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Congenital Heart Disease In Children

WHAT YOU NEED TO KNOW:

Congenital heart disease (CHD) is a term used to describe defects in the structure of the heart. It may also be called congenital heart defect. Congenital means your child was born with the heart defect. Your child's heart defect may affect his heart valves, the walls of his heart, or the blood vessels. He may have a hole in part of the heart or narrowing of arteries connected to the heart. Blood may not be able to flow to your child's heart correctly, or it may not flow through his heart correctly. The defect may be mild or severe.

WHILE YOU ARE HERE:

Informed consent

is a legal document that explains the tests, treatments, or procedures that your child may need. Informed consent means you understand what will be done and can make decisions about what you want. You give your permission when you sign the consent form. You can have someone sign this form for you if you are not able to sign it. You have the right to understand your child's medical care in words you know. Before you sign the consent form, understand the risks and benefits of what will be done to your child. Make sure all of your questions are answered.

Emotional support:

Stay with your child for comfort and support as often as possible while he is in the hospital. Ask another family member or someone close to the family to stay with your child when you cannot be there. Bring items from home that will comfort your child, such as a favorite blanket or toy.

Medicines:

  • Antibiotics help prevent or treat a bacterial infection.
  • Diuretics help your child's body get rid of extra fluid. This can help your child breathe easier. He may urinate more often with this medicine.
  • Heart medicine helps your child's heart beat stronger or more regularly.

Tests:

  • Blood tests measure the amount of oxygen in your child's blood. A heart defect can lower your child's blood oxygen level.
  • X-ray, CT, or MRI pictures may show the size and shape of your child's heart. Your child may be given contrast liquid to help his heart show up better in the pictures. Tell the healthcare provider if your child has ever had an allergic reaction to contrast liquid. Do not let your child enter the MRI room with anything metal. Metal can cause serious damage. Tell the healthcare provider if your child has any metal in or on his body.
  • A Doppler test checks the blood flow in your child's heart. A small metal disc with gel is placed on your child's chest. The disc helps your child's healthcare provider hear the blood flow.
  • An EKG records your child's heart rhythm and how fast his heart beats. It is used to check for heart enlargement and other problems with blood flow.
  • An echocardiogram is a type of ultrasound. Sound waves are used to show the structure and function of your child's heart.
  • A stress test helps your healthcare provider see how well your child's heart works when it is under stress. His heart function may be tested while he walks on a treadmill or rides a stationary bicycle. Medicine may be used instead to put your child's heart under stress.
  • Cardiac catheterization is used to show the blood vessels in your child's heart. A catheter is threaded into your child's heart through a blood vessel in his arm, leg, or neck. Contrast liquid is injected into an artery. Then x-rays of your child's blood flow are taken. Tell the healthcare provider if your child has ever had an allergic reaction to contrast liquid.

Monitoring:

  • A heart monitor is also called an EKG. Sticky pads placed on your child's skin record the electrical activity of his heart.
  • A pulse oximeter is a device that measures the amount of oxygen in your child's blood. A cord with a clip or sticky strip is placed on your child's foot, toe, hand, finger, or earlobe. The other end of the cord is hooked to a machine. Never turn the pulse oximeter or alarm off. An alarm will sound if your child's oxygen level is low or cannot be read.

Treatment:

  • Medicines may be used to help your child's heart beat more regularly. Your child may need to take heart medicines for several years.
  • A catheter procedure may be used to repair a defect. A catheter is a long, thin tube. Your child's healthcare provider will move the catheter through a vein or artery until it is near the defect. He may place a patch or plug on a hole in your child's heart. To widen a narrowed area, he may inflate a small balloon device attached to the catheter. This will widen a narrowed valve in the heart.
  • Surgery may be needed to repair the defect. Your child may need surgery to have a heart valve repaired or replaced. Surgery can also help repair problems from blood vessels that did not form correctly. A heart transplant may be used if the defect is severe and other treatments do not work. Your child may need more surgery over time.

RISKS:

Your child's risk for an abnormal heart rhythm is increased. He may develop endocarditis (infection in the lining of his heart) or heart failure. He may also develop pulmonary hypertension or have heart valve problems. Your child's risk for stroke is increased if blood cannot flow correctly to his brain.

CARE AGREEMENT:

You have the right to help plan your child's care. Learn about your child's health condition and how it may be treated. Discuss treatment options with your child's caregivers to decide what care you want for your child.

© 2015 Truven Health Analytics Inc. Information is for End User's use only and may not be sold, redistributed or otherwise used for commercial purposes. All illustrations and images included in CareNotes® are the copyrighted property of A.D.A.M., Inc. or Truven Health Analytics.

The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.

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