I am 31 years old and have suffered with IBS and Barrett's Esophagus since I was 10. I was diagnosed with Fibromyalgia about 5 years ago. Ever since I was a kid I have been trested like I was crazy. I had horrible pain in my stomach and the doctors would tell my parents I was making it up. Finally a doctor did a endoscopy and found the barrett's I was supposed to have a endoscopy every year to keep an eye on it. My last endoscopy was about a year and a half ago at that time I was told I need to be in every 6 month's because it has gotten bad. I was also diagnosed with chrones. I can't take some meds because of my stomach and some I can't take because of the cost. As of right now I take adderall because of my sever ADHD. Which has affected my life very negatively. (The adhd nit the adderall) I don't take the adderall all the time. But I sm on hydrocodone and I take oxy extended 20mg 3x a day and a gabapentin at night. I am alsi really bad at not taking these as well. I skip my meds sometimes. When I do I usually end up regretting it. I have tried savella which seemed to work for the first few months then nothing. I've done cymbalta ive done morphine ive had butrans patch. Ive refused fetinal and several other drugs because the side affects scare me. Ive also had nucynta which I have to say was a maricle for me the big problem was the cost I could not afford it. I worked (lost my job last week) 55-65 hours a week. I also have a huge issue with not sleeping. I exercise I do think that helps. I take magnesium I think that helps. My problem is I don't want to take these narcotics. I have gone to a energy healer that I think helped a little but it's also expensive . I love to swim and I am lucky where I am in Florida I can swim year round. Has anyone found anything that is natural that works? My son has lupus and my sister as well. My son was diagnosed when he was 2 or 3. I have been tested and have had 2 positive tests and 2 negative. Sometimes I start to think I am crazy and the pain is in my head so I stop my meds and the pain is so bad I lay there and cry. The muscle spasms are awful. Sometimes it feels like my skin is on fire. If I didn't have my husband I would have given up by now. He keeps my calm and grounded. There has been a few times when I have been at the point where I have thought this isn't living I can't function. I have missed work quite a bit because of this pain. So I ask fir advice. And I have lost 100 lbs in less than 6 months because of the severe stomach pain it has been about a year since I lost the weight. About 6 months ago I went in the adderall. I had not been on the adderall since I was a teenager. I appreciate any advice. And I know all you fibro warriors know that feeling of being looked at like your crazy and your making it up.
I am sorry to hear that you have lost your job and I am sorry that you are suffering in so many ways.
The pain that you are experiencing is not in your head. You have got four diagnosed conditions which all cause pain. But you do need to be compliant with your prescribed medication. If your condition(s) prevents you from taking a medication that has been prescribed for you then you need to see the doctor and inform them of this. There are alternatives to most medications. I know that the cost is one factor which prevents you from being able to take what you have been prescribed. I do not live in the USA so I don’t know what help there is for this. I am sure one of our fellow drug.com members can provide advice on this matter. With regards to narcotics (opioids) if they help with the severe pain that you are in then you should take them.
What do you or should you take for your Fibromyalgia (FM)? You may find that your IBS becomes worse as FM can cause this condition. Further FM makes you more sensitive to pain in addition to experiencing pain from things that should not cause pain. Hence why you should take your painkillers. Also FM can and does affect your ability to sleep. Again this is treated with medication. The burning sensation you feel on your skin is due to FM. I and many other people have this symptom also. It is usually treated with medication (which does not sooth the problem totally). You can try applying a muscle cooling gel to the affected areas and a fan to help with this. It will not totally get rid of the burning but it should provide some relief.
I am unsure as to which diagnosed condition that you have that you require our help and advice. Remember that you have and are going through a lot of things at the moment. This can lead to stress and make all your conditions worse. This is all the more reason to take your prescribed drugs. Hopefully a fellow member can inform you about financial assistance to pay for your medications and offer you additional advice.
Hang in there and take care.
It sounds like you are still reacting to your experience as a child being told that it was all in your head. How distressing that would have been. You KNOW now that is not the case, due to your Barrett Syndrome. For someone who was working 55-65 hours a week, you must have been under a lot of stress. And that amount of work would be impossible for most of us with fibro, as well as a lot of the rest of the population. Give yourself a break on your judgment of yourself.
Also you know that when you don't take your meds, the pain gets bad--another reality reminder that you do have medical problems. You need to listen to your diagnoses and pay attention to what you need. To be so afraid of potential side effects without even trying the med is not prudent when you are having so much pain. And talk to your doctor about other meds that you could try. E.g., my fibro has been significantly treated by Trazodone. You don't mention taking Protonix or Prilosec which are needed to treat acid reflux. Could that help your eating problems? Have you tried Zofran or even Tums for your upset stomach? You don't mention those meds either.
Even though you don't think that exercise has helped your fibro, it is the single best remedy for it, even better than meds--but in moderation. Plus you need to start off slowly. Not sure if swimming is considered good exercise for fibro, since there is no bone contact. You might try walking. Have a good talk with yourself about what is really reality now--not what you were told when you were a child. You are dealing with a lot. You take care.
I agree that you should try those medications even though you are fearful of the side effects. All medications have side effects that are undesirable. But not everyone (probably not most people) are affected by the side effects. You should at least give them a try and see how they affect you.
Now that you are not working, you may very well be eligible for assistance from drug companies' programs for people who don't have the money to pay for their prescriptions. I know that Purdue has a program for OxyContin if you have a prescription and cannot afford to pay for it. I know this because I was on the program for a while.
Here is a link to a website where you can list all the drugs that you take, and they will give you a list of programs where you may be eligible for assistance on your prescriptions:www.pparx.org/en/prescription_assistance_programs
I'm sorry I can't speak to the stomach issues, but for my migraines & severe muscle cramping in my upper back, neck, shouldars I get about 44 Botox injections which helps me tremendously! The Botox paralyzes the muscle. I get these every 3 months & MediCare pays for them. Hope this helps! All the best!
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