Hello everyone. I have been prescribed by my doctor with Linzess. I have chronic GI disorders abdominal, pain, feeling bloated (severely uncomfortable). I started yesterday but when I woke up this morning, I had this pain, distention in my whole abdomen that extended to both sides. I took 3 aspirin but it did not help. I took Ibuprofen but just weans off the pain. Should I continue this medication? I understand that there is no generic equivalent foe Linzess but I'm on Medicare and I find the medicine expensive, is there a good alternative for this?
Karangahan, Sorry that you are feeling poorly. According to drugs.com the symptoms you describe are common side effects. Linzess is for IBS with constipation. So as the medicine gets in your system and begins to do its job, the constipation will ease up and with it, the bloating and abdominal pain. One thing I need to caution you about is that both aspirin and ibuprofen are very hard on your stomach and might aggravate your symptoms/pain. They can also cause GI bleeding. I would recommend Tylenol, but ask that you call your doctor to find out what he wants you to take. Hope this helps. Kathy
2 Jul 2013
Please be sure to drink plenty of water with this. Not soft drinks. You don't want to add sugar to the fermenting bowel material as it will cause even more gas. See if the doctor will send you to a dietician so that you can learn how to adjust your diet as well. Continue taking the medication as prescribed. Let the doctor know of the cost issue. He may have samples for you. Hope you are doing better soon. I agree that you should not take aspirin or any NSAID while treating your GI problem. Also no pepto or Imodium or laxative. Watch for signs of bleeding or vomiting. If so don't hesitate to go to the ER. Vomiting may be a bowel obstruction or internal bleeding. Once your system is purged, follow his next steps. Hope you will be better soon.
3 Jul 2013
Karangahan, Karen has given you some very helpful advice for relief of constipation. Some foods, like unpeeled apples, anything with seeds, pineapple or any citrus fruits, corn and especially peanuts tend to aggravate IBS. So we are between a rock and a hard place, you and I. Fiber is great and so is lots of water. You will have to find the foods that aggravate your IBS while still trying to resolve constipation. Bananas and oatmeal tend to increase constipation if eaten every day. Activia (Probiotics) is great as it helps to restore the balance between good and bad bacteria. Very few of the IBS meds are for IBS with constipation, but I'm sure your doctor can find something to help. I take hyoscyamine. If I stay away from foods that tend to cause me problems, I do well on it. The one I take is sub-lingual, so it absorbs more quickly to stop the IBS spasms. I can take it 4 times a day if needed. Just throwing that one out there for you to ask your doctor about. I hope you are feeling much better today. Kathy
8 Dec 2013
Yesterday I had first Linzess-145mcg. (not on empty stomach with glass of water as directed--tomorrow I will) ..I had 4 days of constant PAIN in abdomin, occasional stools that were big, round, looked like a popcorn balls (lots of little round stools bound together into a ball)... of course, I have had YEARS of bowel problems, plus episode of gastroparesis in stomach. Today, I had 3 bowel movements--last one pretty normal, that I haven't seen in very long time... with one pill!! (Had been taking Amatiza for years). I wouldn't notice new pain probably, because I have so much stomach pain everyday anyway. Had colonoscopy about 3 wks ago and CT Scan which were both OK. Just praying that this will be an answer for my daily missery--at least for awhile. I KNOW IN MY HEART that extreme emotional stress has caused this... official DMR diagnosis GAD (general anxiety disorder) that I have had most of my life. I am 66. I did notice a distinction between generic and name brand.
I won't take a generic brand, if there is any rejection from Insurance. Through years of "mental illness meds" I have found that about ALL generics are watered down frauds in that area of medication. Also noticed somewhere about disfunctional messages between brain and organs... 3 years ago I had an interstim implant (usually only given as last resort because of nerve signal problems between bladder and brain for uncontrollable incontinence and spasms. When that interstim is in a "good" place--so is my lack of incontinence!!! I think years of heavy mental drugs have screwed up my brain signals in lots of ways--just my opinion there.. PS--unless totally desperate I NEVER use NSAIDS of any kind and I have lots of arthritis also. They don't stop any pain of mine, plus they do harm your body.
20 Jan 2014
After success with sample, prescription was in excess of $160/mo. with discount (in perpetuity, maintenance drug) - cannot afford anything like that. Physician: no alternative... I guess the poor just suffer, as usual.
17 Dec 2015
It cost me $300 with atnea insurance through my job. That's insane I pay $55 every two weeks plus a $30 co-pay with atnea. I need something that I can afford. I'm looking for suggestions also.
18 Dec 2015
It's not a generic alternative to Linzess but you can try IBguard - over-the-counter at most drug stores.
IBgard® is a medical food specially formulated for the dietary management of IBS. IBgard® capsules contain individually triple-coated sustained release microspheres of Ultramen™, an ultra-purified peppermint oil. In multiple studies, peppermint oil has been shown to be effective for people with IBS and can help…
Normalize1 digestion of food and absorption of nutrients, which have been compromised by IBS Reduce the accompanying and often distressing symptoms of IBS including abdominal pain, gas, bloating, diarrhea and diarrhea interrupted by constipation Promote2 bacterial balance in the small intestine (part of the lower gut)
My gastro doc had me try it in addition to Linzess and I didn't see much difference but the Linzess was doing its job so maybe that's why. I haven't tried using IBgard without the Linzess too but who knows? It may help some people who simply can't afford the RIDICULOUS cost of Linzess. Can't hurt to try. One note: Don't try to substitute plain peppermint oil pills for the IBgard. It's unique because it's sort of a "slow-release" peppermint oil capsule. You won't get the same benefit if you just take a peppermint oil pill or capsule.
I hope anyone that does try just taking the IBgard will post how it worked, if at all. I'd really like to know but don't dare go off my Linzess to try it alone.
15 Mar 2016
Linzess makes me TIRED after I use the bathroom. I no longer have regular stools but DIARRHEA ONLY. Also I feel like I can now ONLY GO ONCE A DAY and the rest of the day my colon movement stops and so this DISRURPTS my digestive process. I feel like all the good bacteria gets FLUSHED out of my colon with this medication. I also feel FULL and sometimes don’t have the appetite to eat. I don’t have the energy to exercise which I usually do after bowel movements.
I want to stop taking the medication, but my body has become dependent on it. Has anyone had any success with coming off this linzess? I was thinking taking a regular laxative and then probiotics.
But this drug seriously messes up your digestive process as it blocks sensory transmitters in your body to promote bowel movement. That doesn’t seem too healthy long-term.
16 Mar 2016
When Medicare wouldn't cover linzess my doctor changed the prescription to amitiza. It is covered by Medicare for the same illnesses (IBS with constipation). When I first started it I did need a stool softener also. As the medicine got in my system I was able to back off the stool softener. I also increase the amount of salad I eat and nuts, seeds. I would add 4-6 ounces of 100% apple or grape juice but I'm diabetic and the doctor would rather I take pills. But that's just my system. It will be different for each individual but the basics are here.
20 Jul 2017
You know Karangahan did me the same way. But maybe l did not have enough fiber but if l take to much l get bloated and suffer too! Now that is me... I do not eat good especially not having enough fiber l guess I thought l had enough fiber this morning but did pass some poop. I have IBS-C l have a terrible time! Kinda crampy stomach afterward and sorta bloated too. I really do not know about Linzess. The doctor recommened this. This is the first time me trying but undecided if l will continue the product. Hope you have better results. But like l said that is me and a lot of people seem to like linzess...
15 Aug 2017
Yes, there is a good alternative. You should ask your doctor about Trulance. It is a new drug to treat Chronic idiopathic constipation. It is using natural liquids of your body to help you, therefore has much less side effects comparing to Linzess. You will feel yourself amazing.
3 Jan 2018
Have you had your parathyroid and thyroid levels checked? All this Mickey Mouse business with different doctors and gastroenterologist I'm finding out it's my parathyroid causing all this constipation and GI issues!
27 Jun 2019
I’ve been taking Linzess about six months with no help. I had severe diarrhea for the first two weeks but now, unless I take it with food, I never Poop. I read a review this morning that says it also causes other issues like rectal failure. Trulance is recommended. Has anyone else had this or is it just another drug company trying to weasel their drug sales into people asking for help? I’m also allergic to seafood, onions, dairy and have celiac. (Some drugs contain these items)
Be careful taking aspirin with these type drugs. They’ll cause more stomach issues.