I've been on Remicade for RA for several years.It has worked fairly well except that I have lost so much hair. I've been thinking of switching to Simponi. Has anyone experienced new or worsening
hair loss while on Simponi?
Has anyone experienced new or worsening hair loss while on Simponi?
Question posted by antioch on 24 Aug 2010
Last updated on 29 September 2021
11 Answers
I have psoriatic arthritis and have been on Simponi for about 2 years. I never noticed any hair loss which I thought was a huge win after quickly getting off Methedrexate when I was first diagnosed due to extreme hair loss. My hair has always been super thick and long and has been doing great for the time on Simponi however in the last few months I have lost 40
Percent of my hair volume and my curly thick hair is now straight and so thin I’m scared I’m going to go bald. The problem is it works great on my joints and the only major side effect is extreme fatigue but I had that even worse when I was in a flare for over 10 months and crippled. Almost put in a wheel chair and hospitalized. Now I can run the sea wall up to 12 KM . I know other people have it worse but it’s still very depressing. Also I can feel the shot wear off a few days before the next one which makes me remember the disease is still there.
Yes. I taking simponi from last 3 month and i have very heavy hair loss.
Hi..I was on remicade for a few years (3) until my body started rejecting it.. After that I went thru quite a few others.. Orencia, Actemera. Cimzia. Rituxan, Huimera, and now on Enbrel..
All of them lasting almost same amount of time before body started reacting or No reaction to medication.. And all of them hade same side effects .. Hair loss and nauseas light headed weakness for the first couple of days of TREATMENT..
I am running out of options.. Because my body is starting to reject Enbrel.. I have been advised about simponi.. Since it is one of my last options.. But still thinking since THAT one is given every 6 to 8 wks apart.. My RA is to aggressive and need medication to last longer in the system..and this king of treatments start to wear off in the 3 week.. Pain is i unbearable after that.. Hope this info helps you..
All I can say is to try Xeljanz or Rinvoq. They a new class - type - of RA meds and I found them after being on virtually every RA med I was not allergic to. They worked wonders for me and you take them by pill - either 1 a day or 2x a day so there is no wearing off before the next treatment.
I have been on simponi injection for 5 years now and yes my hair has thinned and yes I agree, coming to the end of the month a week before my injection is due I am irritable but compared to my excruciatingly painful symptoms in my chest. Rib cage, finger joints,spine and ankles give me the mood swings any day. I have now been diagnosed as being depressed and I think it’s another side effect to simponi. what I am finding difficult is the fatigue, being in a different country and being fatigued means I don’t have the energy to put into new relationships. Can anyone suggest something that could give me more energy
Yes. I am experiencing a great amount of hair loss on Simponi. I was on Enbrel for years - no hair loss. I have stopped taking methotrexate, against dr's instruction, in an attempt to stop or reduce hair loss. It's still falling out in large quantities every day. Very depressing.
I have been on (golimumab) symponi aria for 5 months. My hair is at least 30% less full than it was. That's not the worst, though. I had very think hair so that was a good thing, but the hair I hair left has lost any of its curl, volume, or ability to hold a curl for more than half an hour. Really, really frustrating. I know it works well on my joints, but I am a person, not just a bunch of joints! I am extremely tired no matter what I have tried. I am active and on the treadmill daily, but it just isn't much fun anymore... everything is an effort. This is the only RA medication I am on. Looking for something that is better to suggest to my doctor.
I went through almost all the RA meds - I had a major allergic reaction to humira so I can't take any TNF meds - there is little to choose from. My Dr. recommended Xeljanz - and what a difference!! It is expensive but the improvement I experienced was dramatic to say the least. More energy, no wearing off between infusions, (take a pill 2x a day) hair loss stopped and beginning to regrow again, almost no joint pain and my joints are no longer super inflamed. Everyone says when they see me that I came back from the dead. -- That is the best compliment I could ask for.
I have RA and recently switched to Simponi. I absolutely LOVE it but it does kind of "wear off" about a week before the next infusion. But the upside is that I feel 20 years younger! No more sleeping for days and flares once a month. Actually I really haven't had any side affects except the week before feeling edgy because I need my next infusion.
I was on remicade and had hair loss so doctor put me on simponi aria, same company, still have hair loss!
I am currently on Simponi, it caused serious mood changes and I am losing my hair. It is not falling out in clumps, but slowly thinning.
My husband is on Simponi, and i have noticed significant mood changes just before the injection about one week before. Irational and extremely miserable
Its not right, does anyone else have this. He also feels he is going down with a head cold!
I have been on Simponi for 2 yrs now and have not noticed significant signs of hair loss.
None of the reviews mention anything about hair loss, and hair loss is not a known side effect of Simponi either so it's hard to say.
Related topics
remicade, rheumatoid arthritis, simponi
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