Hi! I just started the long wind up dosage of Topamax last night. So far, so good haha! I have read mostly positive reviews from the folks who are using it for weight loss, and mostly negative reviews from the ones who were prescribed the drug for migraines. I see a connection. MY goal has always been to stop obsessing over food. While I am not clinically overweight now, I have the ability to gain weight quickly. I recently lost the 80 pounds I gained when I stopped smoking in 2007, by using Phentermine. I have been at a plateau unable to lose anything for the past 3 months, so my doctor took me off of it. Hence, her new idea is to try Topamax. I'm pretty excited, but also a bit anxious. I have depressive/anxiety as well, and take Fluoxitine (Prozac) to keep me feeling normal. I am hopeful I will be successful on Topamax and lose my last 20 pounds and keep it off.
Topamax/Topiramate Users? Here's my story - what's yours?
- Asked
- 21 Mar 2012 by cupcakesbycandi
- Updated
- 18 Mar 2018
- Topics
- topamax, obesity, smoking cessation, topiramate, weight, dosage
Responses (11)
All the best. I briefly used Topamax for migraine prevention ... it helped and I also found that I lost weight, which was great.
I've used Topamax several times in the past, and my husband uses it now. Neither one of us has had luck losing weight with it. Sorry :( , but everyone is different. My weight problems are not from over eating, so I never thought that it would help me with the fluid, but my hubby has about 20 extra pounds on him from a car accident, and although it helps his migraines tremendously, he hasn't lost weight. good luck though!!
Hello well I started this medication about five weeks ago 25 mg working. Up to 100mg a day and alredy went from 152 down to 138 seems a lot people see a difference but I don't see a huge difference and I am 5'3. I started this medication for migranes and I feel WAY!! Better and no hairloss just regular everyday girl thing. HAVE IN MIND PLENTY COLD WATER ALL DAY LONG. You do that and am sure you'll see weight shed. Well good luck shedding those pounds :).
Whoa! 5 weeks??? I have lost 2 pounds only :-( I have been very thirsty so grateful for that - it is very easy to drink lots of water. I still have a problem craving sweets. So while I was hoping it would allow me to focus on other things, I am still eating what I shouldn't. Yesterday at my 4 week checkup I was increased to my normal dosage of 200 mg. but I have to do the wind up of 150 (100 in the am, 50 in the pm) for one week). I hope to see a difference this week! thanks!!!
My story ;( I had viral meningitis and have migraines as a side effect since feb. this year! It's been a battle. I started Topamax twp weeks ago and I am on 50mg def have the taste change and decrease app but don't see weight change. Migraines have gone down for sure which is a great plus!!! It's great to hear othe peoples story's ;) good luck to y'all ;)
I was the migraine queen. I thought I was alone in the world with no end in sight. Then my shrink put me on Topomax as a mood stabilizer. Now at that times I was still under the care of a Nuerologist,
In five months I lost 130 pounds and never had a headache let alone a migraine. A year later my Nuerologist happened to come in my office and looked at me for a minute... then she realized who I was. I never went back to see her after I went on Topomax:) I explained what had happened and she smiled from ear to ear. She then explained to me that she had just begun treating her patients with it as well.
Since then... 2003 I have had maybe 4 breakthru headache/migraines. I have been able to treat them at home with motrin and dark room.
I love this med.
Peace:)
So happy to read this... I am suffering from migraines, fatigue and depression and it's so good to hear that it worked. Just one question: do you still take it or is it a treatment for a one - two years and then you stop it gradually? Thanks in advance for your answer.
Wow. reading all this drug Topiramate can cause, worries me, was just prescribe this today, by a pain management Doctor, 25 mg. I have had terrible pinched nerve pain from a bulging disk in my lower lumbar,encroaching on a nerve that can be felt in my hip!!! I just had 2 sessions of transdermal epideral steroid injections and still no relief. So the Dr. wanted to try me on a non narcotic drug, Topiramate, sounds pretty narcotic to me, why would he say that? Unless maybe in comparison to Viox? But I too, am on Effexor 75mg for Panic Attacks/Anxiety. So I am concerned... there is nothing worse than those Panic Attacks!!! I need to lose 20 lbs to be at a healthy weight, so this would be a plus for me. But the memory thing, loss for words, that's going to be weird, I hope I don't get that and look like some idiot out there in this cruel world!!! Best of luck to all of us out there!!!
Ditto! Inspector Curuso!
I was just prescribed topamax and starting searching blogs to get a better feel for what I can expect. It took a few minutes then finally found your response about the epidural, which I just had couple weeks ago after rounds of facet injections for ongoing neck, back and arm pain. Epidural hasn't worked and this pain is truly getting on my NERVES! So next topamax and prayer.
Let me know how it works for you.
Lifeless in Tennessee
I was on topamax for 2 years, it helped my migraines but never lost any weight at all. It does make you loose your train of thought and can't get the words out. It caused my face to get numb and tingly only at 50 mg so I had to stay at 25mg then I got fed up with feeling like a zombie. I could be watching tv and couldn't tell you what I was watching so I quit. I'm thinking about restarting it though because my migraines are back and I've been living on Tylenol which does nothing for them. I too have anxiety and panic attacks which started 8 months ago due to vertigo attacks.
I just started topamax 25 mg at night for weight loss a week ago today and I've lost 6lbs. Only side effects I've noticed was that I'm very tired but that nothing, I'm just excited to be losing weight with out the jitters!! I've been watching for other side effects thank God nothing serious so far.. Will update next week
Hello, so I have seizures, bipolar and ptsd, and my psychologist decided to put me on Topamax as off label for ptsd. I started with a little numbness in my legs and arms that would come and go, it wasn't bad and I expected the side effect. I never had a loss for words lol I'm just a constant debater. No siezures in a year since starting and I'm 5'8" started at 182 lbs and I'm down to a healthy weight of 130lbs... I feel great, my children see a difference in me and my husband and I are best friends again! Topamax is a great drug for me... In my opinion
Can I ask, what is your current dosage, how long did it take for you to be on that full dose? Were you on another med prior? I was on another med for seizures, so waiting for the Topamax be the only med in my system was about 7 weeks. weight loss is slow about 5lbs once on it solo. How long did it for your weight to start coming off? I'm finally at 175mg. Wonder if I need a higher dose.
Almost 2 weeks ago now my doctor started me on topiramate to help with weight loss and to tame alcohol. (half bottle wine a night, so not bad, but not great) Anyhow... I am LOVING THIS DRUG. I haven't even stepped on a scale yet. So what has it done for me. My severe ongoing long-term anxiety that was managed by a combination of will-power and anti-depressants has been STOMPED, in exchange for ONE sacrifice: fizzy drinks. They are now all flat. Beer. Cola. You name it. Its flat. Tastes the same, but it tastes flat. No tingles in my fingers as others have reported. No other side effects for me at all. I will admit I also do not feel the call to eat as much as I used to, so it is helping there. I also do not feel the need to drink as much as I used to, but I still have 1/5 of a bottle (150 mL) of red wine a night, on average.
I was put on phentermine and topiramate by my PCP for weight loss. I’ve lost 31 pounds in a little over a month. I’m 65 years old, was a huge over eater, loved sweets and carbs. My doctor fussed at me when I went back after being on meds for not quite 3 weeks and had lost 21 pounds! Said I was losing too fast and needed to eat more. The meds took away my appetite as well as my carb and sweet cravings. He said I could stay on the topiramate indefinitely but would need to stop the phentermine but I asked him if I might be able to take the phentermine every other month as I thought that is what gives me the energy to get stuff done around the house instead of sitting watching tv. He said he’d think about it but he really thinks the topiramate is what’s working for my weight loss. I also try to walk at least a half mile on the treadmill each day and I don’t eat very much.

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Thanks! Did you also use for migraines as well? I have been off of phentermine for 3 days now and cannot stop craving everything in site. I hope I can start with the regular dosing next week. I don't feel like I'm taking anything right now.
Yes, they did give it to me for migraines. I have post traumatic migraines, which are a headache of a different color. I must have tried topiramate six separate times, sometimes staying on it for years, but it just didn't help my migraines.