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User Reviews for Topamax

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

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Crohn's Disease 0 reviews 65 medications
   
10
Diabetic Peripheral Neuropathy 3 reviews 41 medications
   
9.3
Tourette's Syndrome 2 reviews 11 medications
   
7.5
Seizure Prevention 27 reviews 31 medications
   
7.2
Bulimia 6 reviews 7 medications
   
7.1
Migraine Prevention 208 reviews 32 medications
   
6.7
Fibromyalgia 12 reviews 20 medications
   
6.5
Trigeminal Neuralgia 6 reviews 9 medications
   
6.5
Obesity 20 reviews 53 medications
   
6.4
Vulvodynia 2 reviews 9 medications
   
6.0
Smoking Cessation 1 reviews 19 medications Not rated - Be the first
Summary of Topamax reviews 287 reviews 7.3

Reviews for Topamax

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For Bipolar Disorder "I had extreme vision changes, loss of memory, extreme depression with long crying spells, anger, and suicidal thoughts. I have tried it at 3 different points in my life and have had the same experience each time...NOT GOOD. I tried the medication 3 times because the doctor and I thought that perhaps the side effects were from a mix of other medications I took with the pill. I did have weight loss but it was not worth it at all. I could barely drive and soft drinks (although not really important) tasted amazingly disgusting. I had no warning about all of the things I might experience and it was horrible trying to teach middle school, raise two young children, do daily tasks, and drive. I've had friends get divorced due to side effects."

   
1.0

Been there and done that (taken for 1 to 6 months) August 3, 2015

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For Migraine Prevention "I've had migraines since kindergarten. They have become increasingly debilitating in adulthood and sometimes I would average 15 headaches per month! My life revolved around my migraines. I tried everything to stop them. When my doctor talked to me about Topomax, I was thrilled. It took me two years to get to a dosage that managed the headaches and auras but now the only time I get a migraine, it's weather related. I use Relpax to relieve it. Topomax has been a God send for me!"

   
10

PattiPLante July 25, 2015

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For Migraine Prevention "I started taking Topamax 12 years ago after one of my migraines sent me out of my classroom & into the ER. After the initial few weeks of disorientation, halo vision, & tingling/numbness, my body adjusted to the meds & I had almost 10 years of maybe two headaches per year. A miracle! When menopause hit, my migraines came roaring back with a vengeance. But I stayed on Topamax & my neurologist added other meds to supplement. Things are better now; Topamax has been a lifesaver for me. But it takes some time to let the side effects settle out & for your doctor to tweak the dosages."

   
10

Palmyra July 23, 2015

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For Migraine Prevention "I have suffered from severe migraines since I was 15 and the older I got the more severe they got I have been on numerous medications over the years but 5 years ago I found a neurologist that gave me Topamax and my life has changed completely 50g in the morning and 50g at night and I don't get any anymore I had a few at the start but haven't had a headache now for a few years thank God for Topamax"

   
10

Gerardene July 22, 2015

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For Migraine Prevention "At first it seemed to make the migraines not so unbearable. The weight loss was nice too! It did make me drowsy at first. I also couldn't think straight and find the right words. I saw light trails esp at night. But I struggled through for a few years thinking I would get over the side effects. Ultimately I didn't think the benefits were worth the side effects. Everyone is different."

   
5.0

Romababy July 15, 2015

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For Migraine Prevention "It help with less migraines but I lost a ton of weight I usually was at 130-135 but Topamax I was at 112-115. I never had an appetite"

   
5.0

Anonymous (taken for 6 months to 1 year) July 14, 2015

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For Migraine Prevention "While on Topamax, I lost my ability to think straight. I couldn't process things the same way. I couldn't even finish my sentences. I would start talking and would forget the words that came next. My friends and family would have to help me finish my sentences. After getting off the medicine, I could finally finish my thoughts again. However, I feel like I still cannot learn as easily as I did before I got on the medicine. I think it changed my brain processing capability. I have talked to a friend who had the exact same problem on this medicine. I would not recommend it unless you actually cannot live without it."

   
1.0

Caseyyyyy July 11, 2015

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For Seizure Prevention "I've been on Topiramate now for 3 yrs after switching from Lamotrogine, on which I had a full-on epileptic seizure. My experience on Topiramate however has been fine. I lost weight like others seem to have, but have since put it back on. I surrendered my driving license for a year after the seizure but have since got that back. I carry out my job with ease as well so really can't complain there. The only issues I've had are the side effects of tingly hands and feet, sudden dizziness, becoming very, very tired all of a sudden - and more recently - losing my train of thought, getting confused easily and being unable to focus. I've noticed this mainly happens though when I'm bored and have nothing to do. When I'm busy, all works well."

   
9.0

Rebecca13 (taken for 2 to 5 years) July 6, 2015

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For Migraine Prevention "I've had cronic migraines since I was 14 and I was put on topamax at 16 at 50mg I've been on it for 4 years now and its worked great for me until recently when I delt with the loss of my father and started experiencing light head aches so my doctor upped me to 100mg, 50mg in the morning and 50mg at night and I haven't gotten a migraine since. Its also helped me as a mood stabilizer too, I would recommend this medication if over the counter drugs aren't working for your migraines it really does wonders"

   
9.0

Ashh July 1, 2015

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For Migraine Prevention "I have awful headaches on the daily and was so happy when my doctor prescribed me something that could lessen them. I was very optimistic and wanted it to help. This medication did not get rid of the headaches but I experienced some of the worst headaches ever while on this drug. I felt alright during the day, but once evening time rolled around I was so grouchy, so moody, tired, and my head was throbbing. I kept taking the medication because I just thought it needed time to "make its way into my body." Finally, I said enough is enough and asked my doctor if I could stop taking it. I have not taken a pill in two days and am still experiencing the awful migraines. I am so miserable and have not felt like myself for a week and a half."

   
1.0

tpickk (taken for less than 1 month) June 27, 2015

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For Fibromyalgia "Topamax was a miracle drug for me! It helped with my Fibromyalgia pain & headaches. I would definitely recommend this drug. I have to stop taking it now due to the development of kidney stones. I wish I could stay on it as it improved my life by 90%. I'm a 59 year old female. I have had fibromyalgia for 23 plus years."

   
10

Burps (taken for 10 years or more) June 24, 2015

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For Bipolar Disorder "I was diagnosed with bipolar depression about a year ago. I have been on topamax for that as well as migraine headaches for 8 to 9ish months now. The migraines went away, and I have lost about 40 pounds since taking Topamax! The only downfall is hair loss. I highly warn anybody taking this drug not to miss a dose or try weaning yourself off, because I have done both and ended up with very bad mood swings and will be crying on the floor one minute, then raging and angry, then it will be as if nothing happened."

   
7.0

Karley (taken for 6 months to 1 year) June 23, 2015

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For Migraine Prevention "I've found topamax to be a useful tool in migraine prevention. I've been fighting these now for over 25 years and I've gone as far as having sinus sx and dentures to replace my top teeth to reduce the triggers of these monstrous headaches. I've come to believe there's no magic pill to take it all away but topamax reduces the severity greatly. The little tingling sensation will go away and saltiness are great when you have to take meds and don't have a full stomach. It helps with the nausea. Whether topamax is the drug for you- don't lose hope. Just keep trying to find the right combination of diet change, sleep, trigger reduction, and meds until you find what works for you."

   
9.0

headpainz (taken for 5 to 10 years) June 23, 2015

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For Migraine Prevention "I was prescribed topamax as a migraine preventative & had a terrible experience from it. Not only did it fail to prevent migraines, it made me develop kidney stones. I had never had one before using this awful drug,which also made me feel constantly tired & forgetful. The worst part is that once you kidney stones your body is more susceptible to getting them again & you most certainly will. For anyone unfamiliar with the pain from kidney stoned I can assure you it is sheer agony. And even worse is the hellacious migraine that lasts for days that comes along with it. It's so bad that even medicines like imitrex won't work on it. There are blogs & websites which tell of the awful experiences people have had with this drug. Beware."

   
1.0

rusalka (taken for 1 to 2 years) June 8, 2015

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For Bipolar Disorder "Miracle drug for me! I seem to have a bad reaction to every drug that is specifically for Bi-Polar! No, I'm not as creative as I was, but it's between being so high and then crashing so far down or a good steady me! I'll take this compared to a hospital any day."

   
10

Cradazd (taken for 10 years or more) June 6, 2015

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For Obesity "I started 25 mg on June 2nd at bedtime I had the tingling in my hands and bitter taste in my mouth I also fought to remember what I had done all night and morning I felt like a complete zombie..I took one dose and haven't took anymore since the side effects this pill has isn't worth me risking it I'd rather keep my weight until I find another way to get it off and to this day June 5, 2015 I still have tingling in my hands and feet and numbness in my arms along with swelling in my fingers I will never take another topamax it's awful...."

   
1.0

Isn't for me (taken for less than 1 month) June 5, 2015

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For Obesity "I was on 25 mg to start and ended up taking 100. I lost weight. But the price I paid in side effects was not worth it. I lost so much hair that when I try to braid it it's like braiding tiny strands of dental floss. It looks so ridiculous long I had to chop it all off just to conceal how grossly thin it is. People call it dopamax for a reason. It made my memory Swiss cheese and when I had to process information it felt like fighting through seaweed. The worst side effect was the depression. This stuff makes me downright suicidal. It helped me lose about 80 pounds by starvation. I never wanted to eat. I became anemic. If you've never had that before you'll find simple physical tasks to feel like they're inciting heart attacks."

   
1.0

Jennoyed May 30, 2015

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For Migraine Prevention "I have been taking topamax for 2 months to help prevent severe daily migraines w/ Aura it has helped me tremendously. I did lose 6 lbs the 1st week. Mainly due to diarrhea & lack of appetite. I almost gave up on taking it because of the stomach cramps I was getting but they subsided after the 1st week. I have changed a lot about my lifestyle since taking topamax so I don't know how much of my weight loss can be attributed to the drug itself but I definitely have lost weight 12 lbs & don't crave sugar. I stopped drinking soda over a yr ago so I don't know if it tastes different now. I do want water more than anything, which is fine. It does make you drowsy/foggy but I take my dose at bedtime, I do get weird tingles a few times a day in hands"

   
9.0

TLO78beme (taken for 1 to 6 months) May 28, 2015

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For Bipolar Disorder "I was diagnosed bipolar 2 about 3 years ago. I am a 36 yr old female. I was originally given topamax 50mgs at night with seroquel 50mgs, as well as a variety of antidepressants and klonopin for anxiety. That worked great for awhile until it didn't and I weened myself off everything. DON'T DO THAT!! I had a horrible hypomanic episode followed by a 4 month depressive crash. I'm now on Latuda, Celexa, Klonopin, and my good buddy Topamax. I have had no serious side effects from Topamax. A little hair loss (more like extra hair in the brush) but it's only noticeable to me. Not bad. No word loss, no memory problems. I'm in grad school with a near 4.0 GPA. It helps me maintain my weight so the other meds don't affect me."

   
8.0

Penny__B May 16, 2015

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For Migraine Prevention "This medication has been a miracle. My migraines have been disabling to the point where I could not turn my neck and I could not stand up. With this medication, I can live my life. I am on 150 mg a day. Thank you topamax!"

   
10

Lexi5280 May 10, 2015

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For Bipolar Disorder "I am bipolar I and went on topomax as an alternative to the awful weight gaining meds I have been subjected to in past. My anxiety went through the roof! I was crying constantly, my heart was pounding and I became fearful to leave the house. I love the 10 pd weight loss but not worth the anxiety and hair loss...sad I wanted it to work"

   
1.0

angelash65 (taken for 1 to 6 months) May 9, 2015

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For Migraine Prevention "My neurologists prescribed me Topamax to prevent migraines 4 days ago. The first night I took the the pill I had HORRIBLE side effects (tingling and numbness for hours). The following night I decided to take my vitamins (which I didn't do the night before) and I didn't experience the same side effects. Not sure if it helped, but I make sure I take them every single day!! The only side effect that I get is slight tingling in my hands occasionally."

   
8.0

Bibi15 May 2, 2015

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For Bipolar Disorder "I can only describe my experience as horrendous. I was given topi max to balance out the severe anxiety and restlessness and insomnia I had on abilify. It had the opposite effect, after about three weeks taking it I developed severe fatigue, inability to swallow properly, paranoia and the anxiety and restlessness went through the roof, I have never been so close to ending it all to get out of the hell that had become my head. I stopped taking both abilify and topomax and resumed on my original aerogel. Within 24 hours all the symptoms of anxiety and suicidality had gone. A trully terrifying experience that nearly saw my children without a mother"

   
1.0

Lookingonthebrightside May 1, 2015

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For Obesity "I started taking 50 mg of Topomax for the first month and went up to 100mg for the next three months. Lost 40 pounds.... For the next year and a half I have kept off the weight but have not lost any more. I still need to lose 30 more pounds, but have seemed to plateaued. And I am at 200 mg now... dont know what to do."

   
6.0

Lindzh90 (taken for 1 to 2 years) April 29, 2015

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For Migraine Prevention "I tried it for 1 month. I drank tons of water. I was extremely tired all day, but could not sleep through the night. Kidneys constantly felt like I was getting stones. I felt bruised for weeks after cessation. I would rather have a migraine!"

   
1.0

was cautiously optomistic (taken for 1 to 6 months) April 18, 2015

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