i have discussed this with dr. she lowered dose but it still makes me jittery, have anxiety and gain weight even when i dont eat. Everybody notices a change in me when i take it but she wont take me off of it. I dropp things and my whole face is different and i also have a hard keeping my train of thought because of studdering so much. What should i do about this?
I have been on lyrica for a while and it makes my words slur; makes me jittery?
Question posted by tanya614 on 11 Jan 2013
Last updated on 29 April 2018
The information on this page reflects personal experiences shared by our community members. It is not reviewed for medical accuracy and should not replace professional medical advice.
9 Answers
If you could clarify her reasons for refusing to let you stop taking Lyrica. Did she tell you that she will not use anything but Lyrica and it is that or nothing? Did she say that you needed to wait longer for the initial side effects to fall off? This would effect how I answer your question.
I was also debilitated by fibromyalgia at age 38 and in similar situation to yours. It really sucks for sure. However, what I notice is that the methods physicians use to manage fibro today are way different than when I was 38 in 1987. I am still in treatment for my symptoms, and always will be, but when Lyrica first came out I tried it and had the same reaction as you and in 3 months gained 35 pounds and it did nothing to treat any of my symptoms. I don't understand why this med is still the "go to" drug for fibromyalgia.
Back then docs tried anti-depressants first, then cymbalta, but from the get go, I was given prescription pain meds so that I could function and have some quality of life. Now docs are afraid to prescribe anything strong enough to make a difference. Tramadol is even controlled now. That is what I use now and it helps me a lot. I also take 400mg of Neurontin at bedtime. I can't use it in the daytime because it makes me feel weird. But because it helps a lot with my pain, I tried the bedtime dosing and it works well.
I have been on both Lyrica and Gabapentin and have had all those symptoms. One time it was so bad I fell into a wood stove and about an hour later went to the hospital because I couldn't get one word out. Anyway, I knew already before this what was going on. Its called. Tardive Dyskinesia. Here is a definition from wikipedia. Tardive dyskinesia /ˈtɑrdɨv ˌdɪskɨˈniːʒə/ is a difficult-to-treat and often incurable form of dyskinesia, a disorder resulting in involuntary, repetitive body movements. In this form of dyskinesia, the involuntary movements are tardive, meaning they have a slow or belated onset.[1] This neurological disorder most frequently occurs as the result of long-term or high-dose use of antipsychotic drugs. However, in all of my cases of this once I stopped taking the meds all the symptoms went away.
Definitely find Another Dr... As if you are experiencing these side effects & he doesn't want to do Anything then that Alone shows you he Doesn't have your best Interest in your health care.
You may want to ask him if he will let you try Neurontin instead of the Lyrica. It is a medication that is similar to Lyrica but usually does not cause the side effects.
If your Dr. will not let you try you on Neurontin then Definitely find another Dr.
Best wishes, Kathy
Tanya I'm currently weaning off of Lyrica after only 4 months. This medication is a nightmare. I have experienced the facial changes as well, for me its due to swelling. Sometimes I completely lose my train of thought. I can't find a word to finish my sentence. Its terrible. I have also gained weight..not a huge issue to me because I have always excersized. Its more the cognitive thinking and coordination that worries me. My hands both of them go numb all the time. A month or so ago I started to become paranoid of being in my own home alone. I know everyone is different,however I have read numerous websites that say more or less the same thing..Don't take Lyrica. I have also read it's a very difficult drug to ween off. I made you a friend if you would like to ask me about my experiences with Lyrica ... there are soon many side effects. I'm on a low dose of 300 mg a day. I hope your doctor listens to you.
Hi Ibrogan16,
If you are new, let me say welcome to this site! I read your comment and agree with you 100%. Lyrica just made me feel like an eejit, which I can be anyway, but it really made me stupid! I know what you mean about hunting for words, I used to have a large vocabulary, but that junk just wiped my vocab away! And Gabapentin isn't much better, I'm still on Gab because of the pain, idiot or not!!
Isn't fibro fun? LOL, little gallows humour,
Lara
Hi Lara ..I have been keeping myself educated on Lyrica... I will read someone else's posts and think to myself "I'm not crazy"... I don't know what's more debilitating the injury to my back or the medication? ... before Lyrica I cried all day the pain was soo bad ..more importantly I lost.my quality of life at 38 years old... I have two children, a dog ,and a husband. I can't be down and out! I'm praying for all of us ..in hopes we can find the strength to get through life without these mind crippling drugs! I will add you as a friend so we can chat. It's comforting to know I have support from people that understand. Thanks everyone! !!
Ibrogan, you DO have support here! You'll make a bunch of understanding friends on this site, it's great! You need to add more friends though, when you ask your first question is usually when you get noticed more, and people add you to their friend lists.
I here ya, what's worse, the disease or the cure? I know your pain, too, at least I know what chronic pain can do to ones life. You gotta try to fight for better pain meds, I hope Lyrica isnt the only med you've been on, is it? Has your doctor put you on anything stronger? IF you aren't comfy answering that question, of course don't answer it if so, I will understand.
If you are a resident of Florida, forget getting anything stronger than Lyrcia, as loads of Floridians are on here, and they have experienced a crack down by the DEA, no pain meds for them, chronic pain patients do not get any narcotic pain meds! I can't imagine why this is, but tis true.
Hope your day is going well,
Your friend,
Lara
I forgot to add, of course you aren't 'crazy', Lyrica sure can make one feel as if she is crazy though!
I'm a bit "off" lol ... at least that's what I have been told ... thank you foe the support ... I have been soon depressed ... I'm in Buffalo ... its coooold! I would love to visit you ;) ... the Dr gave me tramadol... it didn't touch the pain ... I also was given flexeril for.muscle spasms ... that's it ..my doctor is retiring ..he has just about lost his marbles and I can tell he doesn't care ... I told him about my side effects and he ignored me ... I know when there is something wrong with my body ..period! I coils ramble on ... lol maybe we should private message lol... thanks again for listening ... it means alot! PS I strongly believe there should be warnings ... out for all medications! !! Consumers need to be aware of what may happen if they start Lyrica..if I would of known I would of never put it in my system!!!
I totally agree about your doctor not responding to your requests to be taken of Lyrica. When a patient makes a request though, sometimes a Dr will see it as a question. So, try to be clear and TELL your Dr, that you want to replace Lyrica with something else.I think I get where your head is right now, I felt that way during my Lithium years. Head all foggy,not able to communicate with others. Oh,what I said made perfect sense to me, but not to anyone else.The slurring... if I ever answered the phone for anyone other than my very close family they would usually call someone else in the family and tell them I was drunk at 8:00 in the morning... lol. Truly though, you have to be quite clear with your Dr. Maybe one of your family members could go with you to an appointment to help bridge any communication gap. This way,if the Dr is'nt getting what you are saying the family member can help by letting the Dr know how this med is affecting you,and your relationships.
tejas129
Sometimes they're dumb as rocks and they don't know one patient from the next even if you see them every week for the past 5 yrs. Speaking from experience! Sometimes you have to ad-lib! If it's not working and you've told them blunt you don't like it! Well ... say you think you might be allergic .. which you may.. I personally hate, hate lyrica! It makes me anxious, and aggressive. Which is a side effect. Don't let them bully you! Speak your mind! Only you know you! Throat swelling and hives are classic anaphylaxis, but there are plenty of side effects that are not. Look at your pamphlet of side effects, if your experiencing any of them tell them! Stop the meds and say you have, because you cannot continue! Then they will prescribe something else. You and only you know your body!!
Jamie, I have to agree, she should suddenly become allergic to it!
If your legs swell up, that is one of the allergic signs, besides hives.
Good luck!
Hi tanya614 (and cupcake and kais) I had a terrible time on Lyrica, had to hunt for words, felt like a complete idiot, couldn't remember anything and eventually broke out in hives. The hives were a severe allergic reaction, so I had to stop taking Lyrica.
I also began stammering or stuttering, but that happened on the sister drug of Lyrica, which is Gabapentin. After my doc upped my dose I had all those cognitive problems on gabapentin as well.
Perhaps you need a new doctor? If she won't take you off while you are experiencing all of these horrible side effects, maybe she should be replaced.
If I were in your shoes, I would find another doc and fast, I would also call my pharmacist and ask how to titrate off of Lyrica safely. You need to be your own advocate, so please, speak up for yourself and don't let that doc push you round.
There are other meds you can try that will not mess you up like Lyrica has. I think it's criminal and cruel to keep you on this medication!
Please, call your pharmacist, and find a new doc, today!!
Best wishes to you, tanya614,
Lara
I've also been taking Lyrica for about 5 yrs. I didn't like the side effects either. I heard that Gabapentin is a sister drug to Lyrica but with less side effects. I stopped the Lyrica and started taking Gabapentin and have been doing well but my question is if i get drug tested either urine or blood test will my doctor will be able to tell im now taking Gabapentin? I plan on asking my doc to switch me to Gabapentin which i'm sure he will have no priblem with it. One of the other reason's i switched was because my insurance changed and wanted an arm and a leg for the Lyrica. My husband takes Gabapentin and does real well with it. Can anyone answer my question? Much appreciated. Best wishes to you all. Della
I had shingle on the side of the head and in the left eye. I had been taking gabapentin. And the pain was not being controlled very good. Doc put me on Lyrica. Had been taking gabapentin. But she said I could take both if neccessary and I have been. I had noticed some jittery symptoms after a couple of days. I will see how it goes. I am trying to see if the Lyrica works without the gabapentin. btw all of the symptoms are gone from the shingles now. I am in my 5th week. Its the after pain I am dealing with.
As far as a doctor tell me I have to stay on a drug or refusing to take me off and get something else. Absolutely find another doctor. I have a doctor thats willing to work with me and listen to me and assist in any way she can and change medicines at my request if it is working or giving me a problem. as a matter of face she put me on a different BP med and it gave me heart racing. I told her I would never take that again. No problem she put put me on better.
Roger
Ugh! Lyrica, cymbalta and suvella all bring back nightmares for me. Cymbalta being the worst as it landed me in the ER within five days. I had blurred vision and my muscles constricted and would become rigid on lyrica. That took only two days and I was immediately taken off. I can't tolerate SNRI's. do you experience trouble forming sentences and word finding on lyrica? And yeah, I have a chronic anxiety disorder so I would have severe panic attacks. You're doctor can't force you to stay on a med, especially one causing you more harm than benefit. I'd talk to her one more time but find your voice!!! And if she doesn't listen than I'd find a new doc. Best of luck!
cupcake, sorry, I just answered this and almost quoted you, I should have read yours and kaismama's answers first, before I answered.
I SOOOOO agree with you! This doc cannot keep her on Lyrica, this is cruel and untennable!
Lara
That's ok! Power in numbers! Maybe the doctor needs to read thi. The word finding and confusion was horrible. I felt like I had a stroke. Ugh! Awful drug. Good idea about calling the pharmacy to safely titrate off. You do not need to suffer more from medical mgmt then without it!!!
Hello again tanya, perhaps cupcake is right, print this out and hand it to your doctor, I bet she would be quite embarrassed over her treatment of you!!
As she should be ;) But Mac's right. It's demeaning to not be heard and suffering like you are. And over an SNRI! It's not like you're drug seeking. She's breaking her oath of doing no harm. She took that oath and you're suffering. I'm getting upset just thinking about it and how awful I feel for you!!!
I'm just jumping in, and saying I agree with you absolutely. My vision was so blurred, and, well... you gals have already explained everything. Have a marvelous afternoon. Love, Ruthie
:))) Hope you did too Ruthie. Don't think I can take another CO winter.
Cupcake, I'm soo sorry, honey that you have experienced dissapointment dissapointment from anyone in this group. And that you are wantint to quit. Just remember... there are mostly very loving and caring people on here to help you in any way they can, and that is what this site is for... period. Nothing else. I promise you, that your pain isn't going unoticed. Please stay right here with us, where you belong. This is a great group of people, for the most part, and you will see that. Love you to death girl, ruthie
Ruthie is right! Most of us are loving, caring people, so please please
dear Cupcake, stay?
I must admit that Ruthie is the kindest of all of us...
Love,
Lara
Lara, I don't quite agree with the last comment girl. :)
I'm the newbie... so far I think everyone is sweet. But Ruthie has a way with writing and her words that makes you kinda swoon :)
I cannot believe that a doctor could force you to take lyrica or any other medication. I stopped lyrica because of similar side effects. They are awful and your dr isn't using sound judgement. I would go to her, tell her you're not requesting that she stop it, you are telling her she's going to help you taper it down and stop it. Don't be hesitant about it, tell her what you expect. If she still won't do it, I'd find a new doc.
Related topics
lyrica, anxiety, fibromyalgia, generalized anxiety disorder, weight
Further information
- Lyrica uses and safety info
- Lyrica prescribing info & package insert (for Health Professionals)
- Side effects of Lyrica (detailed)
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