I was just diagnosed with Burning Mouth Syndrome. I was told there is two different stages, as to I was diagnosed with the extreme one. I have never felt anything like what I do with BMS, personally I'd rather give birth all over instead of what I feel with this. I'm ok when I get up in the morning, and as the day progresses I become worse, and by six pm I'm in severe pain. I have BMS all in my mouth, as well as around my mouth inside and out. I am diagnosed with Fibromyalgia as well no relief in pain there either.
Foods to avoid when I'm diagnosed with BMS?
Question posted by TeddiBuckner on 12 June 2015
Last updated on 11 June 2022 by burningtongue3
So sorry you had to join this group of sufferers without answers. I wish I had some good advice for you, seems so many people are trying the same medications but nothing is really relieving the most annoying of pains effectively. I have personally come to terms with the fact that not enough people are pushing doctors for answers. It's a shaming ordeal to go through when only the people on this site understand it. My own husband doesn't even remember half the time that this pain exists. Reminding the people close to me is just too exhausting. If you don't live with this continual torment 24/7 it's just too hard to understand! But when I'm at the dentist, dermatologist, ophthalmologist I ask them if they've heard or know anyone else who is going through this? So far to no avail, but if we keep asking questions to the professionals the word will get out eventually. I hope the best to you. I don't frequent this sight too often because it can be dismal.
My symptoms of BMS are identical to yours. I also have Fibromyalgia. I was diagnosed 8 years ago by a specialist, an Oral Facial Pain Specialist. He told me the pain was Neuropathy of sensory portion of 3 cranial nerves and no known cure. As to foods to avoid, for myself, I have not eaten out in years. I fix what food I eat at home. I do not use ANY pepper, Salt, garlic, onions, BBQ sauce, NO Mustard or ketchup, basil, peppermint, NO seasonings of any kind for me. I avoid most all canned goods as they contact Citric Acid as a synthetic preservative. Citric Acid sends my mouth into orbit burning high enough to enter space. I only have 1 cup coffee in morning as this does kick up burning but since I don't sleep but 3 -4 hours a night, I need it to rise and 'shine', riiiight.
My diet is no longer what it once was. I would not dream of eating any delicious Ethnic foods that I used to (Italian, Thai, Chinese, Mexican, Southern & all the rest as they have Seasonings in them that make my pain worse and for many days). My diet now subsists of eggs in any form or fashion (egg salad, boiled, scrambled, sunny side up, fried, poached), tuna fish with mayo, fresh potatoes & sweet potatoes in every possible way (baked, mashed, boiled, roasted in oven, I eat large salads 3-4 nights a week- I make with 3 different lettuces and include garbanzo beans, or any bean you like for protein, shredded carrots, asparagus, roasted sweet potato, Goat cheese, boiled eggs, cucumbers, NO TOMATO EVER, NO PEPPERS, NO SALSA, NO SAUCES AT ALL. I do NOT use ANY salad dressings either. I pour Olive oil over salad and a little maple syrup. I normally have a Baked, mashed or Roasted potato with butter/sour cream 1-2 a week, I fix frozen Blintzes with sour cream, yum. I enjoy some yogurts. I AVOID ALL COLD CUTS as they make my BMS worse. I can eat a Roasted Chicken as long as the skin is removed since skin is rubbed in seasonings. I steam, sauté or boil the many squashes, broccoli, cauliflower, brussel sprouts and serve with small amount of lowfat butter. I cook Okra and Fresh corn on the cobb. I also keep a thermos of ICE filled cold water with me 24/7 to sip on throughout the day and evening when the fire rages on. It goes EVERYWHERE with me. I avoid Chocolate as it kicks up my burning. Pork and other meat make my BMS worse. I also eat bananas, apples, peaches, melons, berries, applesauce, grapes, different nuts for protein. I used to be a foodie who cooked almost every cuisine there is. I have a bookcase of 6 shelves of cookbooks because cooking & eating was ALWAYS my Hobby. It brought me great pleasure. Like some enjoy dancing, playing music, writing, sports, etc. I used to entertain friends and family with outrageous meals in our home. Or take food to someone. In the past 8 years all of that has come to a total halt. Yet, I think my diet is healthy - just not the same as it was for 59 years. Yes, I miss all the spice, seasonings, ethnic dishes terribly. But not much any of us can do. Sometimes at night when the burn is searing, I will go to kitchen freezer and get 1-2 tablespoons of ice cream or frozen yogurt and allow it to melt on my tongue. It's heaven even if only for a brief time.
I also had to stop eating ALL CITRUS, oranges, grapefruit, orange juice, etc. Hope this helps some. I essentially LIVE in the Produce Department for my diet. No sodas, chips, etc. I am sorry you are suffering. This is a terrible condition to have, no cure, no good treatment. At night try to keep ICE CUBES & Water next to your bed with a straw to sip on because my burning is at its worst by nightfall and some ICE water in mouth is soothing. Best... K2Z
I did my own research because doctors did not help me even after I went to the emergency room. I was donating plasma regularly and I was one of the rare people who got citrate toxicity. When I was at the emergency for a ruptured ovarian cyst I had blood tests done. They gave me no answers as to why my mouth was on fire and dry mouth. I was miserable for 2 1/2 months. Easily he could if seen that I was .2 low on my calcium and that does make a huge difference. I did my research and citrate reaction depletes you from calcium. BMS comes from medication , either switch or different dose. Most commonly comes from a vitamin deficiency. I got myself on 600 mg. Of calcium also D3 helps with not getting kidney stones and K2 it brings the calcium where your body needs it and lots of Jesus. I am already getting better 2 days later. Check if your low on vitamins. Good luck.
I take Neurontin (Gabapentin) Xanax and Benadryl which help tremendously. When I first started with the Burning Mouth it was so bad that the inside of my mouth would peel. It truly is the worst pain ever. It hits me worse at night too. I would try these meds, but you may come up with your own regime that works. I just pray that they find a cure!! And soon!
What type of Doctor diagnosed you? It's hard to get a Doctor to believe that this exists.
Stay away from acidic foods anything spicy I just don't eat anything red no chocolate no coffee or tea unless decaffeinated I'm on percocet and sometimes oxys the pain can get that back this happened 2 yrs ago lasted about a month I got my dentures relined this time I'm replacing them I'm told I'm allergic to the resins in the denture cost me 200 more to more a allergy resistant lining over them u have to try and deal with it as it comes most times it's caused by something else bad fitting dentures or acid reflux or gerd are all culprits of BMS good luck
I was diagnosed with BMS by my ENT several years ago and he stated that it was neuropathic mouth pain and sent me on my way!!! Said there is no medication for it. Such a horrid condition! Wake up each day wondering how bad it will be today! Gets worse as the day goes on. I take a powered aspirin everyday at 6pm just to ease the pain. I have the exact same symptoms that you do. It went away once for a few months but then it returned! So glad I have found this support group to see I am not alone. Wishing you the best.
I have had BMS for 6 months now. First diagnoised by my dentist, who was not helpful at all! Then to my internist for a physical. He hadn't heard of it either, but put me on Gabapentin to try, but I hated the drug, it made me feel foggy. I have investigated on the internet, and learned a lot that way. I currently take Cymbalta 60 mg for anxiety and depression, I have been on this med for years!! Just had my hearing tested, by a ear,eye,nose specialist and he was the first doctor that had heard about this dreadful problem!! Actually gave me tips and advice, but also agreed it will last a long time!! Sending me for blood work to see if I have vitamin problems. I agree with another posting, that stress my make it worse. When on vacation, my symptoms got better? Sometimes, in the evenings I take a strong pain pill, dilaudid, which helps. Left over from surgery one year ago!! When they run out, I plan on asking my doctor for a strong pain med to help in the evening!! BMS is not fun and any info is welcome!!!
I also have the Primary Burning Mouth Syndrome. As other people have written, clonazepam, an off-label anti-depressant such as Cymbalta (meaning this drug helps to inhibit the nerves firing) and possible Gabapentin work for many I know.
I was diagnosed a year ago. I tried everything. We finally decided on the following combination, and knock on wood, my BMS is virtually gone, well not apparent. 300 mg of Gabopentin, 1 mg Clonozepam, and I upped my Zoloft from 100 to 150 mg. I am fine. Try it. Maybe you don't need the Zoloft, but it calms me. Gabopentin is a must. Good luck.
Have posted before that very little seems to help with this syndrome, however, I am more and more convinced that it is linked to worry, stress or depression. When I'm on holiday I notice a distinct drop in frequency and severity of pain. As soon as I return to work, it starts getting worse. As mentioned elsewhere, keep trying different things. If your Dr says it's ok, try a low dose of clonazepan. I find it sometimes eases it if I lat an aspirin dissolve in my mouth, again, if your Dr says it's ok try it. I also chew a lot of sugar-free mint gum, this eases it temporarily. My next thing to try is acupuncture. Sounds a bit silly but if it's worry-related it might work. I'll try and report back on here. Other people have said try capsaicin tablets, I've not done that yet. Main thing, Teddi, try and be positive, the more down you get, the worse it gets. Good luck. Keep posting if you have any success!
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.