I am going to see a neurologist in a few days for my sciatica pain. I have had this pain for 3 years. I have bulging discs and arthritis in my spine. No one can figure out why I have pain all the way down my leg to my foot though. My last tests showed no nerve damage or pinched nerve. I am not hoping for a cure but more looking for what treatment or meds would help me more and what is causing it. Is there any questions I should ask? I almost feel hopeless like what is the point but I guess I need to keep trying.
I have nerve pain all over, my right knee which is sprained keeps throbbing w/pain. I too have nerve pain all the way down to my feet. My right leg seems to want to stay swollen, it's obvious that there's fluid in my legs but "they" say that it's not the kind you need to drain out, they assume that it's because of salt intake, my Hydrodiuril isn't really helping me. I get really stiff and can't move a lot of the time, I quit my Flexeril because of out-of-pocket cost since it's not covered by insurance. I hate needing any medication continuously. I hate all the pain and stiffness. Now I have to use scooters to get around large areas and at amusement parks, it's not bad riding instead of walking but I get "left behind" by my family who move too quickly for me.
I should see a Neurologist also but in my small area, it may mean being taken to see one 60 miles away or so, I don't drive either. That's a separate injury by itself. Good luck with your appt.
The top one on my list would be how to stop the pain. I've experienced that kind of pain off and on over my life, and no one knew why until I was diagnosed with fibromyalgia.
I'm sorry that I took over your post with my comments and questions. I don't have an answer for you, but will follow all of the answers you get. I'd love to get the same answers. I can't take most of the meds for nerve pain, but would love to just have a diagnosis --- a name to put to my pain so I don't feel like a hypochondriac! My body hurts, but the doctors don't try to find out why! I hope you get a diagnosis, lucyb!
Hello lucyb and welcome to DC. Interesting thing about pain in your legs is... if you have any kind of history of back issues (sounds like you do) doctors "assume" your leg pain is coming from somewhere in your back. I had this issue for probably 9 years. Every doctor I saw kept treating that pain with stuff related to issues with my back. Then I got a hold of a GEM of a PT who wanted a "hip" study done to rule out fractures or bone on bone grinding. Know what??? My HIPS WERE SHOT!!! Of ALL THINGS... I cried when I got that diagnosis because I was in such agony and all that was being done for me was physical therapy, hydro- and aquatherapy, injections, pills and drills and an implant that works good, too.
Instead, I needed a bilateral hip replacement leaving me without a good leg to stand on. So, I opted for the worse side first and that surgery was a year ago in February. After that healed... I didn't have the radiating pain down that leg. Is that interesting or what??? I am holding off for the other side because I don't want to lose my job. I lost my part-time job after the first surgery and was out almost 7 months. So that's the reason I am holding off on the second surgery but I am also taking PT and supplements trying to build up those ligaments and my immune system.
Has anyone done a HIP STUDY for you??? I had been having these leg pain issues since I was about 50ish years old. I don't wish that for you but if it is something that hasn't been looked at... you might want to talk with this doctor about that as a possibility. All it really takes is an X-Ray... By the way, I also have sciatica issues and when I'm having a flare... I have trouble sitting down for any length of time. I also use ice cold gel packs to help numb the pain and that does help, too.
So, just some food for thought for you. Pills don't cure anything but they sure can help the body "mend" in less agony. I just had a nerve block on either side of my tailbone this evening and am having a pretty good flare, too.
I am glad you posted here because everyone's input may just point you in the direction you need to go. It sounds like you have been through a lot already so I pray the rest of your journey is more insightful and a lot less stressful for you. Stress is an enemy on any "body".
Take good care and be well. I wish you the very, very best and hope you will post more so that we can support you along the way.
I assume you have already had an MRI and it was read by a competent ortho or neuro. The neuro will probably have you take a nerve conduction study(NCS) to determine which nerves are affected. I have had nerve root impingement from an extruded disc which was missed by the radiologist interpreting the MRI but picked up by the Physiatrist who did the NCS. Later the MRI was again read and the extruded disc was found. I have had sciatica into one foot which was eliminated in a lumbar fusion I had a year ago. In 2004 I had a microdiskectomy to eliminate sciatica I had at the time which went down to the ankle. Good luck with the Neuro. I hope he can find where the nerves are pinched.
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