Amphetamine / dextroamphetamine for Narcolepsy User Reviews (Page 2)

• Taylorr
• February 1, 2017

Adderall (amphetamine / dextroamphetamine) "I was diagnosed with narcolepsy wth cataplexy about two years ago. I was always the friend in the group that was falling asleep in the car, movies, and middle of class. I actually got voted "most likely to be sleeping in class" for my senior year. Even though it was funny for others, it's not for me. It's so hard to live a normal life when your constantly tired and all you want to do is sleep. I took nuvigil for the first year and half. It was working fine but I grew a tolerance for it with adverse effects. I started adderall 1/2 a year ago and it's the best thing ever. I've never felt so normal before in my life. I take 10mg XR when I wake up along with 10 mg regular release tab. And 10mg later on in the day. Best choice ever by my doctor!!"

• tired...
• Taken for 10 years or more
• December 19, 2021

Adderall (amphetamine / dextroamphetamine) "I've been taking Generic Adderall for 11 Years. In my opinion, Teva is the most effective generic, Mallinckrodt has been the worst, it makes me tired and gives heartburn which I never have normally. I just pick up a refill, new mfg, Alvogen. Took it a hour ago and keep nodding off. Looks like another generic to avoid."

• AmyR
• July 4, 2013

Adderall XR (amphetamine / dextroamphetamine) "I have taken Adderall XR for YEARS now. I have MS & as a result have hypersomnia, which is very similar to narcolepsy. For years & years, I took Provigil alone for this & it was great. But eventually, Provigil was no longer enough to keep me awake. My doctor tried me on Adderall XR & it was amazing. I was able to stay awake ALL day long & felt great. I never had any real jitteriness. It does make me have almost no appetite at all, ever. Mostly I just don't think about eating, it doesn't really occur to me & when I do eat, I can't eat much. But, having been obese most of my life...this hasn't exactly been a problem! "

• Thoug...
• May 10, 2015

Adderall (amphetamine / dextroamphetamine) "I'm a 52 yr. old male. I started taking Adderall about14 months ago. for the first 2 weeks I didn't notice much change then I noticed that when I took the medication in the morning suddenly I had a lot more energy and it seemed like I could concentrate better and not as agitated about life in general. I take me 2nd. dose at lunch time. The increase in my energy level was keeping me moving more during the day so it allowed me to rest better at night. Every morning when I wake I go straight for the Adderall. Overall I think Adderall has improved my quality of life and I think Adderall should be prescribed to the aged for the same effects. It's not going to work the same for all so close monitoring for 30 days on a 2per day 15mg.dose"

• Seigf...
• Taken for less than 1 month
• December 30, 2014

Adderall (amphetamine / dextroamphetamine) "I gave Adderall an 8 out of 10 because it is very effective, anyone who is narcoleptic (which is why I use this medicine) will stay awake completely. Depending on the dosage you can stay awake anywhere from 5 hours to even more than 12. The down side to this medicine, and let me be clear that it is just with my experience is that it can make you jittery and excited. It also gave me "false confidence" and just overall made me more outgoing than I usually. Also I found that the first time I used it it gave me quite a high, which I eventually got used to. After several days I started hallucinating things and got paranoid. There are definitely some psychological side effects even more than the ones that I've experienced. "

• White...
• Taken for 6 months to 1 year
• December 17, 2014

Adderall (amphetamine / dextroamphetamine) "I thought Nuvigil was good, but Adderall is amazing. It helps me feel almost human, again. Not only does Adderall keep me awake, but it clears up some of the mental fog caused by Narcolepsy. Cataplexy is also not as severe when I'm on Adderall. I can finally focus at work, I have enough energy to take care of myself and my family, and I'm doing so well at work that I got two raises in the last 3 months! The irony is that you have to be well-rested for it to work; otherwise, it does absolutely nothing. I have also started devoloping a tolerance so it starts to wear off after about 3-4 hours, but I take another dose and it gets me through the rest of the day."

• Husky
• Taken for 1 to 6 months
• August 28, 2016

Adderall (amphetamine / dextroamphetamine) "I was diagnosed with sever sleep apnea when i was about 50 I have been tired most of my adult life so assume have had apnea a long time. Tried cpap, forget that, got a somnodent mouthguard which stopped almost 100% of my apneas, but I didnt feel better. Put on provigil like 5 years not really much better same with nuvigil.finally drs and I were fed up I could not make it through a day without at least 2 to three short 5 to 20 minute naps and always felt like had a cloud in my brain and my pcp recommended to sleep dr. to try Adderall. I had no Idea what Adderal was knew it was used for ADAH but really didn't care just went home and took it results have been unbelievable. Almost never take a nap, feel way more refreshed, no brain fog. "

• Logan
• Taken for less than 1 month
• August 12, 2019

Adderall (amphetamine / dextroamphetamine) "I read a lot about this drug and it is hard to find anything about the side effects I have gotten. So I have taken Adderall XR 10mg (once in the morning) Just for a few days now. The first time was amazing and I actually had a road trip to take that day and I drove a whole 12 hours with no problems! That is really good considering I need a nap just an hour after waking up usually. There were still the positive effects but the side effects are just so bad. Food just doesn’t seem appealing anymore and I have constant headaches and stomach issues.Thats not even the bad part, I have had terrible hallucinations and makes me very paranoid and scared to do anything in my day. At some points of the day I feel fine but others I feel those side effects and episodes of tense muscles that tremble when I hallucinate and increased heart rate and heavy breathing. I keep reading all these amazing things about this drug and I want that for me too. If anyone has experienced I would love the feedback:)"

• Anonymous
• Taken for 10 years or more
• April 28, 2014

Adderall (amphetamine / dextroamphetamine) "Insurance didn't cover the Extended Release (XR) form, so I was taking multiple regular Adderall pills a day. It was pretty obvious that they worked, but over time, I developed a tolerance that made me need to take one every 2-3 hours, rather than the standard 4-6. Only side effect was feet so cold, they tingled."

• The...
• Taken for 1 to 2 years
• June 20, 2016

Adderall (amphetamine / dextroamphetamine) "I had been on Adderall for a couple of years. I was finally after being out of it most of the time during my life, was able to get things done and even if I did not get enough sleep at night (I still have that problem). I was fine just taking 20mg in the morning and sometimes (rarely) 10mg around 11:00 am. I did not gain nor loose weight. I did have enough energy though to go to the gym and not worry about driving any time of the day. All was good until Medicare said NO, I could not have it anymore. I am now on Ritalin 30mg in the morning. It helps a little but I don’t ever want to drive far, 5 miles is my limit, before I get sleepy. My sleep is very restless and I wake up many times, avg. around 4hrs sleep out of 9hrs in bed."

• Anonymous
• June 27, 2008

Adderall (amphetamine / dextroamphetamine) "Aderrall has really helped me stay alert and concentrate, as I have chronic pain issues which leave me sleepy and unfocused. I have the energy to enjoy life again. I do have difficulty sleeping, and also since I do not take XR can "crush" it if I forget my second dose. I have noticed it makes me most irritable and difficult to be around. This side effect seems to have waned over time, but I am still occasionally cranky when it wears off."

• Jdsum...
• Taken for 6 months to 1 year
• October 5, 2019

Adderall XR (amphetamine / dextroamphetamine) "I was originally prescribed for adult ADD. I took it for several weeks with some results, but I soon learned that it was great for a sleep disorder as well. Recently, I stopped taking it, but soon afterward, all I could do was sleep all day. I was extremely fatigued. I had a blood test for hypothyroidism but it was negative. The only side effect for me was hypertension which I take medication for, but lately, it has been elevated. Nothing the doctor can't fix by increasing the dosage of my blood pressure med. I don't plan to stop this mediation unless I need a larger dosage to work. Currently taking Adderall XR 20mg in the morning and regular Adderall 20mg at noon. Moreover, it helps ease my craving for carbs. It works better than any antidepressant."

• MD1
• Taken for 6 months to 1 year
• June 22, 2017

Adderall (amphetamine / dextroamphetamine) "Adderall has helped me greatly, though it is not perfect. Many doctors have suspected that I have narcolepsy, but my insurance company won't pay for the sleep study because I'm only in my 20s (what??). Anyway, my doctor prescribed Adderall because I simply could not stay awake in class, driving, riding the bus, watching movies, doing homework, etc. Basically everything. I remember the first dose I took. I felt like a normal person. Not hyper or overstimulated (my doc was worried about this because I also have bipolar I), just normal. I just went about my day and did my homework and washed the dishes and read a book like a normal person. This drug has really changed my life. I gave it an 8 because I still have to take naps throughout the day"

• jdv
• Taken for 10 years or more
• September 7, 2023

Adderall (amphetamine / dextroamphetamine) "I've been on generic IR and XR for 15 years. Teva is better than the rest, but they do have bad batches. Anything orange seems to work best. Had Epic Pharma pink IR last month. Had to break them up to kinda work. Pink/yellow XR were useless, had to open the capsule and use like an IR."

• James
• Taken for 5 to 10 years
• September 3, 2022

Adderall (amphetamine / dextroamphetamine) "I take generic Adderall for narcolepsy and I have for 10 years. I have tried almost every generic available and although sometimes you can find one that’s better than the other, I have found the most efficacious is Teva. Beware, however, of a manufacturer called Camber."

• Davis
• Taken for 6 months to 1 year
• August 7, 2019

Adderall (amphetamine / dextroamphetamine) "I'm 72 years old and was having problems maintaining concentration and focus. Kind of like ADHD, but instead of being hyperactive, I was falling asleep. Doctor gave me 5mg of Adderall once a day. Seemed to help a little, and after a couple months, I started taking 10mg 1xday. Works much better. I have not noticed any particular side effects. They say it helps with weight loss, but not for me."

• Anonymous
• April 21, 2008

Adderall (amphetamine / dextroamphetamine) "My stomach couldn't handle the normal adderall so I tried adderall XR. It took a while for me to really enjoy the medication but with combination of cymbalta I don't have real up's and downs. I take 90mg, I am a muscular 255 pound male. I would recommend adderall, side effects, dependancy, dry mouth, less hunger until you come down at night."

• RoxBu
• January 2, 2018

Adderall (amphetamine / dextroamphetamine) "I've been on Adderall for EDS and Narcolepsy going on 10 years now. I feel my continued heavy use of Adderall will essentially kill me. All of your stories are completely familiar, and Adderall absolutely does all that's being said that it does..the reality though is that taking this drug at high doses over an extended number of years is shameful to many parts of the body. You become essentially the same as any Meth user..this drug is simply a "cleaner" form, if you will. The drug has rotted my teeth despite extra care taken, and I now have dentures. I'm not even 40 yet! It has caused numerous skin conditions, including adult acne, rashes and a constant nagging itch (skin crawling feeling). Bc of the itch I have "pick marks" all over."

• KCinOK
• Taken for 10 years or more
• August 25, 2019

Adderall XR (amphetamine / dextroamphetamine) "I’ve taken Adderall XR since 2007 when I was diagnosed with a narcoleptic-like disease. It works well for me and has continued to work on the same dosage amount. When I first started taking it, it did decrease my appetite and I had issues with dry mouth, which still happens every once in awhile. I have no problems sleeping at night, but may not get as much deep sleep as others and still spend more time in REM sleep than the average person (according to my Fitbit at least). I wouldn’t be able to work or care for my children without it."

• Katie
• April 10, 2012

Adderall (amphetamine / dextroamphetamine) "I fall asleep at the drop of a hat and experience sleep paralysis. There are times I know I'm supposed to be awake and I simply can't wake up. Adderall helps so much. I've taken it for about a year, however, and it is wearing off. I hope to find a substitute that will help me stay awake soon."

• skano
• July 20, 2018

Adderall (amphetamine / dextroamphetamine) "I was diagnosed with narcolepsy after about 5 years-1995 to 2000. A sleep study doctor diagnosed me as having this disorder. After trying methylphenidate and then provigil I still had EDS. I even had a doctor prescribe (Desoxyn) which didn't help. Adderall XR also was not effective enough, so I was prescribed 30mg of adderall I.R. one a day. Narcolepsy causes sleep deprivation causing anxiety, depression, and nights of no sleep at all. Most doctors hesitate to prescribe medication for these side effects. Finally found that Belsomra helps on those sleepless nights. Adderall is not the 'magic bullet' by itself and the stigma of having to take Adderall, Klonopin,, Wellbutrin, and .Belsomra gives narcoleptics anxiety and fear to ask physicians to prescribe medications that almost make us feel normal."

• Maggi...
• January 24, 2019

Adderall XR (amphetamine / dextroamphetamine) "Adderall XR 25 gave me my life back that Narcolepsy, Cataplexy, Hypnogogic Halucinations, Night Terrors, Excessive Fatigue and Depression had taken from me. Regretfully, now I am on Medicare and even though for six months my Part D covered the Adderall XR, my new plan will not. They say it is not an FDA approved drug for Narcolepsy. I think it should be. Did they ask any of us that used it? Not me. I am forced to either go Generic trial and error or just go back to a nightmare life again in my retirement years when my husband and I were planning to move and to travel in our camper a little. Plus I am scared of withdrawals after twenty years of use."

• drift...
• Taken for 10 years or more
• March 30, 2013

Adderall (amphetamine / dextroamphetamine) "I could not get out of bed without Adderall. I have been taking it since 2000. However, I developed a severe spinal disease, fibro, and arthritis. I had to give in to taking pain meds which interfered with my Adderall dosage. I currently take 40mg. I have found this dose ineffective for the past several years. My family doctor prescribes my meds and doesn't feel comfortable titrating up to 60mg. I weigh 335mg as well. I am frustrated and feel exhausted most of the day."

• Mitzy
• September 11, 2011

Adderall XR (amphetamine / dextroamphetamine) "I always been tired a lot (chronic fatigue), but symptoms worsen after my son had a near death auto accident, he was only 4. I took antidepressants for 8 years. It worsened my Chronic Fatigue. I was a mess, everything was falling apart around me. I did research on Adderall and talked to my Doctor. I take 40mg a day, I can't explain how much better I feel. I have control of my life again. I have energy to care for my family for the first time in years. Side effect is irritable at night, insomnia but the longer you are on it and the earliest you take it doesn't cause too much problems sleeping."

• Anonymous
• March 30, 2012

Adderall (amphetamine / dextroamphetamine) "My life was sleep before I started adderall taking 15 mg twice a day and I'm still tired but not sleeping like I was before. Only been taking it for a few days but has helped a lot. I only slept and worked and sadly that was my life for 5 years."