My BMS started in Dec. 2019 after I had a tooth pulled and a dental implant put in. It was a process, building up the bone. The periodontist knows nothing about it and of course, tried to blame it on Sjogren's Syndrome, which I was tested for 5 separate times and in-depth testing in March of 2021 at Johns Hopkins. Salty foods trigger mine and sometimes alcohol. I chew sugarless bubble gum.
Does alcohol or salty food affect your BMS?
Question posted by Mypurrogative on 13 July 2021
Last updated on 17 August 2022
Answers
I wouldn't wish BMS on my worst enemy. No one knows unless you have it what a hellish condition BMS is. I have found carbonated beverages, red wine (my favorite) and acid-based foods trigger my BMS. Water either from the tap or bottled has a metallic taste. The BMS stopped for about 3 mos. last year. I thought I had licked it but back it came. Currently, I am using "magic mouthwash" and have just started dexamethasone rinse. I also chew sugarless gum and my GP recently prescribed Zolpidem (5mg) for sleep. Wishing you the best... Buster 25443
Busterboy25443... I, too chew Carefree sugarless gum. In the evening I have to chew on crushed ice. I wish you the best also..Mypurrogative
I have had Primary BMS daily for over 7 years. Finally received a correct diagnosis out of state by an Orofacial Pain Specialist at a Dental School. He told me my BMS was caused by damage to sensory portion of 3 different nerves that supply Oral cavity. My specific affected Nerves were 5, 7, & 9. My lips, tongue, roof of mouth, gums always burn. Before 'BMS' I always salted my food(s) or recipes. After getting BMS, I could no longer tolerate ANY salt. My mouth tasted like I had 20 cups of salt in it, so I quit using salt entirely. The burning has never stopped in 7 years, despite stopping salt. Luckily, my mouth doesn't taste like salt any longer. However, with the 2 prescriptions he prescribed, the burning usually hangs around a level 3-5 but can be triggered to a 10 by most all food. I eat very bland, home cooked, non-processed foods in order to keep the pain level as low as possible. Citric acid, a preservative in 90% of all food in grocery stores sends my pain into orbit. It is possible a nerve might have been adversely traumatized or damaged with your dental work. The specialist told me sometimes with dental work, a nerve can be accidentally damaged since they cannot see through flesh where they are injecting and bms can be caused. He also stated there are other possible causes. I've had repeated Sjogren testing also which has always been negative. I chew gum, keep ICE cold water with me 24/7. I hold Ice water on my tongue to cool it off. I find a glass of wine sipped through a long straw actually helps reduce the burning pain because alcohol increases or turns up Gaba receptors in brain, as some medication does and provides me pain relief. Only 1 glass around 6 pm. Try to see an Orofacial Pain Specialist for 2nd opinion. I had to travel 3 states away to find one. Burning Mouth is what they study and treat. I went to dozens of different physicians and dentists who knew nothing and were not interested. But my out of state Specialist, was thorough, understanding and told me after a 2+ hour consultation, I had primary vs secondary, BMS. I had to quit eating Italian, Thai, Chinese, all seasonings, etc. I stopped dining out because the intensified burning pain wasn't worth it for me. I avoid Mint like its arsenic, kicks pain to a 10. My dentist suggested I try Oxyfresh Pro Relief Dental Gel. I have used it for 6 years in place of toothpaste, without any cavities despite no fluoride in it. Despite it saying 'mint' on label, it isn't enough to increase my burning. I find it soothing, my dentist does not sell it, I order it online as it can't be purchased in stores. Maybe it would help reduce your burning pain. I am so sorry you are dealing with this. I think if you could find an Orofacial Pain Specialist (some at Universities as Professors in Dental Schools, some in private practice) you may find more or better help for the BMS pain. I can only say that for me, the Orofacial Pain Specialist/Professor was a Godsend. We remain in touch 7 years later. My best to you...
You are perfectly describing my life! I had a tooth pulled which damaged my trigeminal nerve and I have been suffering nonstop hell for 9 years. I had an official diagnosis from the Mayo Clinic, who has an entire Dept devoted to BMS. I have been thru too much to even discuss, and I finally found a doctor who put me on the right meds. My pain clinic doctor put me on a combination of Nucynta and carbamazepine and gabapentin and it reduces my pain significantly. Just like you, my life has been dictated by my BMS
Hello K2Z, and thank you for participating. I will find an orofacial pain specialist as soon as I look online. I, too have been to every specialist. I will also travel to the ends of the earth to find someone who has some knowledge about BMS. I had a very bad flareup last night, started around 2 PM and lasted until 10 PM when I finally had to go to bed because I couldn't take it anymore. Thank you again for your article.
Good morning Mypurrogative. I found my Orofacial Pain Specialist at LSU in New Orleans, though I do not live in that state. That said, the evaluation, treatment, advice, etc. was worth the trip and remains so today - though he and I have remained in touch via email and phone when necessary. I wanted to let you know he told me there was no cure for mine, only pain management. Consequently, working with him he started me on low dose Klonopin & Gabapentin. I could not tolerate Klonopin so he switched me to Valium (diazepam) and kept the Gabapentin. I am highly, highly sensitive to any and all medication. The Gabapentin (an antiseizure medication similar to Lyrica) at 200 mg. once a day, blew out my white blood cell count below normal levels. So I only take 100 mg. at night. I realize this dose sounds ridiculous but if you read the PDR (Physicians Desk Reference), with higher doses of Gabapentin (Neurontin), there is LESS available to the body.
Lower doses actually are more bioavailable to the body. Unfortunately, too many physicians never bother to take this into account and many patients end up on 3000 mg or similar doses without patients receiving relief. The higher the dose, less available to body. Anyway, I just wanted to share with you that 100 mg. of Gabapentin and Valium every 12 hours has reduced my pain. I've even tried hypnosis, along with acupuncture, homeopathy, Naturopathy, anti-depressants. Everyone has different chemistry, hence different things work for all of us. Still have burning pain but much less intense with these 2 low dose meds on board. Let me know if I can help you in any fashion. K2Z
Interesting reading your link to nerve damage... My BMS started suddenly the morning after I almost broke my leg. My knee popped out and in again sideways (stupidly tried playing netball again in my 40's and did a cool jump catching the ball midair and landed in a crumpled heap... :0#) Crutches for months but the very next morning my mouth "exploded" with a bunch of crunchy nut cereal. NEVER had any allergies. Since then it comes and goes. Sometimes a "time of month" thing or sometime just when I'm feeling particularly run down/stressed or not sleeping enough. But you've got me thinking if there are any nerves in your legs connected to your mouth??? I've heard of teeth being connected to other parts of body?
My mouth will feel so raw and the skin can actually break up/ulcerate under my tongue and around gums. Last couple of times my whole throat in agony too (and then paranoid I've got Covid!)
I've found cutting out milk/butter/cheese helps and I can't touch any acidic foods, wine or certain toothpastes (baby toothpastes and some Oral B's OK).
OAT MILK is wonderful and calms my mouth. I substitute that in everything or just on its own instead of water which can even irritate when it's really sore/inflamed.
Experimenting a bit with Kefirs/fermented natural yogurts which seem to be just about OK. Soft GOAT's chees also fine to eat and cooling. as are things like avocado, cucumber. Apple juices are also OK and can help calm it.
Just back from 4 nights in Paris where I had to forego the lovely wine. But a managed some cider and a bit of beer. Guinness is lovely and calming as well I've found! (Heavy enough to treat as a supper if you can't manage much food that day! Haha!)
Totally depressing and want to cry with it - my doctors and dentists don't have a clue. Am awaiting bloods as asked to be tested for hormones for HRT. In case that might help. Then only last night another dentist friend suggested hydrocortisone buccal (oral tablets). Normally prescribed for mouth ulcers. Not a cure but may be a help. Will try anything!
Should have said it's been 6 years now on and off...
Related topics
oral and dental conditions, burning mouth syndrome, food, implant, tooth
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