I am going to see a neurologist in a few days for my sciatica pain. I have had this pain for 3 years. I have bulging discs and arthritis in my spine. No one can figure out why I have pain all the way down my leg to my foot though. My last tests showed no nerve damage or pinched nerve. I am not hoping for a cure but more looking for what treatment or meds would help me more and what is causing it. Is there any questions I should ask? I almost feel hopeless like what is the point but I guess I need to keep trying.
Neurologist for sciatica pain. What questions should I ask?
Question posted by lucyb78 on 20 Aug 2013
Last updated on 4 October 2013
5 Answers
I assume you have already had an MRI and it was read by a competent ortho or neuro. The neuro will probably have you take a nerve conduction study(NCS) to determine which nerves are affected. I have had nerve root impingement from an extruded disc which was missed by the radiologist interpreting the MRI but picked up by the Physiatrist who did the NCS. Later the MRI was again read and the extruded disc was found. I have had sciatica into one foot which was eliminated in a lumbar fusion I had a year ago. In 2004 I had a microdiskectomy to eliminate sciatica I had at the time which went down to the ankle. Good luck with the Neuro. I hope he can find where the nerves are pinched.
Thank you for responding. Your case gives me hope. I had a nerve test a year ago and everything came back normal. However this new doctor seems a little better than the last one so hopefully he will find something the last one missed. The sciatica is just horrible sometimes and I would give anything to get some relief. How is your pain level now? How much did the surgeries help?
The sciatic pain went away completely but I ended up with a rare post surgical neuropathy which required taking Lyrica which is an entirely different discussion. After the fusion I only needed pain killers for a few weeks.
The surgery eliminated the sciatic and stenosis pain completely.
Hello lucyb and welcome to DC. Interesting thing about pain in your legs is... if you have any kind of history of back issues (sounds like you do) doctors "assume" your leg pain is coming from somewhere in your back. I had this issue for probably 9 years. Every doctor I saw kept treating that pain with stuff related to issues with my back. Then I got a hold of a GEM of a PT who wanted a "hip" study done to rule out fractures or bone on bone grinding. Know what??? My HIPS WERE SHOT!!! Of ALL THINGS... I cried when I got that diagnosis because I was in such agony and all that was being done for me was physical therapy, hydro- and aquatherapy, injections, pills and drills and an implant that works good, too.
Instead, I needed a bilateral hip replacement leaving me without a good leg to stand on. So, I opted for the worse side first and that surgery was a year ago in February. After that healed... I didn't have the radiating pain down that leg. Is that interesting or what??? I am holding off for the other side because I don't want to lose my job. I lost my part-time job after the first surgery and was out almost 7 months. So that's the reason I am holding off on the second surgery but I am also taking PT and supplements trying to build up those ligaments and my immune system.
Has anyone done a HIP STUDY for you??? I had been having these leg pain issues since I was about 50ish years old. I don't wish that for you but if it is something that hasn't been looked at... you might want to talk with this doctor about that as a possibility. All it really takes is an X-Ray... By the way, I also have sciatica issues and when I'm having a flare... I have trouble sitting down for any length of time. I also use ice cold gel packs to help numb the pain and that does help, too.
So, just some food for thought for you. Pills don't cure anything but they sure can help the body "mend" in less agony. I just had a nerve block on either side of my tailbone this evening and am having a pretty good flare, too.
I am glad you posted here because everyone's input may just point you in the direction you need to go. It sounds like you have been through a lot already so I pray the rest of your journey is more insightful and a lot less stressful for you. Stress is an enemy on any "body".
Take good care and be well. I wish you the very, very best and hope you will post more so that we can support you along the way.
Mary
Mary, I was going to say the same thing - my sciatica is caused by problems with the SI joint in my hip. I get pain relief from a Rhizotemy, also called a Radio Frequency Ablation Procedure. This is done in a procedure room, usually by a pain specialist under a Flouroscope. He can then see your anatomy and place needles along the nerves where your pain originates. They apply electricity to the needles and the nerves are burned, giving you 100% pain relief in that area until the nerves grow back - 3 to 24 months later. I've been having these done for 13 years and they are Fantastic! The procedures are done with light sedation and aren't a big deal at all. It takes a couple of days but then - no pain!! It takes some time to do the work up and they try the procedure with steriods or lidocaine first - twice - to make sure you get relief, then the Rhizotemy. Call and ask each pain specialist if they do "SI Joint Rhizotemy's" because not all do, and not all who do rhizotemy's do the SI Joint ones. Hope this helps. Ej23
Thank you for responding. I did get my hip looked at last year after fighting with my doctors about it for 2 years. I did end up having surgery for torn labrum in my right hip. But my back and leg pain still remains. I have tried it all... PT, nerve blocks, steroid injections with no relief. I still excersise and use ice and heat and take meds and they do provide some relief, just not enough. I saw a new neurologist recently and he wants me to do more physical therapy. I am not very hopeful at this point but I know I have to keep trying. It sounds like you are going through a lot too. I can't imagine your pain. And you still manage to work too? I quit working about a year ago. I just couldn't perform my job as good as I used to. Plus I have a 3 year old and I have a hard enough time just keeping up with him. Oh if I could have just half of his energy! Well thanks again and best wishes to you and your health too.
Oh no, I haven't worked in 16 years and I have no little ones at home. My baby is 29 years old. I'm in a power wheelchair much of the time, and my husband does a lot of things for me or we hire someone. While the sciatica pain is gone there are many more areas that hurt. Keep moving, and don't carry any excess weight - those are crucial! Take good care - EJ23
lucyb78,
I'm sorry that I took over your post with my comments and questions. I don't have an answer for you, but will follow all of the answers you get. I'd love to get the same answers. I can't take most of the meds for nerve pain, but would love to just have a diagnosis --- a name to put to my pain so I don't feel like a hypochondriac! My body hurts, but the doctors don't try to find out why! I hope you get a diagnosis, lucyb!
Your friend,
Kathy
Oh it's ok. It was interesting to read about fibromyalgia. My doctor thought maybe I might have that too. But I only have pain on right side from my back down. And I thought fibro was pain all over. It would be nice to get an answer though. Going to have another nerve test next month and do some more PT! We'll see.
There's no test for it other then pain for at least 3 mos and the tender points. You can check that yourself. If you google the tender points you'll find charts that show you where they are. Lupus has to be excluded too google symptoms too there is a long list of things that go with the pain.
Believe me your not a hypochondriac - that's an anxiety/panic condition in which a person believes their sick (and mind of matter sometimes, you can will yourself into being sick). You're in physical pain - thats real. Psychosomatic does not equal imaginary or hypochondria - its just pain that is being signaled by your brain when there isn't an actual "physical" ailment or disease causing it such as a sprained ankle or broken bone/bruise - what have you. Psychsomatic - "of or pertaining to a physical disorder that is caused by or notably influenced by emotional factors.
2.
pertaining to or involving both the mind and the body. " Hypochondria on the other hand would be JUST in the mind - a mental issue, not a issue with your physical body.
The top one on my list would be how to stop the pain. I've experienced that kind of pain off and on over my life, and no one knew why until I was diagnosed with fibromyalgia.
KM,
Please, please tell me how to approach the docs to test for fibro. I have broached the subject with my PCP and his response is that there is no such thing as fibro, it is just chronic pain. OK, so what is causing all of the pain everywhere in my body? His answer, my neuropathy and damage from chemo and radiation. Can't get a referral if he won't listen! He makes me feel like a hypochondriac! My body says differently!
Kath
Hello Kath
It is unlikely that your Doc will know how to examine you for Fibromyalgia (FM), and even in this day and age many have never heard of it! The referral you need is to see either a Rhematologist who specialises in FM or a pain clinic can also make the diagnosis as well. Once you have seen a rhematologst or pain specialist they may advice you to have a neurological consultation and tests, just to rule out a neurological problem causing your symptoms.
I hope this helps and take care
Thanks CMP_FM. I just fired a rheumy who wanted me to take meds I already told him have caused seizures for me. He never once did as much as a finger stick blood test. I'll ask my oncologist to refer me to someone. Thanks for the info.
Kath
Hello Kath
So you have been seen by a rheumatologist? Did they diagnose FM? The diagnosis of FM is made by your medical history and a physical examination where they feel for tender points in certain areas of your body. They also observe the general way that you move and function during the consultation. No blood work is needed to make the diagnosis of FM; but it is a good place to start, just to rule out any other factors that may be causing your symptoms. Unfortunately in the main FM is managed by drug therapy, but there are some non drug treatments that can be deployed. Do you know which drugs cause you to have seizures?
Hang in there and take care CMP
CMP_FM,
The rheumy never got closer than 5 feet away from me. NEVER examined me. Another reason I fired him! I'll get a referral from my oncologist. He knows me well enough to know I don't make this stuff up. I won't even take the pain meds he gives me unless I just can't move with pain. Thanks again!
Kath
If your doctor refuses to work with you or to even give you something as simple as a referral you need to contact your health insurance (phone or website) and ask what General Practitioners are accepting new patients in your immediate area - all you have to be is honest with your next doctor - say your last one didn't believe in Fibromyalgia, and refused to give you a referral to a qualified neurologist - they won't consider this doctor shopping (which is stigmatized wrongfully, as many doctors these days are cold and uncaring or rush you through just to get through their patients and fatten their wallet (watch out for the ones that advertise medicine everywhere - papers, pens, clocks, posters, etc - they are paid by big name pharmaceutical companies to push their newest products regardless of their efficacy.
It's you're right and you SHOULD doctor shop (off topic but especially in the mental health arena, psychologists, psychiatrists, therapists and nurse practitioners) because you need to find someone who works with you, and your personality! Oh and by the way he cannot say Fibromyalgia doesn't exist - some doctors may disagree but this is a real disease/diagnosis call it psychosomatic if you want - that doesn't mean its imaginary! Or that it should go untreated - that's cruelty). Some of mine in the past has some sort of god-complex; they have to be correct - and detest/get angry with you if you suggest something, or contradict them because you happen to have more knowledge in this particular area than he/she does (in my case hormones, pharmacology organic chemistry and biochemistry) or ask for any type of pain medicine (in my case there should be no reason to stigmatize me for this - I have no history of drug abuse, I'm 25 years old - with slipped disc at S1-L5 compressing my sciatic nerve that keeps me awake, when I do sleep I wake up multiple times, and interferes with my work as a PCA) yet you get labeled as a "drug seeking" individual simply because you asked about some analgesic medicine (after having tried every single NSAID, Tylenol, OTC or Homeopathic remedy so basically ran the gamete of whats out there, now they've given me Steroids *sigh*). Its ridiculous - remember you pay them, they are working for you and your health, if the are refusing to treat you, or endangering your health by malpractice (you can sue them!).
You always have the option of finding a better suited doctor to you, and your/their personality. Don't think that they are infallible either, half the time they don't spend anywhere near enough time trying to diagnose you, 15 minutes and your times up see us again in a month or week, etc. I have a laundry list about a mile long of things Id like to discuss but it always gets focused on the first few things I say - and they ignore the rest. A doctor is supposed to evaluate all the possibilities - not just one small possibility in a sea of diagnoses, pain can be referred, and it can be muscle, bone, or nerve based, or a disease/virus/infection.
I went the ER 3 times got xrays and cat scans - it wasn't until I went to sports medicine that they found my lateral herniated/buldging disc at S1-L5 pinching my sciatic nerve - how can a CAT SCAN - 360 degrees - miss that? Lazy radiologists and overbooked (thinking about their paycheck mostly - more patients, more co-pay) doctors who don't pay enough attention to their patients. First they thought it was a urology problem, then I was sent over to endocrinology, then 3 ER visits (where they said I probably had appendicitis which it was not, and having done test that would've clearly shown the slipped disc - they were ONLY looking for symptoms of appendicitis and not ANY other possible problem that could be causing my pain, I call that inadequate treatment, they're supposed to be diagnosticians of the body, checking everything) - so including 2 visits to my GP/PCP - that's 8 visits to different specialists, the emergency room, general practitioner, urologist and endocrinologist (and radiologists who took multiple X rays/Cat scans before the SPORTS MEDICINE people found my slipped disc in a simple X Ray- you cant miss a slipped disc on a cat scan unless you just not properly trained as radiologist!) That's 10 doctors before they could even pin point what the problem was (SEE a PROBLEM here? Who gave these people their PhDs?) no offer of pain medicine ever, given corticosteroids for the imflammation (medrol) which btw drives me psychotic and keeps me up at night, sweating bullets and has wonderful side effects like musclular atrophy and brittle bones (Thats CERTAINLY going to help heal my disc... NOT).
After all this they still only recommend Tylenol - can't I even get a measly Ultram (like that crap ever did anything, SNRI for pain? kiss my... ) or a T3 (so much APAP even if I was a junkie/drug seeker - I could only take 2-3 before the Tylenol is too much for you liver to handle). They're scared of the DEA aswell - if they give out one too many pain meds or scheduled meds (benzodiazepines, amphetamines etc) they can have their licence revoked so thank the DEA next time you're refused your right to be pain free. They won't give in (and thats what they do, last time I was given Percocet (5mg oxycodone with 500mg apap) my doctor literally sighed and said I can give you a 10 day supply of oxycodone, but that's it (and thats the last time I ever went to HER again, try having some COMPASSION for your patients! or atleast some common decency I would never ever sigh at a patient of mine - as I said im a Personal Care Attendent - Id be fired!) unless your in SEVERE PAIN and tried everything from steroids, to injections in your spinal column, to physical therapy (not looking forward to being in pain and forced to exercise, what kind of cruel torture is this - I cant even get a Flexeril (dont even get me started on Tiziandine, Skelaxin, and all that other useless new crap like Robaxin) - the one and only muscle relaxer that's truly worked for me was Soma, even Flexeril sucks because of its anti-histamine and anti-cholinergic properties, (Acetylcholine = Your Memory, so an anti-cholinergic - screws with the encoding and decoding of memory/learning process) Asking for Soma now is just as bad as asking for an opioid, and Miltown/Equanil (soma's big brother) went out, thanks to the false-media frenzy that should've had Rohypnol taken off the market but instead targeted fantastic medications like Xyrem, barbiturates, barbiturate-like medicines (placidyl, gluthemide, clomethiazole, etc) and quaaludes back in the day (sad because it also had amazing anxiolytic action aswell as muscle relaxation and sedative/analgesic properties).
Basically what Im saying is the healthcare system is getting worse and worse, more doctors care less about their patients than ever before and do less test and leg work than ever before. Don't let yourself suffer because of somebodies lack of passion for their job (or knowledge/ignorance) that could ultimately end up endangering your over well being and possibly your health. So find a better, more suitable doctor for your needs and stick with them, file complaints with the licencing board if you feel your been mistreated or theres been an instance of malpractice (and then look into legal recourse because they need to have their licence revoked or atleast suspended - so they'll learn ther lesson, its the only way, because they're on a power-trip - these people are not properly trained nor do they care about their patients). Hope this helps - never feel helpless there are THOUSANDs of doctors more than willling to take your money (lol) over these laughable "Doctors".
I have made some improvement, albeit minor, with physical therapy. My PT is the first one to give me a straight answer. Yes I have disc problems which periodically will irritate the sciatic nerve and there is no way to cure damaged discs. However if I continue to do these excersises I can reduce my pain and protect or at least slow down the process of it getting worse.
Luckily I also have a good PM doc who gives me choices for treatment. My primary care doc is awesome too. Sometimes you have to sit in the waiting room for 2 hours but that is because he takes his time with each and every patient to explain everything and answer any questions. There are some good doctors out there, sometimes you have to look around a while before you find them.
I have nerve pain all over, my right knee which is sprained keeps throbbing w/pain. I too have nerve pain all the way down to my feet. My right leg seems to want to stay swollen, it's obvious that there's fluid in my legs but "they" say that it's not the kind you need to drain out, they assume that it's because of salt intake, my Hydrodiuril isn't really helping me. I get really stiff and can't move a lot of the time, I quit my Flexeril because of out-of-pocket cost since it's not covered by insurance. I hate needing any medication continuously. I hate all the pain and stiffness. Now I have to use scooters to get around large areas and at amusement parks, it's not bad riding instead of walking but I get "left behind" by my family who move too quickly for me. I should see a Neurologist also but in my small area, it may mean being taken to see one 60 miles away or so, I don't drive either. That's a separate injury by itself. Good luck with your appt.
I hear ya. I live in the middle of nowhere myself. 70 miles one way! Thankfully I have my mom to watch my son or I could do nothing! I guess we just have to keep trying.
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