My toes are clenched up and my doctor had never seen anything like it. Anyone have any ideas?
- 28 Sep 2013 by sara12345
- 22 December 2013
- pain, baclofen, sleep, doctor, nerve block
Anyone had this problem or have any ideas to treat it? My inner 3 toes are clenched up 24/7. It hurts so badly that it makes it hard to sleep. It makes it difficult to walk. Also the clenching is so bad that my big toe constantly overlaps on top of the toe next to it. My leg is starting to hurt more as well, probably because of the strange walking and my whole leg is tensing up from the pain. It feels difficult to tolerate it.
Anyone know any remedies? My doctor didn't really know what to do, but sent me to physical therapy which the therapist wasn't sure she could fix it. The doctor also increased my Baclofen which is a muscle relaxant and gave me Lidoderm patches. Would a nerve block injection help it? It is on the same side as my stroke which was 5 years ago.
The toes have been bothering me for the past several weeks, but suddenly got really bad this week. No numbness or tingling. No, I have not injured my foot at all. So why does the doctor think I need x-rays? I've had way too much radiation. Thanks for any help.
Ouch, ouch, ouch! You need a complete blood work up. Short on calcium, vitamin D and possible potassium. Walk as best you can as it will keep the feet from clenching permanently. I get severe hand clenching when I have neglected calcium and didn't know my vitamin D was low. I keep working the muscles to free them up. My doctor says it is electrolytes and holding the same position too long. Drink tons of water and use chewable calcium to get in your system quicker. Be sure you drink milk with calcium or some other high calcium food. It will hurt, but these kinds of conditions can be serious.
By the way, of it were me I would get a doctor who has been out in the world a bit more. If he says a bar of soap at the end of the bed, I would report the guy. My doctor diagnosed over the phone. I had follow up blood work the next day. Let me know what they find. Feeling your pain, ouch! Karen
My dear friend,
I have that problem with my feet alot & it hurts really bad. Did you talk to your pain mngmnt dr. about this?
Also have you noticed by increasing your Baclofen if it eases the spasms up & how much are you taking?
My primary dr. also did xrays at first because he thought that it could possibly the bones were growing into a awkward position. And the only two that were not were the toe next to the big toes which have been hammer toe. They did surgery on the hammer toe on one foot but it did not help the cramping up. My PM dr. said it was due the FM & the muscle spasms so now I massage my entire foot & especially my toes as soon as I start to feel the spasms before they get horrible. Also I have a water foot massager that has the heat option also & I put Epsom salt in the water & it helps loosen the muscles up & then follow up with some gentle stretching of your entire foot. I constantly stretch my toes to help so they don't curl up. Oh & by the way I apologize for not answering your email but I am working on it now & I explain why.
I get the toe problem too but never 24/7. That's terrible. Mine is usually from low potassium. Like Karen said get blood work done. I do calf stretches barefooted to help get toes stretched. Good luck and keep asking for ideas.
Hi Sweet Sara,
OMGosh! That sounds painful. I have to agree with the others that you need to have blood work to check your calcium, potassium and Vitamin levels. Something is causing the tendons in those toes to spasm. One of those foot baths with heat would probably help. Frequent massage of that foot would help to loosen the muscles/tendons, as well. At first I thought about an arthritic condition, but I'm sure you would recognize that. I also thought about the possibility of a small bleed in your brain, but more than just 3 toes would be involved with that. So, that leaves calcium, potassium and vitamins, or maybe pinching of a nerve in your ankle. My dear, you did not give us an easy question! I wonder if Botox injections might help loosen the tendons? I wish I had more to offer to you. Please keep us posted on this. I hope you and your doctor can find the reason for this problem and resolve it.
Hugs to you,
Hi, just a thought, maybe discuss with your doctor the possibility of Charcot-Marie-Tooth disease... It affects the feet. My uncle has it. You can access information from Wikipedia
You need to see a podiatrist. You could have joint damage that is causing the toes to shift. I've got the that. Only a podiatrist will be able to tell you if its that or something muscular and he can treat whatever it is.
OH Sara! How painful!! I've had spasms in my toes like this, but they go away after a little while.
I must agree with the others, blood work! See if you are deficient in something? I hope that's all it is.
Dear Sara, I have never had the cramping in my feet but I do have feet going numb. Occasionally I do have my facial muscles cramping up (not very pretty ). I'm curious how many of you out there have either been dianosed with MS or have symptoms of MS. When I was told I had it and was prescribed Gabapentin my symptoms (even my BMS) seemed to get a lot better. I've been to so many doctors for the BMS that I discovered how to weed out the bad ones pretty quick. You have my prayers going out to you and let us know how it goes.
An update to you all. My best bet is to get Botox injections in these toes. All the doctors think it is most likely a post-stroke response. Yes, it's been 5 years, but you're never out of the woods with new problems arising from strokes, as I've been finding out. It has to be done on the exact same day as my migraine Botox injections. And that's next week. How very fortunate for me.
Between my neurologist and my pcp doctor, I got about 30 blood tests with about 6 vials of blood. Not just the calcium, potassium, all the vitamins, but my kidneys, TSH, heavy metals and stuff I've never heard of. All came back normal, except of course for my kidney failure. The x-rays of my foot also came back normal.
Also my neurologist recommended a paraffin bath, like a hot wax to put on my toes to try to loosen them up. Also both my neurologist and pcp sent me to a podiatrist who I can't get in to see until mid-November. The PT hasn't helped at all and in fact I think makes it worse.
Thanks again to you all. I did greatly appreciate all of your helpful comments.
Hi Sara, I just had to pop in & give you my take on this also, We are 'old' friends, (Mary) & also have some news for you about your bones. I have friended you, & hope you will do the same so I can tell you about a site I found which involves NO biophosphates for you! As far as the muscle type cramps with your toes, Karen gave you great info, but also vit. C & magnesium will help also with this problem. I take 1000 mg of vit. C & 500 of magnesium. I would wake up during the night every night with the same problem, but once I got on the right vitamin supplements it stopped. If I forget to take it daily, I get them again. Nothing like a great, uninterrupted night of sleep! Don't forget to friend me on this name. Take care... M
Hello sara... I was wondering if Parkinson's disease had been ruled out??? Clenching is a common factor and botox injections can help. I hope you get more answers along your journey than questions...
Blessings to you for peace and healing that brings you needed relief from suffering...
hi Sara,try putting a bar of soap between your feet or under your sheets. it sounds crazy but it works... pete
Sara! This has started with me, too! My toes cramp up so badly, yet mostly at night. Do you notice that if you go to a higher heal or a different shoe the cramps get way WORSE? Mine do. I don't know if this is a vitamin deficiency or what, but it certainly does keep one from sleeping! I keep awakening at about 3am with these cramps in my feet/toes, ugh, I'm an idiot from lack of sleep!!
Have you had blood work recently? You might want to ask your doc to do that, see if it's vit related.
You're not alone, Sara, I'm right here, having toe contortions and cramps that wake me from a dead sleep!
As soon as I started using Baclofen I got severe cramps in my calves and toes at night, as well as insomnia. (My toes curled down and were very painful.) Went away when I didn't take the Baclofen. It's supposed to have the opposite effect from this! The doctor never suspected this reaction.
Hi I'm new on this site saw your post & it sounds just like me! I have chronic severe Dystonia in my lower body form waist to toes. Toes curl spasms cramps all very bad. My tests all showed up fine too. Only a Nero tht has worked with this before will know what t is. I now have a baclophen pump and its calmed down quite a bit. I've also had X-rays show up fine too. NO it's not fun and I have had storms that sent me to ER 2 times before the pump. When the Dystonia is bad I can't walk at all. I do hope you get it figured out and soon!
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