Anyone have the most painful week of their life after a spinal tap?
- 15 Dec 2012 by sara12345
- 18 Jan 2018
- pain, doctor, spinal tap
Could the doctor doing the procedure have done something wrong? The doctor told me it was a more invasive procedure because they were checking the pressure. Within 15 minutes after putting my head up after lying down for hours, I had the worst pain EVER. It was worse than my severe migraines which send me to the hospital vomiting on the way. It was worse than my first week after having a major stroke. The severe pain kept me lying down on the bed 24/7 except for going to pee in a bucket in the bedroom. As long I was laid out flat, I only suffered from my usual severe migraines. But to raise up--the pain was intolerable.
Finally towards the end of the 5th day since the spinal tap, my head pain got better or I was going to the ER to get the blood patch put on. But I really didn't want to spend the 6 hours or more in the ER which is way too cold for me since my stroke.
Does anyone think that the doctor doing the procedure may have screwed up? Another doctor that I spoke to by phone, said that it was very unusual to have the intense pain so soon afterwards. Thanks to anyone who responds.
I'm so sorry to hear this.. I won't let them touch my spine.
Poor sara! My SIL had a spinal but she did not have this horrible pain you are going thru! The pain was over when the spinal was over. This sounds unusual to me, but I've not had a spinal tap before, so I could be way off base.
There must be someone else that has had a spinal tap, perhaps they can share their experience.
Just want you to know that I care, and am praying you are feeling better!
Hi Sara, Everytime I have had the spinal tap I have had the headache. where I couldn't raise my head up of the pillow without being in a lot of pain ,and when I would put my head back down the headache would go. So each day my head would be raised until towards the end of the week when the headache would be better. I think I told you this before, It didn't happen because I moved whilst I had the spinal tap It didn't matter because it has happened each time I have had one. The last one they tried to do the patch. So I feel for you, take care Liz.
Hi Sara, not having spinal tap, but instead a myleogram which is putting dye in the spine & taking pictures, the doctor always says not to raise your head for 24 hours as you will get a severe headaches. I would asume it's the same for a spinal tap. The last one I had, the doctor had me at 30 degrees, & I got a severe headache. When I asked to be put flat the nurse woldn't do it because the doctor ordered 30 degrees. I think if flat it would have gone away... Mary
Spinal headaches usually happen if you don't get enough liquids after the procedure.
Poor girl! I feel for you. I have had spinal taps, spinal anesthesia (epidural) to have my babies, and also epidurals for back pain and only had problems with one. If the spinal fluid leaks after the procedure you will get a headache. This is where the "blood patch" comes in. They can draw blood and inject it into the space where they accessed the spinal fluid and the blood forms a clot or "blood patch" and this prevents any more spinal fluid from leaking out. It will gradually get better as the area heals and your spinal fluid pressure builds back up. It is a nasty headache! Some people are more sensitive to the changes in pressure than other people too. The CSF or cerebral spinal fluid is present in the spine but also bathes the area around your brain and changes to this pressure can make you very sick. You are likely just one of the more sensitive ones.
Yes. I had same experience immediately upon having my spinal tap. They kept me in hospital and next day gave me blood patch. It gave me immediate relief of symptoms. You should have gone back to the hospital.
I had a unusal experience because I can't find any postings like mine. I had my spinal tap yesterday or should I say was suposed to. Went to hospital outpatient dept had blood work went in for spinal tap and they layer me flat on stomach.using the xray guidance they couldn't get any fluid out of me. They did 3 different areas 3 separate needles and nothing. Tilted table up,tryed rolling me on side... nothing. after a hour of this poking and proding I could feel him moving needles all around and he kept saying I'm hitting bone..and we are where we should be... I couldn't take anymore. Kept getting pain shocks down legs up back . To me just insane.I had no sedative and am pretty good at handling pain having 3 children all natural. And in last year 5 sets of cervical injections in neck and nerve burning. Have alot of major pain in my back today and last night. Can't bend. Anyone ever have this happen? Now I have to do it again
I just had a spinal tab done on Saturday, after the procedure I got home al felt good, the problem was the next day when my husband tried to make me eat. I experienced the worst pain ever! I've been suffering from migraines from quite a while but the pain that comes after a spinal tap is fatal. I wish my doctor would of told me about the pain... Today is Tuesday and I am so annoyed to be in bed I want to start enjoying my life again. Does anyone know what can help to make the headaches go away? I can't take ibuprofen because my stomach becomes upset and I get nauseous. I've been drinking lots of liquids including caffeine but the headache still there. Any suggestions?
I had a spinal tap they used a x-ray machine. So I had a needle in my back they would take a x-ray and put it further in. The pain was horrible. The pain that night after was horrible I wanted to die. I didn't want to go back to the hospital who just gave me the spinal tap so I called my doctor. I was unable to go see him for a week. He gave me some medication. I was in bed for a month I will never ever let any body touch my spine again. I would rather die. Some Doctors are not trained well enough in this procedure. Now every time it's cold out side my back hurts right in the spot the needle went in and all the way down my left leg. So I understand and feel all your pain. Good luck to you all.
I had my son almost 3 months early. Scheduled c-section he stopped growing. So while I was in OR getting my epidural the anesthesiologist was a student I didn't know this at the time. Well he was doing my epidural and missed the 1st time, then tried again missed the 2nd time and tried again and missed the 3ed time, then I guess the resident took over and did the 4th it was right. Well it was 3to late for me. They no longer got Ethan out and sat him on my chest before taking him away amd I started feeling really wierd, then neauseaed, then my head felt like it was going to explode. So they took my lil guy and the NIC team worked on him while I had a team of 15 working on me. Once done and in recovery 4 hours later. Come to find out I was having spinal migraines. So I couldn't take care of my new baby at all or not even for the next 2 weeks. I ended up in ICU flat on my back drinking Dr. Pepper only and with an IV but would vomite every chance I had.
2 weeks later they came in to do the spinal patch. But I didn't only need 1 I needed 3 patches. Worst spinal ever reliving the first 3 mess ups and praying this would work. Another 8 days dark room quiet flat on back they finally eased. Still hurt but not as bad. And I finally got to see and hold my premie. Now almost 13 yrs later i still to this day suffer from spinal migraines it's like a backflash of that supposed blessed day that turned horribly wrong. I relive it almost every other day with these migraines. Doctor took me off all migraine meds because I was getting immune. So here I am Ethan will be 13 in October and I'm laying flat in bed dark room no noise. Cold wash rag over my eyes amd on my head in the most pain ever. Jus want them to go away
My oldest son went through 2 spinal taps while he was a teenager. After a spinal tap you can suffer with bad headaches. If it's that bad than you need to call the doctor! You should lie straight for a few days after. If the headaches don't go away is possible that it didn't heal properly and they have to fix it.
I had my first and hopefully last spinal tap Thursday. Today is Sunday, and I am still spending most of the day in bed. I do not have the raging headache that others have had. My complaint is that Friday, I could not sit without pain in my back. Sitting and standing also caused stuffiness in my ears and nausea. I spent Saturday morning vomiting. During this time, I did have headaches, but not severe. Once I lay down, the headaches and other issues usially fade within 30 monutes to an hour. I just don't know if a patch would help, and if it is anything like a spinal, I don't think I would want the patch. And yes, getting it was painful. Oh, they couldn't replenesh me with IV fluids because the IV wouldn't flow. They told me to go drink a lot of fluids.
Hi sara yes I did I recently had a spinal tap done and a blood patch but I didn't get the headache till the day after I had it done ok a wendsday got the sever headache Thursday I went back to er sunday and by that time I was throwing up and couldn't control my bowels and all they did was give me an iv with Naseua medicine and sent me home with naseua medicine so Monday I get ahold of my doctor who sends me to a neurologist who sends me to a pain management doctor who I finally get the blood patch from a week later and yes that pain was unbareable I couldn't even move in my bed without throwing up I feel your pain of what you had to go thru and it's sad that some doctors will just leave you in agony no matter how you look cause I must of looked pretty bad when I finally went back and still got sent home in the same state I was taken in...
A couple years ago I had a spinal tap done. For two weeks was unable to sit up could only lay down had severe head back and leg pain. Suffered for two weeks until the doctor finally gave me an IV of caffeine. Still don't understand why that happened. I even had to lay down in the car on the way to my doctor's appointment because I was unable to sit. And to this day I still have no answers why that happen.
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