I was infected in my eye while culturing a patient. The virus was mutated and had Type 1 & 2 in it. It caused Keratitis, then spread to my brain causing encephalitis, and put me in a coma for a month. Afterwards, I went blind and my cornea tore off my eye. I get seizures and have brain damage (memory loss, balance issues, sleep apnea/narcolepsy, and have spastic swallowing). My immune system was destroyed and now I need IVIG monthly to live. I cannot work or drive, of course. I lost my job, my money, my house, my friends, and my independence. I was only 41 when this happened. I just wanted to find out if anyone else can relate to my story. I feel so alone.
Ocular Herpes is a nasty, nasty infection and sounds like you really got the brunt of it! How did it happen that you got infection? Were you not wearing eye protection? Did you start Valtrex as soon as you got exposed? So sorry this has happened, My story isnt quite as dramatic and thank goodness I can still work as a Case Manager from home! I used to work in the OR until I hurt my back. I do miss the patient contact. I still talk to them on the phone but it is different. You do have to develop new skills all the while you are losing others. I really miss starting IVs! lol. You just have to come to accept your new limitations and make the best of them. You have a lot of knowledge stored up in your head. Have you looked into consulting or even Case Management? Disease Management? You can do these over the phone and on a computer like I do. It was a Godsend because I can no longer work the floor anymore. I cant stand long periods of time, at home I can get up and stretch when needed or even lay down a few minutes if I need to. It pays a fair amount. Not as much as working the floor perhaps but it is certainly better than disability or nothing at all!
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