The initial outbreak of shingles I had was accompanied by viral meningitis which was diagnosed vy a spinal draw and brain scan. It's now been 17 months that i have been challenged with PHN in mid-section area for which I have tried Cymbalta, Lyrica, Vicodin, Tramadol, Gabapentin, acupuncture, Indigo bio-feedback, neural therapy (injections of a procaine-like substance into scars to energetically create anew nerve path), three different procedures to try & identify the nerve in the spine causing the issue. Nothing seems to help, but I must say that if I compare the pain to that of a year ago, it has diminished somewhat - I am grateful for any small improvements! The chronic pain is beginning to wear me down and I feel horribly depressed. Thus, am considering the marijuana. Would appreciate any input. Thanks
TangoAnn, I say go for it if you can get it ! I have had PHN for 4 years, tried everything and nothing works... that's a lot of pain. I use the hydrocodone as well, when I'm not working. Have you tried Horizant? I'm suppose to start it this Thursday, something new used for restless leg and PHN.Ice packs do give some temporary relief... hang in there.
I have had PHN for 8 years. What works for me is 2-3 motrin and icy hot right on the area. I have it on my right shoulder blade. I have never tried any other drugs for it, don't really like even taking motrin. But when the pain gets unbearable, I take it. Will look into medical marijuana, if it gets legalized, or we move to a state that it is.
I have phn in my right ulnar nerve. Been 13 yrs. now. I take hydrocodone and ultram. I switch off every two weeks. It keeps me sane, and mostly functional. I got shingles when I was 55 so I retired. I don`t use marijuana, but I did when I was in Vietnam. I don`t know if it could help with the pain, but I`m quite sure it could help the inevitable depression. The longer I have it, the better I get with coping. Personally, distractions are everything to me. My Grandkids, my hobbies, TV, the Internet, frequently all at the same time. Keep busy!!! When you get in a funk, that`s when it all goes to hell. I think marijuana could help a lot in getting out of those holes of self-pity. Sleeping is the biggest problem for me, because there are no distractions when you`re lying in bed. Marijuana may help with that. I don`t know, but I am suddenly more interested in checking it out. My best advice? Don`t fight it. Don`t think about it. Don`t talk about it.
Absolutely, don`t dwell on it! Ignore it. It`s just part of the new you. The longer you have it, the more normal it becomes. Take your pills at the same times every day. Don`t think, "well, do I really need to take this pill now, or can I wait a while?" Also, don`t think about maybe needing to take the pill a little earlier. All thoughts like that do is make you think about it. It`s a vicious circle. I also had a 2nd bout with shingles. This time in my left ulnar nerve. It was much milder, and miraculously, the pain went away in about 2 or 3 weeks. One of the top ten happiest moments of my life! I hope what I`ve said here might help somebody new to phn. Your world has changed, but you can get on with your life. Vietnam taught me that you really can get used to anything if you have no other choice. Marijuana just might help sometimes, but make sure it`s only sometimes.
I know this is an old post, and I hope you get it. I have a friend who is 80 and has a lot of pain. I think she's tried everything to. We live in CA with legal medical cannabis. She's tried THC salves, (but hurt to put on) , drops of cannabis oil and did not find relief. But, I see so many people being helped with cannabis, I'm sure it would help take the edge off if nothing else. Put you in a better mood. Let me know what's worked for you. Hope you're getting it under control.
I have tried both cbd which I chose the vape pen, which does reduce the pain, and does not make you high. I have also used Marijuana in different forms, and that helps as well, at least you forget about the pain! I also use a topical Marijuana infused butter on my terribly itchy, burning face and lips, and that helps as well.
I am currently taking Gabapentin as well, but as have only been on a month doesn't seem like it's helping at all. Frustrating to say the least.
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