I am due to start my first shot but am hesitant and afraid as there are some people with such bad reactions. I may be okay or at best, have bearable side effects but what if the side effects are really bad and last for the duration of 6 months and I can't lead a normal life. My doctor is mad that I am researching this online and not simply listening to him.
Prolia 6 monthly shots to treat osteoporosis?
Question posted by Hahogan on 19 June 2014
Last updated on 12 May 2019 by tammyhughes
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4 Answers
tammyhughes
13 May 2019
where do I take the short
bwhitaker5978
19 March 2015
I have had 1 shot with no side effects. I thought the injection would be a huge vile of prolia but it was small with no pain or bruising around injection area.
sara12345
21 June 2014
First of all, I would be leery of a doctor who is mad about you researching about it. I go in to all my doctors with information that I have researched. Prolia is a relatively new drug that has not been on the market very long, so the problems with it may not be fully realized. If I had only had bad side effects for 6 months, I would have been thrilled. My bad side effects appear to be permanent and have lasted 19 months since my injection--that is inflamed skin and bone pain. I had extremely elevated parathyroid levels which fortunately went back to normal 8 months later. My long lasting side effects are not noted in the literature. I have notified the FDA about them, which if others report them, then they will add the side effects to their list. You may have no side effects or have a nightmare. Good luck with your decision.
Hahogan
21 June 2014
Precisely, no one can ever tell whether they will or will not have bad side effects. That's what I tried to explain to my dr, but he says the internet is bad and he cant't treat "fear". Other than this he is a good dr. So if I don't go on Prolia, I wonder if he will still treat me for other issues.
sara12345
22 June 2014
Your doctor is a "good" one if you do what he says? You can find another better doctor if he won't treat you for not following his recommendation. Believe me. A number of times I have not followed the advice from my doctors and they have NEVER retaliated in any way. And sometimes my doctors disagree with each other on treatment options. But no hard feelings among them when I point out that the other doctor disagreed with them.
BTW, my mother also had severe osteoporosis and never broke any bones and died at age 88. She was very careful.
I'll be very interested in what you decide. I hope that you'll let me know.
Sara
nkphillips
8 Dec 2014
I have had no side effects on Prolia. I have had 2 shots & my bone density got much better. -3.5 to -2.4 in 1 yr. I understand the side effects are very rare.
sara12345
9 Dec 2014
Yes, many people don't have side effects. I made the worst mistake of my medical life when I got the Prolia injection which has caused skin inflammation and bone pain more than 2 years after getting the injection. It hurts to sit on chairs, even soft ones and I can't pet my cats. I had petted them for 20 years before the Prolia. What a big disappointment.
Rowe6520
7 Jan 2015
I had my first shot September 2014. I have always been very active, an avid runner and a yogi for the past 7 years. Since October, I have been very achy and tired. My plantar fasciitis is accentuated. My running has completely come to a halt. Any soreness from yoga or walking is accentuated. In the mornings I can barely roll out of bed and painfully step on my feet. It takes a long time to stretch out to do yoga. I definitely am not as flexible as I was. I do believe my hair has thinned out as well. My Dexa level was at -8.6 due to past chemo treatments & daily Advair for Asthma. I sound like a mess!!! It's hard to accept my 53 year old body feeling like an 80 year old. I used to feel like a 30 year old!. Oh yeah, I was prescribed Celebrex to ease the numbing & tingling of my arms & hands.
sara12345
8 Jan 2015
I'm wondering if you may have fibromyalgia. A rheumatologist would be best to diagnose it. May I ask if you are entering menopause? Some women in my support group were active physically, but noticed changes similar to what you are describing with menopause, but not nearly as bad as you are describing it. In any case, I am sorry to hear about your difficulties and I do wish you the best in your future. Just don't give up with trying to find the answers to your condition.
Rowe6520
8 Jan 2015
Sara, thanks for reading my comment. I have to say that my periods stopped when I was on chemo at 45 years old. So I am menopausal probably. And I need the aggressive treatment. I am sure it is not as bad as it sounds... and being a baby about the achiness. I just am used to feeling very flexible and energetic most of the time.
sara12345
9 Jan 2015
I would not put down your remarks to being a baby. You should get your achiness checked out. And it could be fibromyalgia. I wish you more relief.
myriley
1 Dec 2017
I am also one who my health care professional recommended getting the Prolia shot and am worried and concerned about doing it. What is the percentage of people who get it have serious side effects? how new is the drug, and what is the cost compared to taking the pill? what are the side effects if you choose to take a pill instead? Trying to weigh out the side effects and the cost is important. Any recommendations and suggestions are appreciated. thank you
Mike13A5P
19 June 2014
Be not afraid. I have had two injections with no side effects. My endo says that none of her patients are having problems with the drug. Any drug has a potential side effect. For me Prolia is the way to go. Good luck with your decesion.
Hahogan
19 June 2014
Thanks Mike for taking the time to answer my concerns. It would be nice to have more people post positive feedback on Prolia so that people new to this will feel more at ease. There are so many people out there with the same concerns as me.
Related topics
osteoporosis, side effect, prolia
Further information
- Prolia uses and safety info
- Prolia prescribing info & package insert (for Health Professionals)
- Side effects of Prolia (detailed)
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