I have had crohn's disease for the past 30yrs. December 2012 had a VERY bad "flare-up" and usual Rx that worked in the past (i.e. prednisone) have not had an impact on the crohn's unless I am on 60+ mg dose per day. Doctor recommended REMICADE..had my 1st treatment last week and I have had no negative side effects. I am a bit apprehensive about the next few treatments as I have read only BAD side effects and no one with a good experience..anyone out there who is currently being treated for Crohn's with Remicade and willing to share your experience?? Thank you
Remicade-anyone have a GOOD experience?
Question posted by cashmoney on 23 April 2013
Last updated on 10 June 2020 by BarryD1
I have had v eye good results for this last 8 months. Started October 2019. No side effects except being very tired after first infusion. But none after that. I get infusions every eight Weeks. I’ve noticed that I start getting bouts of RA before my next infusion. After my fourth infusion it started a week prior to next infusion. But it’s sixth infusion the R A was active three weeks prior.
I had 6 infusions so far I'm feeling a lot better been in a flare up for 2 years,but after in fusions things are fetter better and my right ankle/ foot swells and now I can't sleep well but tie seems too better a least I can go outside Now!!! LOL but no more side effects good is out weigh bad.
I have been on Remicade for 3 years and feel like a new person. When I first started I felt some what better but still had flare-ups to the point of having another resection. After the surgery I feel as though I have been cured but I know it's the Remicade. I can now live a normal life because of the Remicade. One down side to it is; I am having lots of cancers removed from my arms and legs. My brother is a Crohn's Disease patient also and has had many surgeries (we both have about 8 feet of intestine left. Our Mother had Crohn's Disease also) My brother is also having problems with cancers on his arms and face. I think until there is something better, I'm sticking with the Remicade. I live a normal life and hold down a full time job.
I too have had crohns-colitis for many years, although they didnt know much about it then. Ijust finished my 3rd. remicade infusion last week. The only effect I had was swelling of m y feet and ankles, and too be honest i am not sure it was the remicade as I am a smoker and swelling sometimes happens.
I am sorry to say that the infusions dont seem to be helping much. The doc added prednisone with it this last time as pred is usually the only thing that helps, but its side effects have now gotten bad.
We decided to try the new med. called Uceris. Only been out a few months.. The remicade is Very expensive even though I had them done at home. Uceris is expensive too, but not as bad. I didnt expect miracles, but I did hope.
I have read that it has worked for other people after at least 2 infusions, so doesnt hurt to give it a chance! Hope it works for you. Please keep in touch with us and let us know.
cashmoney, I am not on Remicade but Humira I have read alot about he 2 meds. I do know that more ppl have reactions to Remicade cuz of the protien it is made of than Humira. Remicade is made from a mouse protien and Humira is made from a man made protien that is closer to a human protien. I have heard alot from ppl on Youtube that say Remicade has worked wonders for them. You might want to look up a Youtuber by the name of Sara Ringer she is a advocate and talks alot about Remicade and things that she does that helps her with the infusions. Hope this help and check out Sara you might like what u hear from her.
- Remicade uses and safety info
- Remicade information for Healthcare Professionals (includes dosage details)
- Side effects of Remicade (detailed)
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