I take levothyroxine for hyperthyroid and my dr says i dont have blockage cause my feet arent white im at my whits end can you help.
My feet are numb and I am not diabetic, I'm at my whits end, can you help?
Question posted by tatertot5 on 27 Oct 2012
Last updated on 18 May 2017 by Erinleigh72
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3 Answers
Erinleigh72
18 May 2017
I was wondering since 2012 if you have found answers regarding your numb feet? I too suffer numb feet and hands plus more and it took many years to finally get answers. I do not have diabetes either, but suffer terribly from Raynauds Syndrome and recently following a seven year search was finally diagnosed with hereditary neuropathy. If it was not circulation related, then my guess would be Neuropathy, which can cause color changes, numbness and pins and needles. It took far too long to find answers and my condition was far advanced when diagnosed. Neuropathy could be caused by many things or could be unknown/ idiopathic in origin. I have back injuries which is partially to blame, but nerve damage related to hereditary cause was the culprit for me.
Anyone who find they are in a similar predicament, my advice is start with a Neurologist ( of course after primary rules out diabetes or circulatory cause) My condition could have been better managed, less progressed, however the cause for me is lifelong, incurable and progressive. If Neuropathy is caught early, to my knowledge it can be better managed and for some can find remission. I truly hope you found answers and treatment. I would like to know what it was found to cause your symptoms. I hope this answer offers even one person help.
endlessPred
28 Oct 2012
When was the last time you saw the Pulmonologist? What are you taking for this? Have you been tested for your oxygen saturation and lung capacity in the past year? I do know that one loses weight if under respiratory distress. You can get a pulseox at Walgreens or other pharmacy for around $50. If your saturation falls below 89 or your pulse stays over 90 you need to see a doctor right away. That includes sitting, walking, and standing. Each should pass the test.
I do need to ask to help with ideas, are you anorexic? We don't judge but it may be part of the problem. And finally, when was your last blood work done? Comprehensive, TSH, and CBC?
kaismama
28 Oct 2012
Yes, nutritional deficits can cause neuropathy.
endlessPred
28 Oct 2012
Neuropathy is also caused by high fever, large doses of steroids, diabetes, injury to nerves, intense swelling. Many things can do this. It has to be caught early so that the reason is treated if possible.
With such low body weight, your blood sugars and organs are not functioning correctly. The brain itself will deteriorate because it becomes a source of protein. Please get some help.
endlessPred
27 Oct 2012
Hello tater tot. What type of doctor have you seen? An endocrinologist or a general physician?
Have you had any high fevers, illness, surgery, or health changes prior to the numbness?
Are you overweight or physically restricted for walking?
The white feet idea is not much of an answer. I get white feet from Raynauds, but that is not why my feet are numb. He did test you for diabetes with a glucose tolerance test? You have had a complete physical and blood workup?
As you can see, lots of questions. I do know that if this were neuropathy there would be an underlying cause. Numbness and associated pain can be difficult to deal with. Please provide more information so we can give you some ideas. Also, any medications or supplements you may be taking. I agree this needs an answer soon for you.
kaismama
27 Oct 2012
Some docs want to just brush things off without testing. Before I was diagnosed with fibro, I told my doc that my legs were aching bad. He said, oh its pvd, didn't even look at them or test. If you have neuropathy there are things to help.
endlessPred
27 Oct 2012
Just an aside to Kaismama. Have you ever had a ck to see if you really do have fibro? Some of your symptoms are more like a Myositis. Many, many people are told they have fibro until further testing is done. Just was a big topic at a meeting I was at earlier this year. Just wondering, they had diagnosed me for three years with fibro without that testing prior to my acute attack. Karen
kaismama
27 Oct 2012
Four docs have tested me and found I had fibro, and chronic myofascial pain. 2 of the were rheumatologists. I have to look up myositis though, since I have some spots that hurt like a bad bruise if I just put minor pressure on them. Do you ever feel like your skin hurts?
endlessPred
27 Oct 2012
Yep. And sore spots I specific areas of muscles. Legs move too slow, kinda like slow motion at times. My Rhuemy said that this was so rare that they don't think about considering it. The skin kinda burns like a sunburn but only in spots.
kaismama
27 Oct 2012
I had that yesterday, I thought I was getting shingles cause it was on my side and burned when I touched it. Nothing visable tho.
tatertot5
28 Oct 2012
yes ive seen an endo. and took radioactive iodine to get rid of my thyroid i told them my feet were numb and i get cramps also restless leg syn.at night sometimes. I only weigh 59 lbs and im 5ft and im 55yrs old been like this since 07 I also have COPD Iam taking levothyroxine, diltiazem,and a multi vit. also a quarter of a melatonin at night thats it .
kaismama
28 Oct 2012
How did you get to 59 lbs? You're way under what you should weigh at 5 foot.
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