Danazol for Angioedema User Reviews

• Swe...
• July 18, 2010

"This medicine has helped me so much for my hereditary angioedema! After taking this, it has stopped all episodes. I can live a normal life and not have the fear of having a swelling attack if I put too much strain on my body. I know it's working because if I miss a dose, I can feel an attack coming along. Since day one of me taking Danazol, I have not had any problems. I must warn that this drug does not correct the problem, it only stops episodes. There are some side effects that are a little uncomfortable. It has caused me to have an irregular period. Overall, I give this medicine a 10 out of 10! If it wasn't for this medicine, I would be fearing every morning when I wake up if I am going to have an episode."

• Her...
• Taken for 5 to 10 years
• September 23, 2017

"I've been taking danazol for hereditary angioedema (HAE) since Winstrol was discontinued. The medication works beautifully to reduce the frequency and severity of attacks, but the side effects are immediately evident (after my second dose, I remember telling my family that this drug is going to kill me before the HAE does). Long-term side effects have included: brain fog, severe memory problems, severe cognitive decline (especially in language processing), tiredness, weight gain (40 lbs. so far), and mild masculinization. I haven't had a period in more than 5 years. This cocktail of side effects has taken me from an aggressive and quick-tempered type A to a laid-back, very relaxed couch potato. That's great for my family, but not so great for work."

• Wil...
• Taken for 10 years or more
• October 30, 2023

"This pharmaceutical has been used for the last 15 years to control angioedema. It has served me well. In the event of a dental procedure, which can precipitate an attack, I normally double up on my dosage 3-4 days ahead of time, which has prevented attacks induced by dental procedures. I do have muscle aches but am not sure if this is a side effect or just from getting older."