The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Topamax (topiramate) for Seizure Prevention: My five year old was prescribed this medicine after he started having breakout seizures on his other medicines. After about two weeks the seizures had not decreased and he started complaining of severe eye pain. A visit to the eye doctor confirmed very high pressure in his eyes. It did not work well for him.
Topamax (topiramate) for Migraine Prevention: I was on Topamax for about a year. I didn't notice any major side effects at first. I was loving the weight loss (didn't consider that a bad one). It did help decrease the frequency of my migraines. Unfortunately I started noticing that I was having trouble remembering things. I was feeling like an idiot and was back in school so it was not a good combination. I wasn't in school when I started on this medication so I didn't realize how much it was affecting me.
Topamax (topiramate) for Migraine Prevention: My doctor put me on Topamax for my migraine headaches, I was on that medication for about 3 weeks, took 2-25 mg a day. During that time I had one huge migraine and 6 headaches. I felt very tired and couldn't speak clearly and couldn't finish a sentence. I would NOT recommend this medicine to anyone. IT WAS A BAD EXPERIENCE.
Topamax (topiramate) for Migraine Prevention: I have been taking Topamax for 6 years. It was originally prescribed when I experienced a major change in my migraines at age 46. The migraines have been controlled; I only have had one every 2-3 months. Before Topamax I was having migraines twice a week. (Imitrex is great, but taking it so often was frightening.) I have had kidney stones (wasn't drinking enough water), difficulty finding words, memory problems, fatigue. My goal is to reduce my dependence on this drug by increasing my overall health and fitness with better eating habits, exercise, and stress reduction.
Topamax (topiramate) for Migraine Prevention: I had tried everything Depakote, verapamil, Inderal, etc. and I had several migraines a week. I have been on Topamax for 15 years and it has made a huge difference. I still have a few migraines a month which usually respond to Imitrex. As the years have gone by the tingling, loss of words have gotten much better. I can't do without this medicine. I'm a nurse and for the one or two out of control migraines per year I use injectable Toradol. That is a miracle medicine. No more Emergency department for me. I can now feel free, live a normal life, not terrified of being stuck in a dark room with vomiting and wanting to die.
17 users found this comment helpful.
Topamax (topiramate) for Migraine Prevention: I suffer bi-lateral migraines and have been on Topamax for several years off and on now. I have mixed reviews. I LOVE Topamax, because nothing else works for me. In fact I was given Maxalt and Propranolol together and wound up in the hospital almost dead. You can NOT take those two together. All medicines have side effects, so does Topamax. I liked the weight loss in the beginning, but be careful with it. I lost 80 lbs and couldn't stop. I forgot to eat. Topamax makes me just not hungry. I have it fixed now and watch out for it, but it was very scary. The memory loss has been a problem at times, but has been funny too. I have not experienced the HOT they spoke of...I FREEZE ALL THE TIME!
13 users found this comment helpful.
Topamax (topiramate) for Bipolar Disorder: I have taken this for about a year. I have lost about 40 lbs. I am taking it to help depressed moods. I also have to take the brand and not the generic. I will have late onset asthma with the generics and other unpleasant side effects. I tried more than once to use generics but it won't work. So , give it a try if you can afford the brand name. IT makes a big difference. I also found that all my migraines disappeared while taking this. What a relief that was.
16 users found this comment helpful.
Topamax (topiramate) for Obesity: I'm a Male in my early 50's. I was struggling with weight loss. My doc put me on Topamax several years ago to curb my appetite and since then I've been able to loose 65lbs and keep it off.
32 users found this comment helpful.
Topamax (topiramate) for Migraine Prevention: I took Topamax for a month. It helped with my headaches very little and the side effects were terrible. My feet and hands would go numb several times a day. My short term memory was completely gone. I had a hard time finding the words to speak especially in the evenings. And the very worse was the depression and anger.
Topamax (topiramate) for Obesity: Topomax combined with Melatonin have prevented me from waking up and eating in middle of the night. Has allowed me to diet and make progress. However, side effects have been challenging, mental fog, reduced sex drive are just a few.
28 users found this comment helpful.
Topamax (topiramate) for Migraine Prevention: I just started taking Topamax a little over 2 weeks ago. I am up to 100 mg a day. I am starting to really notice some short term memory issues, however I have not had a migraine, let alone a single headache since starting the medicines. Everything has started tasting weird since starting the 100mg dose. I used to drink at least 4 cups of coffee a day and can't stand to drink it at all. The bonus is that it has helped with the caffeine withdrawal. I am also a smoker and it has helped reduce my craving for tobacco! I have read a lot of the posts on here and am seriously concerned about many of the side effects such as hair loss. However the weight loss aspect is really appealing. I haven't lost anything yet though.
Topamax (topiramate): been on it for a couple weeks and after switching from one at nite and one during the day to one in the am and 1 in the pm (25mg), im doing much better, i seem to peter out near the time of my next dose but maybe i need to adjust a bit--25mg seems low after reading others dosages. been able to keep up w housework without feeling overwhealmed, i have more energy and more patience. Side effects=food tastes yucky, expecially my beloved sodas and rockstar energy drinks. Im loosing too much weight (Ive always struggled w being too skinny). But i feel better than i can ever remember feeling in 20yrs. i hope it continues, the side effects are worth it.
Topamax (topiramate) for Migraine Prevention: I am a 50 yr old male who has suffered from migraines for nearly 40 yrs. The toughest yrs (about 25 of them) consisted of migraines in excess of 300 days in any given yr. Then I found Topamax and asked my Neurologist if we could give it a shot for me. That was 6 yrs ago and now I have less than 50 headaches (not migraines), headaches in any given year. My dose is 200mg in the morning and 200mg in the evening, and yes like most of you I have had to deal with the numbing in the extremities but you get over it in time. The memory thing, well, how good was my memory anyway when I had a migraine that lasted for 6 months and I was blacking out at times, tunnel vision and puking almost daily. This medication gave me my life back. Thanks!
Topamax (topiramate) for Migraine Prevention: Everyones comments have been extremely helpful for me. I am on day two of Topamax and am starting with 25mg daily at bed time. First side effect I noticed was the change in taste buds. I am a big DR. Pepper drinker and went to drink one yesterday and it tasted horrible. Not too happy about that. Sleep last night was strange. It felt very restless and I woke up a lot and was confused. I feel good this morning however. I am determined to try this medicine for a couple of months. I need a solution for my migraines and it seems this has helped a lot of people. I am only concerned about the weight loss. I am already very little and definitely do not need to lose any weight.
Topamax (topiramate) for Migraine Prevention: I had migrain headaches ALL my life, they were SO bad I would be unable to function for 3 to 7 days at a time. I sometimes even felt as if I was going to die, that's how terrible the pain would be! I used to take Fiorinal, then I would be in another world, be unable to stop talking, and would be up all night. Lots of medications affect me the opposite as they would other people.
A Doctor gave me Topamax to try, Oh my Stars, it is a wonder drug. It does not put my head in another world as a pain pill did, but I don't get Migraines, ever! It also made me feel like it was Spring all the time, it took away my Dark Moods I would get in. [I also have Bi-Polar, but not severe]. I have not had a migraine in 6 years.
13 users found this comment helpful.
Topamax (topiramate) for Migraine Prevention: My doctor prescribed me Topamax as a preventative measure for my common migraines. It helped with my headaches really well. I used to get migraines at least a dozen times a month and this medicine allowed me to only have 2 headaches in the month that I took it.
I stopped taking it, however, because I felt so out of it. I felt like a space cadet. It also made me very moody. Everything irritated and bothered me. I didn't think those feelings were worth continuing with the prescription.
I would suggest trying it, as those effects, from what I understand, are rare. And, I have to say that I didn't get migraines for a few months after I stopped taking it. So that was a bonus.
As a side note, it does make soft drinks taste 'flat'.
Topamax (topiramate) for Trigeminal Neuralgia: This did not help my Trigeminal Neuralgia at all even at high doses. It had helped me in the past for neuropathic pain in my neck, so I was surprised but then, Trigeminal Neuralgia was a surprise. The side effects of high doses of Topamax for me were serious cognitive issues hence, no help - bad side effects. I did find other medicines in combination that work - Nortriptiline, Trileptol and Gabapentin.
Topamax (topiramate) for Migraine Prevention: I started taking this for a while to help with my migraines. The first two weeks it worked and then the doctor upped my dose to use it as my seizure medication as well. When he upped the dose apparently my body did not like that and my migraines came back, just going back down didn't do the trick. After about a year of being off of it and trying 6 other prescriptions, my new doctor said she didn't understand why they had come back when the dose was upped and maybe that it was totally out of my system we could try again. I went back on it and my migraines have decreased from one every day meaning literally 7 days a week to about 3 or 4 a week, but no soda like others stated and this time I had to quit smoking cigarettes because they tasted stale.
Topamax (topiramate) for Migraine Prevention: Only side effects I have is numbness in hands and feet, burning taste on tongue when I drink sodas and some mild dizziness first few minutes after taking medicine. Benefits definitely outweight these minor side effects. I went from daily migraines to less than 3 a month now!
Topamax (topiramate) for Obesity: I haven't been on Topiramate very long, only a couple of months. Started taking it for RLS (restless leg syndrome). I was really surprised to see that it is sometimes used as a weight loss medicine. I didn't really notice any difference in my appetite. However, my last visit to doctor did show that I've lost 5lbs. I don't like the tingling, crawling skin sensation side effect. That went away after a few days.
24 users found this comment helpful.
Topamax (topiramate) for Migraine Prevention: I was given this medication several years ago in an attempt to reduce migraines. I began using the lowest prescribed dose, as instructed by my physician. On the 3rd night, 3-4 hours after taking my 3rd dose, I woke out of a sound sleep with tachycardia (fast heart rate). I didn't know what was up. To "calm down" I took a shower. By afternoon of that day, I knew that it was the medication. I had pressure in my head, tachycardia, nausea. This is about the worst I have ever felt. Needless to say, I had to discontinue Topamax immediately. I long for the day when medications can be chosen based on genetic coding information. For many people, Topamax is a God-send; but not for me.
11 users found this comment helpful.
Topamax (topiramate) for Diabetic Peripheral Neuropathy: I was diagnosed with trauma induced neuropathy in my left heel following an injury that became infected, developed cellulitis and an ulcer. It took 2 months of intensive treatment for my foot to heal but about 3 weeks after I returned to work, I started experiencing sharp, electrical type pain in my heel. It was excruciating. My doctor prescribed Neurontin at first but I was not able to tolerate it. I was switched to Topamax and within a day, I had full relief and since then, I have been pain free. Yes, I am a juvenile diabetic but I had never had problems with my feet until this happened. The neuropathy is confined to my left heel only. Topamax is the best. The side effects are minimal but even if they weren't, it's worth it to be pain free.
20 users found this comment helpful.
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