After taking the 2nd 300mg dose of Neurontin, I developed a rapid onset of uncontrollable movements. It began with a burning sensation in my left hand, which started shaking. I also had a visual disturbance in one eye, like a bright light. My shoulders started shrugging, and my neck started turning. Your information I found 5 years later said Neurontin can cause strokes. My brain MRI shows that I have a 5mm lesion on my hypothalamic gland. I have learned that is where our body makes dopamine. One neurologist described me with ballism, which means twitching and jerking. I never found a neurologist who would connect Neurontin as the mechanism. One neurologist put on my referral to a movement disorder clinic. "This is a very odd movement disorder, and stranger still is the possible relationship to gabapentin. I have never heard of this possibility." So that is why I'm asking ~ Why don't doctors know about this side effect?
They may very well know, often times there are so many side-effects that are subjective, as all meds are with patients. Some are so rare they may not bother to mention them all, but this is of course, unacceptable. Thorough research should be conducted and patients made aware of every possibility, no matter how rare. Neurontin was actually recalled for a while years ago, then put back on the market.
The system is overloaded, and it will only get worse. More and more we, the patient have to do our own research.
I thought people who developed Gabapentin induced movement disorders were few and far between, but I think doctors aren't taking the time to report to Med Watch. - When I told my doctor that I was concerned that other people were also developing permanent movement disorders like mine from Gabapentin, he said, "Only people who take neuroleptic drugs, like Haldol, develop movement disorders." I reported my adverse reaction to MedWatch. They thanked me, but said they needed one or two well documented reports. Obviously, they meant they need reports from doctors. Since I found a lot of people posting about Tardive Dyskinesia on YouTube, I posted a YouTube video about my condition that can be found if you Google, "Can Gabapentin cause permanent movement disorders?" I was wearing a wig that almost got knocked off by my terrible neck jerks, along with a lot of other movements.
Since Gabapentin is becoming more popular, this reaction will occur more often, and we can only hope that doctors will be more vigilant in reporting. Best wishes from a fellow Gabapentin induced movement disorder sufferer. Hang in there.
I have been taking under 1 gr. (approx.300-600 mg. daily)of gabapentin for about 2 yrs.for diabetic nerve pain. The materials included with my RX do contain info on side effects such as those noted here. Fortunately,I have had no disorders in my limbs or tics, etc. However,I am now becoming more aware of these conditions through reading these comments. Many here are complaining that they were not told. Often patients do not bother to read the info. on RX. I believe this lack of attention to provided info. can be part of the problem, as doctors do provide these materials for their patients.
I’ve been on 300 mg of gabapentin for four days and within a half an hour of taking it my wrist jerks upward and my shoulders have minor twitches which would only be seen if I were wearing let’s say a tank top. They stop when the medication wears off. I don’t have any lesions on my MRI, but I know for sure that it’s a side effect of gabapentin. It’s so frustrating that doctors don’t understand pharmacology, or really even nutrition in general. Anyway I hope things will improve for you soon.
This is really scary! I just started taking gabapentin and within the same day of my first 300mg dose I started experiencing involuntary movements and twitching. My body jerks so bad it wakes my boyfriend in his sleep. I just thought it would stop when the medication was out of my system. And I certainly expected this to be common. However I never imagined that this could become permanent. Now after a month of taking the medication I'm very scared of this becoming permanent. I looked around and did my research and after all the horror stories I immediately flushed my gabapentin and prayed. I sincerely hope that things will get better for you.
I don't have any answers for you, just a comment.
I have had twitching in my hands ever since starting neurontin years ago. The higher the dose, the greater the twitching. It even causes me to spill drinks if I'm on a high dose.
I mentioned this to a pain doctor (who was a jerk and bad doctor to begin with - started my first appt with him with a filthy joke!) and he denied it. Said that it's narcotics that make you twitch. I disagreed and he said, "What makes you sure it's the Neurontin?" I said, "Because every time the dose goes up it gets worse, and every time the dose is lessened, it gets better."
Lately, my CRPS in my left leg (caused by another dr. who punctured my spinal cord and left me with this CRPS2 condition) has been getting worse, and my period limb movement disorder is back. I get no sleep. My Dr. increased my gabapentin dose, and the movement disorder is getting even worse. I started to think that maybe the neurontin is to blame. Investigating on the internet is proving to be very enlightening. Thank you for sharing your story.
I hope and pray that you get better. These twitches and tics are hell.
- Neurontin Information for Consumers
- Neurontin Information for Healthcare Professionals (includes dosage details)
- Side Effects of Neurontin (detailed)
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