I have been taking flecainide 50mg x2 daily for Afib. along with metoprolol and aspirin. Have been taking it now for a little over three years. Have not had any further outbreaks of Afib! However I really would rather not take this drug, if at all possible. I have read that it does not help anyone live longer. My cardiologist has told me it I stopped taking it, my heart would race out of control. Yet when I have missed a dose, I actually felt better! I have also had occaisonal outbreaks of PVC's since taking it. One which landed me in the hospital in June. I had wondered if the flecainide somehow could have caused them. My doctor thinks it's stress. I have wondered how long you can take this drug before it kills you. How long has everyone here been taking it?
Hi Kenny1948, I have been on Flecainide 100mg x twice daily for around 20 years with no bad effects and I'm nearly 76.
I have Wolff-Parkinson-White Syndrome with Supraventricular Tachycardia. Flecainide controls it so well that I refused ablation therapy to potentially cure it.
We are all different with our complaints and treatments so I can only wish you well and to be guided by your medics; but certainly try to reduce stress in your life.
I would guess the cardiologist would tell you what I will, you can stop taking it when your a fib is cured. If you doubt your cardiologist see another for a second opinion, but if you trust him do as he says.
As I said, I have had no other outbreaks of Afib since my first one three years ago. I have never seen an electrphysiologist. My Cardiologist was sure my Afib was caused by blockage. So this last time I was in the hospital, he ordered a Heart Cath. Result showed my arteries are clear! So back to square one. He now says it is stress. No I don't trust him. He was giving me flecainide even though he thought I had blockage. Something the drug company itself says is a not good to do.
Then he also works for one of the HCA hospitals that was cited for ordering unnecessary hearth catheterizations. He is one of the doctors mentioned in the investigation. Need I say more.
I simply wanted to know how many people have taken this drug, over a long period. As all I read about it is bad,
I have supraventricular tachycardies sinde the age of 13. In 1985 I started with Tambocor 2+1/2 tablets with 100mg Flecainide a day and can live normally since with a few tachycardies (about 1 per month) which are over with in 1/2 to 4 hours after increasing the dose to 3-4 tablets within 24h. It is I take this medicament all days since 28 years. Now being 67 years old, I have more often to take 3 tablets a day. My cardiologist wanted to let me take only 2 Tambocor + 1/4 of B-blocker. However I prefer the 'old' version, because the B-blocker does not allow me energetic tasks, such as cleaning, mounting stairs and being a musician. Most important before taking this medicament is not to be a person at risk for infarctus.
I have been taking it since 2002 after an ablation which came up with 2 Afib and 1 SVT... Dr didn't know what to do so he gave me Flecainide and said to try it out... I took it daily, still had attacks...
finally decided to wait for an attack and then take it and that worked... immediately. I only take it after an attack... I have gone as long as 9 mos w/o an attack but the older I get, the more I have.
I'm 83 now and still take it when needed. Last year I went to heart Dr to see if anything new was being used... he said Flecainide wasn't for Afib! I left his office. Before taking it, I had to go to the hospital and they would stop and restart my heart... expensive! Flecainide was the best answer.
I have been on this drug for 40 years. It is considered to be one of the safest of medication options. It is often paired with Metoprolol, atenolol, or Cardizem to control various heart arrhythmias. Some people use it as a pill in a pocket and only use it when they have an AFIB episode if they do not want to take it on a daily basis. There is now a clinical trial using this medication to be delivered using a nasal spray. It is all about quality not necessary quantity of life. The metro actually is the beta blocker that keeps the heart rate slower. I have had AFIB for over 40 years, with two ablations, PVC/PAC are very common as the condition changes. Particularly as we age. I have been on various medications over the years and the Flecainide was the best option for me as I had little side effects. I would seek an opinion of a ElectroPhysiologist at this this point if you are concerned about the PVC's - it could be your condition is changing.
AFIB does not get better on it's own. Check out STOPAfib.org. Great site with tons of information and resources. Hope this helps.
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