... Discovered in a CT scan. First question was how much do you drink? answer maybe one drink every 3-4 months. Dr prescribed Creon 20, took it first day, next am sore throat, same for days 2 & 3 day 4 could not speak and throat hurt really bad. Did not take pills on Sunday, am could speak & swallow. Called Dr - took me off Creon and wants me to go to Houston to have an EUS. I am under the impression that I really need these pills, have lost 34 lbs in about 4 months.Have done lots of reshearch on line - Dr did not tell me much - just that if the pills did not work would want to look again for Pan Cancer. I must admit that I am scared. I have pain if I eat,(or not) pain under ribs and around my back, cannot sit in same position for very long with out hurting and wake up in the am thinking I needed a new mattress, what a way to discover that the mattress is not bad!
I am so confused. For 2 years with no answer.
After 2+ years of diaherra, bloating nausea and pain I was finally told I have Chronic Pancreatitis?
- Asked
- 19 Mar 2013 by BettyJD
- Active
- 30 Jun 2013
- Topics
- creon 20, pancreatitis, chronic pancreatitis, pain, nausea/vomiting, abdominal distension, creon, chronic
Responses (4)
I feel ya i'm going through what they wonna call a episode as we speak . The pain is awful as u said if u eat u hurt if u don't u hurt .. u only keep fluids in you and u still on the toilet and ur thinking y and how??? I have always been a heavy set girl well 3 yrs ago in 2 months I went from 160 to 114 .I was also asked the question how much u drink ? When u say u don't they look at u like u are stupid ..I was in hospital 3 weeks 4 pints of blood ,, no food , fluids after fluids , test after test they say after I don't go through dts from being in hosptial U will never get better , u will have pain and u will have episodes some worse than others ..WHAT DO U SAY OR DO TO THAT?? They r suppose to help u not b heartless but they assume u r lying and u are hiding past drinking or u drinking still like one night u went to bed and said please god let me wake up with this condition and hurt for the rest of my life and never get better.
I have had pancreatitis all my life. Was not diagnosed until I was in my early 20's. It has progressed to calcific pancreatitis, which means it is calcifying or stoning. I have to rely on digestive enzymes and I am also now a full diabetic because of it. The enzymes prescription will do absolutely nothing for helping your pain. It only helps with malnutrition. The diarrhea in my case comes from not having enough enzymes, thus not digesting fat and passing through. Being short of enzyme lipase will result in poor digestion of fats. Amylase is starches and protease is for protein. The big give away for high fat stool in light in color(whitish and or pale) and if if is real bad the stool will be liquid fat, best described vegetable oil like. In the same scenario with lack of amylase has a very very offensive smell that could be described as rotten potato like smell. If you have fatty stool diarrhea, I would bet that you are short of enzymes.
It sounds like you could have an allergy to pork proteins. If that is the case it is really hard to take any enzymes. I would try another prescription like pancreaze. It is the same as Creon, different manufacture, slightly different ingredients. That would confirm allergy to the pork or something else. I have better luck with pancreaze. I found that most doctors dont understand pancreatitis, so going to the right doctor makes a huge difference. These enzymes (Creon) do not help with pain at all. These are only to help digest food. The diarrhea is mostly from passing undigested fat because of the lack of enzymes. That causes many issues like gas, bloating etc... I can answer more questions if you would like or explain more when I get to a computer.
Oh, I sure hope not. what would I do if I cannot take creon? The google info on pancreaze says it is made with Pork? What would that tell me? I was diagnosed at UCLA from a ct scan and endoscopy. I have eaten pork a lot, have no idea if I am allergic? How can I find out, is there a test they can do to find out? I don't have panceatitis. I do have thicken stomach walls. I just can't stand the amt. of diarrhea I still get on this medicine! I know it has to be something I am still eating, but lately just went back to brat diet until diarrhea clears, 2 days now. I will go back to "low residue" diet, very low fiber, no more than 15 g soluble fiber a day. This was the diet that was supposed to fix me.
I did have fat in my stool before taking this, that was why I was given the creon.
Have you seen a gastroenterologist? If you haven't' it would be very helpful. How much Creon do you take and size? I take mt20, 4 a meal, and sometines I have problems. Creon, pancreaze etc... are all enzymes. Three amylase, protease, lipase. Each one just has different enzyme counts, or various different ingredients. They are dosed by the amylase, mt16,= 16,000. They are all made from pork/pigs via extracting the enzymes from them. I personally had much better luck with the pancreaze. If your loosing weight and no gain, and you are enzyme deficient, with fatty stool, it seems that you need more Creon. What has caused you to be enzyme deficient? Usually caused by pancreatitis or cysticfibrosis.
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Chose this character because this is how I feel these days... and she is NOT smiling. Turned 60 and fell apart!
I really don't take anything except what I can find for myself after the docs wouldn't help and told me it would forever b this way I lost all faith in docs and I didnt go to just one .
I was on Creon but I refuse to take it because sometimes the taste makes me throw up. I had one episode that took me a year to recover from. I survived on baby food. I was admitted to the hospital 8 times and in the ER 16 times. Today, I am off Creon and can eat food again. I haven't thrown up in months. I still get nauseous and some pain, but there is light at the end of the tunnel!
I am writing this for my mother who is 78. She doesn't use a computer much so I am trying to help her out. She has been suffering with Chronic Pancreatitis for the past six years. She is sick everyday with pain and nausea. She feels she is just existing and her life is non-existent. She takes Opana for pain, Cymbalta for depression, Ativan for anxiety, and phenergan for nausea. She has also been diagnosed with Celiac disease. She stays on a low fat diet, and follows a strict gluten- free diet. She is also supposed to take Creon, but admits she skips from time-to-time. My mother wishes her end would come and it just breaks my heart because she was so active at one time. I miss my mom, and I can't stand to see her suffer. She just wants to talk to someone, anyone, that shares her same illness. If there is anyone out there suffering like this, please get in touch with her and just give her some hope.
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I told her about support blogs, but she would just like to talk to someone with the same illness. We have gone to Johns Hopkins, the Cleveland Clinic, and are thinking about the Mayo Clinic next. She is so desperate for relief. Her telephone number is 804-861-2107. My phone number is 757-403-8799. Thank you and God Bless.