I was just diagnosed with Burning Mouth Syndrome. I was told there is two different stages, as to I was diagnosed with the extreme one. I have never felt anything like what I do with BMS, personally I'd rather give birth all over instead of what I feel with this. I'm ok when I get up in the morning, and as the day progresses I become worse, and by six pm I'm in severe pain. I have BMS all in my mouth, as well as around my mouth inside and out. I am diagnosed with Fibromyalgia as well no relief in pain there either.
Have posted before that very little seems to help with this syndrome, however, I am more and more convinced that it is linked to worry, stress or depression. When I'm on holiday I notice a distinct drop in frequency and severity of pain. As soon as I return to work, it starts getting worse. As mentioned elsewhere, keep trying different things. If your Dr says it's ok, try a low dose of clonazepan. I find it sometimes eases it if I lat an aspirin dissolve in my mouth, again, if your Dr says it's ok try it. I also chew a lot of sugar-free mint gum, this eases it temporarily. My next thing to try is acupuncture. Sounds a bit silly but if it's worry-related it might work. I'll try and report back on here. Other people have said try capsaicin tablets, I've not done that yet. Main thing, Teddi, try and be positive, the more down you get, the worse it gets. Good luck. Keep posting if you have any success!
I was diagnosed a year ago. I tried everything. We finally decided on the following combination, and knock on wood, my BMS is virtually gone, well not apparent. 300 mg of Gabopentin, 1 mg Clonozepam, and I upped my Zoloft from 100 to 150 mg. I am fine. Try it. Maybe you don't need the Zoloft, but it calms me. Gabopentin is a must. Good luck.
I also have the Primary Burning Mouth Syndrome. As other people have written, clonazepam, an off-label anti-depressant such as Cymbalta (meaning this drug helps to inhibit the nerves firing) and possible Gabapentin work for many I know.
I have had BMS for 6 months now. First diagnoised by my dentist, who was not helpful at all! Then to my internist for a physical. He hadn't heard of it either, but put me on Gabapentin to try, but I hated the drug, it made me feel foggy. I have investigated on the internet, and learned a lot that way. I currently take Cymbalta 60 mg for anxiety and depression, I have been on this med for years!! Just had my hearing tested, by a ear,eye,nose specialist and he was the first doctor that had heard about this dreadful problem!! Actually gave me tips and advice, but also agreed it will last a long time!! Sending me for blood work to see if I have vitamin problems. I agree with another posting, that stress my make it worse. When on vacation, my symptoms got better? Sometimes, in the evenings I take a strong pain pill, dilaudid, which helps. Left over from surgery one year ago!! When they run out, I plan on asking my doctor for a strong pain med to help in the evening!! BMS is not fun and any info is welcome!!!
I was diagnosed with BMS by my ENT several years ago and he stated that it was neuropathic mouth pain and sent me on my way!!! Said there is no medication for it. Such a horrid condition! Wake up each day wondering how bad it will be today! Gets worse as the day goes on. I take a powered aspirin everyday at 6pm just to ease the pain. I have the exact same symptoms that you do. It went away once for a few months but then it returned! So glad I have found this support group to see I am not alone. Wishing you the best.
Stay away from acidic foods anything spicy I just don't eat anything red no chocolate no coffee or tea unless decaffeinated I'm on percocet and sometimes oxys the pain can get that back this happened 2 yrs ago lasted about a month I got my dentures relined this time I'm replacing them I'm told I'm allergic to the resins in the denture cost me 200 more to more a allergy resistant lining over them u have to try and deal with it as it comes most times it's caused by something else bad fitting dentures or acid reflux or gerd are all culprits of BMS good luck
I take Neurontin (Gabapentin) Xanax and Benadryl which help tremendously. When I first started with the Burning Mouth it was so bad that the inside of my mouth would peel. It truly is the worst pain ever. It hits me worse at night too. I would try these meds, but you may come up with your own regime that works. I just pray that they find a cure!! And soon!
What type of Doctor diagnosed you? It's hard to get a Doctor to believe that this exists.
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