 3 mg/day, but after 10 days, I was in such a down with the immunity, my mouth full of sores and my joints in pain, also an acute depression state and hair falling, that I had to go down to 1 mg. The same symptoms continued, especially extreme fatigue and sleepiness, so now I take just 0.5 every 3 days. I feel much better, and it works for my condition. I feel that I could take it even once a week. We'll see. Good luck to everybody."

• Jul...
• Taken for 6 months to 1 year
• April 1, 2022

"I suffer from chronic allergies to almost everything since I was 32, 8 years ago, a horrible disease that I developed after being pregnant. Mast cell activation disorder (MCAD) is the name of the condition. For the treatment, a mix of desloratadine, bupropion, and curcumin to be stable. But now I also try this Everolimus; in the first 2.5 months at 1 mg/day, I had low immunity, mouth sores, and a flare of candida, also some acne and itches, a bit of hair fall and munchies, but I reduced the dose to 1 mg/2 days and got better, almost no sign of allergic reaction, full energy, normal life. So the reactions are very dependent on the dose and length of the use period. Of course, at high doses, the reactions could be violent. I believe that if it is not an urgency, the initial dose should be pretty low, like 1 mg/day and increased with time if needed. Good luck to everyone."