After taking the 2nd 300mg dose of Neurontin, I developed a rapid onset of uncontrollable movements. It began with a burning sensation in my left hand, which started shaking. I also had a visual disturbance in one eye, like a bright light. My shoulders started shrugging, and my neck started turning. Your information I found 5 years later said Neurontin can cause strokes. My brain MRI shows that I have a 5mm lesion on my hypothalamic gland. I have learned that is where our body makes dopamine. One neurologist described me with ballism, which means twitching and jerking. I never found a neurologist who would connect Neurontin as the mechanism. One neurologist put on my referral to a movement disorder clinic. "This is a very odd movement disorder, and stranger still is the possible relationship to gabapentin. I have never heard of this possibility." So that is why I'm asking ~ Why don't doctors know about this side effect?
They may very well know, often times there are so many side-effects that are subjective, as all meds are with patients. Some are so rare they may not bother to mention them all, but this is of course, unacceptable. Thorough research should be conducted and patients made aware of every possibility, no matter how rare. Neurontin was actually recalled for a while years ago, then put back on the market.
The system is overloaded, and it will only get worse. More and more we, the patient have to do our own research.
I thought people who developed Gabapentin induced movement disorders were few and far between, but I think doctors aren't taking the time to report to Med Watch. - When I told my doctor that I was concerned that other people were also developing permanent movement disorders like mine from Gabapentin, he said, "Only people who take neuroleptic drugs, like Haldol, develop movement disorders." I reported my adverse reaction to MedWatch. They thanked me, but said they needed one or two well documented reports. Obviously, they meant they need reports from doctors. Since I found a lot of people posting about Tardive Dyskinesia on YouTube, I posted a YouTube video about my condition that can be found if you Google, "Can Gabapentin cause permanent movement disorders?" I was wearing a wig that almost got knocked off by my terrible neck jerks, along with a lot of other movements. Since Gabapentin is becoming more popular, this reaction will occur more often, and we can only hope that doctors will be more vigilant in reporting. Best wishes from a fellow Gabapentin induced movement disorder sufferer. Hang in there.
- Neurontin Information for Consumers
- Neurontin Information for Healthcare Professionals (includes dosage details)
- Side Effects of Neurontin (detailed)
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