Can anyone tell me if they have completely recovered from the anxiety after being given Reglan? I'm miserable over a month later and I just need to know there's an end in sight for this. I want my life back
How long does the anxiety last from using Reglan?
Question posted by Jacattack on 4 Sep 2017
Last updated on 31 October 2023 by pinkstsr
6 Answers
oh my goodness I had such a terrible reaction to this drug. I felt like i had to run and then within minutes escalating to me trying to throw myself in front of a moving car i would have done anything to make it stop. My kid lived close to the hospital and found me curled up in a ball wailing in the street. I also had a similar reaction to compazine but not as severe. For me the side effects went away after about a week or two. my heart breaks for anyone going through this. It is so difficult and it sad that health care professionals aren't trained differently to deal with it. I would never behaved this way but it made me lose all control over myself.
Don't give up, you are not alone!
Sending all positive energy and prayers for all going through this kind of adverse reaction.
I was prescribed this from a doc in the box and took it not knowing how it would cripple my life. I’m 10 days sober (sadly it has to be referred to as such) from this awful drug, and the side effects are destroying my life. My dopamine levels are at an all time low, and as a guy who thrives in crowds of people, I’m anxious. I just want this hell to end, and want to warn everyone prescribed to this terrible drug to be wary of the dire and (hopefully not) permanent consequences.
I am a patient going through a Reglan reaction. Not a medical professional. I am not giving medical advice. This is just my story. Please, see your physician for your own situation. First of all, I feel sorry for anyone getting the reply: "It should be out of your system by now". Of course it should. And, anyone who has experienced the hell of a Reglan reaction already knows that. It works on dopamine, so really, what REALLY happens after it is "out of your system"?? Does anyone really know? I'd like the answer to THAT question. I had my experience 19 days ago. The worst thing is the lack of knowledge from medical professionals who you are trusting with this very scary drug reaction. Please, take your time finding someone who truly cares, and is experienced enough to help you.
Do not accept the "placating veil of tolerance" that comes from medical "experts" who don't have experience with a Reglan reaction, and won't even take the time to look it up before you spend hundreds of dollars to see them and it ends up being just a waste of time and money, and worse of all, you're still scared. My story is that I had the reaction to Reglan and Benadryl IV push (a "migraine cocktail" they called it) in the ER. While it was being administered, right away, my heart raced, my chest felt on fire, and a sense of extreme fear overcame me. I told the RN to stop giving me the medication, so she did. That part of my reaction lasted about one minute. Then came the overwhelming sense of "not being able to sit still". I was in and out of the ER bed again and again. My husband was with me, and I told him I needed to stand and have him hold me, or I was going to remove my IV, for the purpose of running out of the ER. It was an EXTREME URGE to run out of the hospital. My husband had to convince me to stay for the CT scan they ordered (it was normal). After that "agitation" subsided (about 20 minutes of that) I began trembling all over. And, I trembled throughout the CT scan. I was discharged from the ER feeling worse than when I came in. The dizziness was far down on my "list of issues" because it was replaced with: "What the hell did they give me!?" That was the worst experience ever! I never even really had a migraine. I had head PRESSURE type headache. Not pain, and I had told them that. I told them that I was mostly dizzy. And, I certainly never said I was nauseated. So, not sure of the reason for the Reglan to begin with. But, being a person who had a bad vertigo BPPV attack 8 months prior, with some lasting dizziness since, I felt that Benadryl (an OTC med) and Reglan (known for GI issues) may help me. Those were my thoughts BEFORE they gave me Reglan, anyway. The PA did tell us: "This may cause 'some irritability' so we give the Benadryl with it, and that counteracts it." That's what we were told before I got the medication. Sorry! That is not enough communication for the potential horrors of Reglan. After I was discharged from the ER, I said to my husband: "What in the hell was that! I felt like I was jumping out of my skin. That was the most horrible experience ever!" My husband even told me that the look on my face while they administered it when from a "normal expression to one of fear and agitation". He saw a change in me immediately. It didn't take long to do a simple internet search to see how awful the reaction can be. I feel bad and pray for the folks with extrapyramidal symptoms and tardive dyskinesia, sometimes irreversible! Then there were those who had the extrapyramidal symptoms that luckily, subsided with the injection of Benadryl. Then there were those who did not have the extrapyramidal symptoms, but had agitation, thoughts of doom, tremors, weakness that eventually faded after a few days. A variety of these types of symptoms from patient's experiences, were easy to find online. Then there were folks like me. Who woke up the next day, after a shitty night of sleep, to the "urge to not be able sit still". I was pacing our home, trembling, blood pressure as high as 160/106, inner tremors, weakness, feeling faint, fear of being alone, fear of doom, fear of not living through to the next day, nausea, unable to work, not able to drive, not able to even shower without my husband nearby because I was so weak, crying and fear. I told my husband "I would not get to celebrate Christmas with him because I would be dead by then", and scared to death that this was permanent. I called the ER and explained what was happening, and the receptionist- ?? person answering the phone put me on hold, and returned telling me to: "Take A Benadryl. If it persists, return to the ER, or follow up with your primary care". So I took, "A Benadryl" (one pill) as instructed. And, it helped some, not much, so the next day, back to the ER we went. At the return ER visit for the drug reaction, they suggested IV Benadryl with Ativan and I was terrified to try because of what happened. So, they suggested oral Xanax, which helped. I was discharged with (5) Xanax. About 2 days passed, and I wasn't improving. I called for the ER manager. I did not get to speak with a manager of the ER, but the ER pharmacist called me back. He was one of the few helpful people in this entire process. He explained how the Reglan affects dopamine, and Benadryl corrects that. Now, if someone would have damn told me that on our return trip to the ER, I would have taken IV Benadryl... probably with the Ativan they suggested. But, no one did. They pharmacist said: "Try OTC Benadryl for 24 hours. If you still have symptoms, see your primary care, or return to the ER." Finally ! Some help! And, it did help. You have to be cautious with Benadryl though. It can knock you out to the point of not being able to walk, or be even more dangerous. Some folks like me, which I found out during this whole process, cannot take 50mg of Benadryl at a time. Also, I am not recommending medical any advice. This was my experience. Different people with different issues, or on different drugs, may not be able to take Benadryl. Check with your doctor. This is just my story. I'm not a medical professional. What continued through the next 18 days were "ebbs and flows" of symptoms. Almost everyday I wanted to be admitted to the hospital, but no one would admit me. My husband missed work caring for me. Since the beginning of this Reglan reaction, I had 2 ER visits, and 2 visits to my primary care. Now, 19 days later, I don't have thoughts of doom, my blood pressure is normal. I don't have the inner tremors. The nausea is gone. We have plans to get a large Christmas tree because i plan on being here! (It's June I know but we usually get excited about Christmas. Not sure why i felt the way I did back when this all started, but that's where a Reglan reaction takes you!) I am still weak. And, I still fear it will return at this point. I still fear some of it may be permanent; only because it's just so scary that you want it over with and gone forever. The biggest problems we tackled in my "return to the ER visits" and visits to my primary care, were getting people to listen to and believe what happened, and what was continuing to happen. The lessons here are: ER staff, please communicate to your patient better. If I knew the potential, I would of declined the "migraine cocktail" to begin with. Also, when patients still have issues for days after, communicate better on what and why they should take certain medicines. Like I said, it's day 19, I feel better, but don't want to "jinx it". Let's just put it this way, I still wouldn't go grocery shopping on my own right now. And, that's sad. And, of course I'm scared I'll have the permanent anxiety like some folks are dealing with. I hope and pray it goes away, and my life returns to normal, and the same for all who had this horrible experience. Medical community: Please take the medication Reglan, and the ones similar to it, out of use period! Please!
Thank you for your answer. How are you doing now? I would love to know!! I truly hope well!
My nightmare has been getting better.I am definitely improved from where I was Mid May. Everything started April 10. Since May I've had a few panic attacks and fear of being alone(that has gone down) Internal body shaking is still there when I wake up but less then before. But I still get these migraines and dizziness. And I dont have SO much anxiety but it's still a worry feeling. I dont love being in stores long cause it's over whelming. My Cognitive funtion has improved too. I was at a point where I couldnt really write or speak my mind, so I would just stay quiet. I wasn't driving at all last month but I just cant drive long distances by myself now. I started to drive,its an hour and half each way and turned around because I didnt think I'd be able to come back.That was this week. I felt defeated.
But I do get headaches and dizziness when driving ,not sure if that's from fear or what. It sucks this ruined my life for now. I was the most independent person you'd ever meet. Traveled long distances alone many times. I'm going to a therapist and hopeful I'll be 100%. I was the type of person the would swear off therapists. That's how much I changed. I am doing everything I can do to get better!! I believe it's just time at this point.
During this time,I went to the ER 3 times, they just told me to follow up with my primary care.I went to every doctor you can think of (all tests are good) and their answer is to this Reglan reaction . "Can this drug have side effects ? Sure it can" .The fact that they aren't truly believing me bothered me. They just think Im crazy, but I know what turned my life upsidedown. Reading forums has really helped me that's why I wanted to share my story.
So at the 3 month mark I'm absolutely better then where I was and as desperate as it seems it WILL get better for anyone reading this. Much Love !
Can someone please answer how long these symptoms lasted for them? Anything permanent? I'm on 1 month with migraines , dizziness and anxiety. Never had anything like this before. Anyone have anything permanent
Hi there, I just received a notification on this, I apologize for the LONG delay. I have permanent anxiety from a single dose of Reglan given to me via IV in hospital for GI issues. I have been to doctors, therapists, psychiatrists you name it I've gone. I had a dormant gene issue that was brought to the forefront and took over my life after I found the right doctor to perform a gene testing (simple cheek swab) I waited for the news that I had MTHFR Gene Mutation. Reglan caused my small body to STOP producing Dopamine, Serotonin and Norepinephrine. I went from 125 lbs to 87 in 3 months. I ate once a day and threw it up almost immediately, water hurt so I couldn't bathe, my heart rate stayed over 200 I had constant anxiety attacks. I was a walking non talking zombie. I switched doctors when I went under 90 lbs and got the help I needed. I am back up to 120 lbs, I'm eating regular meals with some nausea still.
My anxiety hits once in awhile but is controlled by a mixture of 1 Zofran and 3 Valium daily. For me, it's a permanent issue, I have found it to be the case in contacting and reaching out to people all over. I hope it is not the case for you. The Valium masks it, but I know and I can feel it's still there. My best advice because I've been dealing with it since July 22, 2017: DO NOT GIVE UP. FIND a doctor that UNDERSTANDS it ABSOLUTELY WAS REGLAN that did this to you. The 'It's out of your system' is bull, it causes PERMANENT, DEBILITATING issues and I am SO sorry that this happened to you. I truly am. I never knew about the dangers of Reglan until it happened to me. Reach out to people, DO NOT isolate yourself, ask for help and do NOT give up, please.
Wow ! I'm shocked reading this. I never read anything about a gene mutation. What kind of doctor is that ? I'm in NYC hopefully I can get to them. Do you know if that is the reason that people have this long lasting side effects? I haven't heard one doc that fully understands Reglan does this. These migraines are brutal, 3 months strait. I'm trying my best to not take anxiety medicine because I now have a fear of taking medications for too long. Just when I really really need it.but I bet it will help. Im even afraid of the vitamin B complex I was given. It's really nice to hear from someone else. Thank you
They said that it attacked my central nervous system and triggered a mutated gene (activated it). I saw a psychiatrist to get the gene testing done. I hope this helps!
I had an iv of this crap for migraine pain July 17, almost 3 months and I'm still struggling with anxiety, dizziness irritation ant be alone etc. How long did you have anxiety and other symptoms. No doctor is valudating me. I know it was the reglan! Ive never had anxiety before. It happened immediately when administered, then the following morning panic attack and ever since. I feel desperate. Can you tell me ling how long this lasted for you???
How long did this last for you? Anything permanent? I'm on 1 month with migraines , dizziness and anxiety can't think or read or write strait. Never had anything like this before. Anyone have anything permanent
Jacattack; Really by now all of the Reglan should be out of your system if it continues for more than a couple more weeks you should see the doctor again and find out if it is something else now.
My therapist told me that reglan can cause anxiety up to 4 months. I've been doing some digging around and I've found so many awful medical issues caused by reglan and it can be permanent! I was just wondering if anyone has fully recovered and how long it took?
Jacattack; Yes there is from my first post back to you any dispute that it can cause the symptoms you're talking about medications can affect everyone differently. But from the sources, I have found the longest time that people have said they have had this problem is between 2 to 4 months and not one of these people know of or said that it remained permanent. But some sure were worried that it would. And then finally started to get rid of any side effects that they were still having at the latest 4 months. I hope you continue to get better also or they at least get something to help you feel better. Have a good day
Thank you so much for your help! I will re read these words everyday if I have to to feel better! Thank you again
Jacattack; THAT IS A VERY GOOD IDEA, I HAVE LEARNED WITH MY MEDICAL PROBLEMS TO TRY AND NOT DWELL ON THINGS AND LOOK AT AND READ JUST THE POSITIVE THINGS. because there are so many negative people they just get us more upset. AND FOR THE MOST PART, IT'S JUST A PERSON THAT HAD PROBLEMS WITH ONE THING WE NEED TO STAY POSITIVE, KEEP THE FAITH AND A SENCE OF HUMOR. WE CAN'T LET THEM GET US DOWN. cHUCK. aLL MY BEST TO YOU IT WELL GET BETTER.
Thank you chuck! When I recover I hope I can help someone dealing with this like you helped me. Pay it forward
I was on Reglan 10 yrs for my stomach pain. I started with twitching fingers and later diagnosed with tardive dyskinesia from the Reglan. I had Cannabis so I didn't have anxiety but the movement disorder has affected my entire body anxiety raised BP, check with your Dr, your withdrawal should be over by now anxiety is a well known symptom of Lyme/fibro/thyroid issues. In fact another antipsychotic med Seroquel caused my thyroid to become hyperthyroid and wicked anxiety came with that. Check drugs interactions for other meds, removing Reglan may have shifted another drug or drugs to cause new interactions and side effects. I found this out and told my Dr, she didn't know.
Are you still feeling the way you were? Did you recover from the Reglan?
How did these symptoms last for you?
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Further information
- Reglan uses and safety info
- Reglan prescribing info & package insert (for Health Professionals)
- Side effects of Reglan (detailed)
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