... my orthopedic, my rheumatologist and even my son's rheumatologist say I will definitely have a major fibromyalgia flare up from the surgery. I am so scared and have been holding off the surgery for a year now. My pain doctor has been doing minor procedures to try and help keep the pain bearable. At this point things aren't helping as well and I know I need to have the surgery eventually. If you have gone through surgery and had a flare up from it, how bad was it? Did you regret having the surgery? If I know how bad it would be I can prepare for it. I think I'm scared because I don't know what to expect
Has anyone had a fibromyalgia flare after having major surgery? I need to have scoliosis surgery and
Question posted by DancnDar on 26 July 2016
Last updated on 6 April 2017 by Barbara933
I had 2 knee replacements, and honestly, there were probably flares, but the pain from the knees before the surgery was making the fibro worse. After having the knee surgery I felt SO much better. Much of my pain meds. were decreased. I have found rest one of the biggest factors in feeling better. Is your back causing you to be unable to sleep? Is it good rest? Does your back hurt all the time, as in each movement, rest, walking, sleeping? If so, what do you have to loose?
Get a second opinion before surgery. I had low back fusion and now have "failed back surgery syndrome" and now fibromyalgia. Starting Lyrica, 100mg, TID, hoping it works because sometimes it really hurts. Think twice about surgery, once it's done it cannot be undone. Good luck my friend.
I had low back surgery 2 years ago. Now I have "failed back surgery syndrome" one doctor says, other says "bad back and nothing they can do", now "fibromyalgia". At least in Maine I can use medical marijuana for it.
As you get older, surgery is harder to tolerate and involves more risks. Let's face it... We aren't spring chickens anymore !
I think I'm qualified to help you with your question.
I'm presently in Rochester, Min after undergoing major abdominal surgery leaving me with my worst nightmare... an ileostomy. It was totally a phobia.
I was more afraid of the fibro pain than the surgical pain. I had abdominal surgery 6 mo ago at a community hospital. I don't remember the post-op pain but the horrific fibro pain.
This time I went to Mayo where I had more confidence with the resources available of a team approach. I was reassured pain management would control whatever pain I had. I also went to their fibro neurologist to get a definitive diagnosis on my chronic pain. He was wonderful! He spent over an hour with me (after another hour by his assistant neurologist) confirming I had severe fibro based on physical exam and testing. He looked at me and promised it can be controlled. He was a sufferer of chronic pain himself who is now able to do marathons! He gave me hope! He told me my opioids were doing more harm than good.
I had my surgery 3 weeks ago. Pain management did what they promised and kept me comfortable plus made sure I slept which is unusual for me. Pain control and sleeping kept the fibro from being an issue.
It helped me to tell them I needed to give 2 pain levels. One for the surgical and the second for my fibro. It made everything clearer to everyone as to my progress.
I met with a variety of specialists after discharge. Each pointed out the opioids being a problem.
Tomorrow I'm to meet with physical therapy who specializes in fibro. I'm terribly deconditioned and the home therapists are giving me exercises. However, the neurologist pointed out the fibro Pt is going to take it easier but my recovery is going to be extensive and longer but I have to stay with it at home daily.
Three days ago I started coming off my opioids. The docs don't know it yet but I have the confidence and they empowered me.
If it helps, the surgery was 6-30 and three weeks later I'm coming off of years of opioids !
Lol... I guess I should be under supervision but when I decide to do something I do it!
Don't have the surgery until you feel comfortable that your needs will be met. It's very important to know they have your back covered so all you have to do is recover. Make sure when the therapy gets you ambulating that they are knowledgeable in regards to fibro recovery.
"Normal" recovery is not normal for you because over-exertion may start a flare.
Best of luck and our prayers are with you.
Be positive, keep your sense of humor and focus on your mental strength over this troublesome syndrome.
You can have a flare. Also could take little longer to heal do to pain. I have had surgery but I can not say it was not worth it because of the pain. Talk with pain management doctor so he can adjust what you take after surgery. For me it just meant dealing with pain a little longer than the average person. Mostly because I already take pain medication so I needed the dosage changed for a short time until the pain subsided.
Do not be afraid of the surgery if it will help you. Never give up if it will help lower your pain.
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