My doctor wants to prescribe it for Parkinson's even though I don't have seizures and only slight tremors. Most of my problem lies in lack of coordination... Thanks!
Is anyone taking Primidone for Parkinson's?
Question posted by JHD on 4 Nov 2009
Last updated on 15 February 2018
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4 Answers
I have been taking 1 50mg twice a day for several years now. A few months ago that was increased to three times a day for bad tremors. This week I changed neurologists and two of my previous Parkinson's meds were dropped and the Primidone was doubled and I am already seeing marked improvement. I am a believer in this drug. Good luck to you.
Yes, I am currently taking 500mg. every morning for my tremors.
Do you mean 50mg. 500mg sounds unreal!
Yes I started to take Primidone 25mg a few days ago.
Being some what skeptical I took 1 pill 50 mg to start with a full glass of water or two (45min - 1hr before bedtime) Otherwise you get a stomach ache.
To my surprise the next morning @ 5am I awoke with no tremors, a mild tremor at 10am for most of the remainder of the day.
I have stage 1 Parkinson's.
I must say at the end of the day (50mg)I was a little short tempered, but not bad.
I have started on prescribed dosage schedule.
week 1 25mg pm ; wk 2 50mg pm ; wk 3 25mg am -- 50mg pm. My guess is that the dosage will continue to increase until the tremor's are manageable or stop.
I couldn't find a review made by anyone using primidone in Parkinson's Disease, however this article does state that primidone is used effectively to treat the Parkinson tremor. www.pdcaregiver.org/Tremor.html
Related topics
seizures, parkinson's disease, primidone
Further information
- Primidone uses and safety info
- Primidone prescribing info & package insert (for Health Professionals)
- Side effects of Primidone (detailed)
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